PE - When can I resume exercising again?

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How soon did you return back to exercising?

The ER doctor said I could exercise right away and to just listen to my body. So I rested 3 days and then started doing my daily 2-3 mile walks. I feel great and have had no issues.

Today at my 1 week follow up appt, My Primary Doctor said he wanted me to wait 6 months!!

Have I put myself at risk of loosening a clot by returning to exercise so quickly?

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10 Replies

  • Posted

    Hi,

    I was told the exact same thing, start off gently and listen to your body. I was told it could take 6 + months for the clots to dissolve and the swelling of my leg as that's where the clot originated, will puff up now and again for a while to come, same goes for the breathlesness and the fatigue ...... 6+ months

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    • Posted

      Thanks for the response! I really appreciate it! I am so thankful I stumbled upon this group. I don't think anyone else can fully understand the emotional & physical feelings unless you have experienced it yourself.

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    • Posted

      Yes unfortunately PE's can be scary and cause lots of stress both mentally and physically. I think it's the way the nerves from the lungs with the clots communicate with our brain causing a lot of peoples anxieties, but they are real because as we all know PE's can be dangerous.

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    • Posted

      im 6months out of a saddle PE and lately i have been feeling anxious, tired, unbalanced and just fearful of just everyday stuff. anyone else feel this way because its really concerning me
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    • Posted

      Hi Teris,

      "Yes" to all the above.  I am afraid it seems to be very common to have those symptoms.  This isn't helped by the lack of information/guidance post PE.

      It does get better - honest. My lungs were really messed up after my PEs. Now are better than expected for age etc.

      HTH

      ?Peter

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  • Posted

    Hi,

    Listen to ur body. As Far as i know it is really good

    To do exersice. Because u help ur body to absorbed the clot. My doctor told me if u can do normal things thats really good sign. Its ok to do exersice if u can and feel good thats what he say but dont push it if u cant! Like feel pain. Less of breathIng.

    How big is ur clot?

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    • Posted

      I have a DVT behind my knee and multiple clots in both of my lungs. The doctor said they are on the outside perimeter of the lungs and that is good. He said it gets really critical if they were further inward closer to the heart. The ER doctor who treated me said I have no restrictions, but my Primary Care doctor was very concerned about me not doing anything for 6 months to ensure I don't loosen a clot during exercise. Kinda freaked me out!

      But I feel great after my walks! Not winded or tired. And I feel so fortunate to be alive!

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    • Posted

      I have multiple clots in, not around perimeter, of both lungs believed to have broken off from a clot ( DVT ) from left calf muscle. I'ts horrible when you get breathless just showering or drying yourself. Ihave been told that the right side of my heart is at times straining due to the multiple clots but I was still advised to move around as sitting around could make things worse, now whether that means for the heart or the clots I have no idea. I was also informed that once on blood thinners the likely hood of clots returning was minimal unless you are pre disposed  of getting them or PE's run in the family as they can be hereditary,

      I suppose you can only go by what your specialist has told you but I find it strange he told you to basically lead a sedentry lifestyle for 6 months, you would become unfit, perhaps 2 -3 miles maybe a bit to much but if your body wasn't complaining then I dare say your system is coping well with the clots.

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  • Posted

    Same as the others - I was told it was good to exercise and to carry on as long as you feel ok to do so.

    I suppose it may depend a bit on the cause of the PEs. I had no sign of a DVT or any other cause, so was good to go once the anticoagulants were working.  Perhaps someone with active DVT would have to wait? I don't know enough to say...

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