Pelvic floor disorder anyone?

Posted , 3 users are following.

Hi all,

I recently got diagnosed with pelvic floor disorder and am awaiting to start biofeedback therapy. Unfortunately, my therapy doesn’t start for over a month. I am also awaiting an MRI of my pelvis to see if I have a cyst or anything that is pushing against my bladder and giving me even more of an urge to go. 

I have had quite a few health issues diagnosed recently, but I really think that this one actually takes the cake at sucking the most. I have literally zero quality of life because of this. I am not currently working and spend my entire day in the bathroom. It’s SO bad. I don’t go anywhere. The worst part though is that I can’t get sleep, and was wondering if anyone had any advice for that as I wait for my physical therapy. It doesn’t matter what time I quit drinking fluids, I am up every 30 minutes needing to use the restroom. I’ve thought about intentionally dehydrating myself before so I can spare myself trips to the bathroom. It really is BAD, and I’m sure my stress and lack of sleep is only making the situation worse. I have completely withdrawn myself from everything because this has gotten so bad. Any advice would be greatly appreciated. 

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  • Posted

    Working with biofeedback will be a long path. First improvements you may get after few weeks or months, but you should keep doing it for rest of your life to maintain strong pelvic floor muscles. It is like with any sport, when you stop doing it, you get weak.

    Try to avoid elevated abdominal pressure as much as possible. Abdominal pressure happens when you contract abdominal muscles and diaphragm. In this case abdominal space become smaller and pressure elevates. Because your pelvic floor is too weak to resist, pressure push your pelvic organs out. You can see it on schematic picture.

    I recommend you to learn some basic anatomy of pelvis and pelvic floor muscles to make  your work with biofeedback  more efficient. You should understand that when you work with your vaginal muscles, only bottom third of vagina is contracted by pelvic floor muscles. Top 2/3 of vagina has no  sceletal muscles, so you can't contract it by pelvic muscles. Top 2/3 are "contracted" by abdominal pressure. It is not work of vaginal muscles, but just intraabdominal pressure that squeeze it from outside.

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  • Posted

    Very important is to choose good biofeedback device, that give you positive feedback when you work with pelvic floor, and gives you no feedback when you work with abdominal muscles or elevate intraabdominal pressure. I would not recommend to use devices that use EMG activity. EMG based biofeedback don’t show you if are you elevating pressure or not. Because pelvic floor is weak, all beginners can’t control their pelvic floor and other muscles properly yet and  involve other muscles around, therefore increasing abdominal pressure. This is very dangerous, because intraabdominal  pressure is harmful for weak pelvic floor, because it pushing out pelvic organs and increase prolapsus.  

     Very good biofeedback device is ball-shaped thing inside vagina with laser stick outside. When you work with your pelvic floor, laser pointer goes down. If you contract abdominal muscles and increase pressure, laser pointer just not going down. You measure results by laser pointer amplitude in cm. This device teaches you to work with pelvic floor muscles without involving intraabdominal pressure. This  device is also good for exercising at home, because it is simple.

    So, my advices are (1) learn about pelvic floor, where are muscles that you should contract, how intraabdominal pressure works and how to avoid it. How to work with your pelvic floor rest of the day in daily activities. (2) Choose good biofeedback device and specialist, who can explain you anatomy and how to work with your body.

     

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    • Posted

      Thank you for taking the time to reply with all of this useful info! I really appreciate it and will look in to all of it!
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    • Posted

      Any relief yet since 2 months ago? Doing biofeedback? I went a few times but still think I have a blockage or muscle damage. Just can’t do a BM on my own.   Only get out thing streams of bm.   Bigger sizes won’t pass. I have to resort to daily enemas to relieve myself. It’s been over a year now and I am not a happy person.   😢

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    • Posted

      I actually had SEVERAL vaginal cysts and TONS of cysts on my cervix that were causing me chronic cervicitis (inflammation). It took literally forever to get this diagnosed and treated and it was giving my symptoms as bad as advanced cervical cancer. It was really scary. The thought of intercourse or pelvic exams always made me want to vomit because it was so excruciatingly painful for me. I’m still healing, but my urinary symptoms are about 70% better. I’m hoping I won’t even need the physical therapy. 

      I’m so sorry to hear about your struggles. I never had the issues with BMs which always led me to believe that something deeper was going on. My bladder symptoms were SO severe that I always thought to myself “surely my bowels would be affected by now if my muscles really were THAT messed up.” I hope you find some relief soon sad

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    • Posted

      Glad you are finding some relief since your diagnosis. I would love 70% successful BMs. Trying to find others with my issue on this site. Continue health to you and yours. 
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