1. Community
  2. Women's health
  3. Lichen Sclerosus

Pediatric LS

Posted , 5 users are following.

gretchen50988
gretchen50988

Hi, I'm new to the group. My 9 year old has

Had LS since at least 18 months. She hasn't had a flare up in 6 years and has been home from school for a week. Does anyone have experience/info with ped LS? She is constantly itchy & uncomfortable. Also, I diagnosed her through my gynecologist and dermatologist on staff, but is there a specialist I should be seeing? We are close to Chicago. Many thanks!

0 likes, 5 replies

5 Replies

  • Tree_hugger
    Tree_hugger gretchen50988

    Posted

    Hi there,

    So sorry to hear about your daughter. I am in a couple of lichen sclerosis support groups on Facebook.

    They are closed groups and so no one can see what you post or comment if they are not in the group.

    I'm sure you will find great support here, but I have seen mothers asking for advice for their children in there, so I'm just mentioning it as another route to support.

    Really hoping she gets over her flare up soon xxx

  • hanny32508
    hanny32508 gretchen50988

    Posted

    I have not really experience with LS at such a young age, though I suspect that my discomfort at a young age was caused by LS.  At the time no one thought to take a serious look at my complaints. 

    ​What may help is baking soda baths (1/3 cup) and/or borax baths (1/6 cup in a bath) Plus rinses after every bathroom visit.  (three pinches in a Perin bottle) 

    ​Also, perhaps apply a small amount of coconut oil after the rinses. 

  • mary09950
    mary09950 gretchen50988

    Posted

    Has you health provider prescribed treatment such as steroids? I don't know if recommended medication is the same as adults. I know the symptoms must be under control to prevent further and more complex problems.

    Good luck!

  • dianne.us
    dianne.us gretchen50988

    Posted

    Hi Gretchen,

    ?Its great you were able to get a diagnosis quickly.  I spent years in misery  before getting one which was the norm over 20 years ago.  Many recommend vulva specialists. Have you also tried  altering your child's diet?  There are studies linking gluten to autoimmune diseases and LS is thought to have a connection to autoimmune.  I get flares when I eat chocolate and too much sugar.  When we irritate the gastrointestinal system so many additional organs and tissues are irritated not to mention it is also acidifying (sugar) so the body must respond by balancing that acid typically with the calcium from teeth and bone. Try removing gluten, candy, sugary snacks, etc for a month and see if it helps.  It cant hurt.  Just my own thoughts.  Wish both of you the best

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.