Pelvic Organ Prolapse
Posted , 27 users are following.
I do wish this subject wasn't so unheard of as it is soo common and yet this forum has only a minimal amount of posts. I think we as women feel so distressed and alone with this that it is not talked about. I discovered my prolapsing uterus about 6 months ago and now my bladder has also prolapsed and I am sure my bowel is not far behind. This is a horrible situation. I was examined lying down both by my doctor and by a gyno and both times was told I had no prolapse. However when standing up everything drops!
I am truly depressed and horrified by everything that is happening to my body and do not know what to do. I just wish I knew somebody personally who had this that I could talk with.
4 likes, 33 replies
Bunny1
Posted
I just about gave up. A friend recently told me about a new app (Kegel Aerobics) I got the app 6 weeks ago, what a difference it has made. It seems that it takes a one on one training experience to get real results. This app has 3 reminders, I set them up for twice a day. It starts you as a beginner & you increase levels at your own speed. It than coaches you for a full exercise program. I am now continent, my prolapse has improved, and I can even have sex without pain.
Try this app available on your smart phone.
pam34714
Posted
christine63500 pam34714
Posted
sandra2468 Guest
Posted
i also wish I could speak to someone who has had successful surgery.
I have pelic floor prolapse in all 3 compartments.
My womb and bladder are right down as well as lining of bowel.
I am in totall discomfort 24/7 now as this has been going on for nearly 3 years.
Prior to that it was minimal.
I have only slight urine leakage.
Womb right down, and bladder.
I have been looking at opitions and realise now that different specilaists have different techniques. The patient is aware of this.
It is difficult for me to do pelvic floor exercises as it is though there is something stuck in my anus. I have had haemorrhoids, with remaining skin tags, and all this i realise rather late is from the pressure of my prolapse. The urogynaecologist does not seem to work with the colorectal specialist, hence there are different techniques and many people have two or 3 surgeries because the first surgey was not the correct surgery.
Doctors who may be looking at this.
If you dont come together for us ladies we are going to be left in a worse condition. We need proper assessment.
ie Investigation under anaesthetic
Protogram in the sitting position not lying down MRI, the old fashioned method is best.
Two brains coming together from both areas to help the patient.
I have paid privately to get different opinions so I am now in the know.
Haemorrhoids that are not from bleeding or constipation are from prolapse.
I am still looking for the right surgeon.
In USA they do Sacrolpexy with robot.
There is also Ventral Rectopexy mainly for the rectum, however I believe this also helps with the bladder too.
There needs to be a specialist who undersands both areas properly.
I have back degeneration of my lower spine, so I am not sure if some of these methods will be good for me as I believe with some of these metheods one uses the Sacrum to secure the bladder and womb etc.
I believe also that it could be valuable to keep the womb as without it you can also get further back ache.
In my opinion albeit rather late I think it is possibly to really explore the PESSARY.
Especailly if you have low chronic back pain.
Any ladies out there with successful ops please let me know.
Mind over matte ladies, keep strong.
christine63500 sandra2468
Posted
sandra2468 christine63500
Posted
Thanks for your info much appreciated.
it is a worry having surgeries. If only more people would write in and offer support and share their stories.
If any one could help me with my problem would appreciate.
Proctogram showed prolapse in all 3 compartments 1 year ago.
i have discomfort now 24/7
My womb is right down to opening of vagina, bladder right down too,
bowel slipping lining down.
I'm not sure whether to try out a pessary first to help discomfort,
or go for banding for haemorrhoidal tissue.
I am not getting help NHS now.
After 3 years UCLH colorectal discharged me.
I am sure they do not BAND patients for haemorrhoids.
Outside opinion private gave me two options.
1) Try banding as a first port of call.
2) If you get relief HALO could be an option too, this procedure can also include hitching lining of bowel.(muco-pexy)
Let me say I do not have full blown haemorrhoids.
I do not suffer from bleeding or constipation.
i have constant anal discomfort.
Summer 2013 had thrombosed haemorrhoid was in bed and now have many skin tags.
Now I have discomfort in my anus 24/7
Discomfort when sitting, lying down etc etc.
I probably need assessment under anaesthetic.
Has anyone had this?
Unfortunately chronic low back pain from disc degeneration has not helped.
There is a possibility that my back is the main problem as I have had 10 years of chronic back pain on waking primarily. I only get 4/5 hrs sleep if I'm lucky and remain very fatigued.
Is there anyone else who has chronic back pain that may contribute to their prolapse?
Christine I wish you well.
Even in the private sector you are not analysed by colorectal and uro-gynaecologist together. All specialists have different skills and techniques.
I have only realised after 3 years of struggling.
If any doctors are reading these forums.
There needs to be joint assessment (colorectal and uro-gynaecologist together.
As an NHS patient are choice of hospital is prohibited.
The NHS site infers that we have a choice to choose our hospital, however this is not true.
The GP will send you to the local hospital not always the best for your condition because of funding issues.
We are all in need of a better NHS.
Sandra
KATZ6615 Guest
Posted
sandra2468 Guest
Posted
Just come back to this site.
Any news with you.
Sandra2468
mary12941 Guest
Posted
christine_67534 Guest
Posted
I'm having surgery in about three weeks for rectocele,cystocele,pelvic floor ddysfunction & vaginally vault prolaspe has
anyone else had this surgery and can I expect...
ana77441 Guest
Posted
Hi, I had that surgery done on October. It was alright. After surgery you feel pressure down below even when you're holding just a glass of water. Careful with sneezing or coughing and even speaking loud. First time sex after surgery was alright because I was afraid of possible pain, but no, it was really alright. I feel great so.far, and I'm happy I.did it. I did a anterior and posterior pelvic floor repair. So you're going to be alright too for sure. Good luck
ana77441 Guest
Posted
Just another thing, there are thousands of women in the same position as us. This is actually very normal to happen to women that had children. Especially me I had five and my last was 11 pounds. At some point in a woman's life a prolapse will happen
At the time I was ashamed and sad, girl how much I've cried. But now I joke about it and I accepted and very important, bear in mind prolapses can recur...
Fiona1311 Guest
Posted
I also feel completely disgusted by my prolapse. I can fully understand how distressing this is for you. I'm 28 and have been trying to deal with a prolapse for about 5 years now. I've had 4 corrective ops and one undo op as I was advised to have the mesh removed at one point. I am now a mystery because the surgery hasn't been successful. I'm now, in what can only be described as, limbo. My mental state is suffering greatly, as is my life and relationship.
Like you, I've only ever been examined lying down, but as you say, the issue is gravity! Mime was obviously at a grade that was obvious even when I did lie down though. However, I havealways wanted them to see the full extent of what I deal with in a daily basis.
Do you suffer pain? Have they suggested a ring pessary to you?
elizabeth_1963 Guest
Posted
double_lisa elizabeth_1963
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