Pelvic Organ Prolapse

Posted , 27 users are following.

I do wish this subject wasn't so unheard of as it is soo common and yet this forum has only a minimal amount of posts. I think we as women feel so distressed and alone with this that it is not talked about. I discovered my prolapsing uterus about 6 months ago and now my bladder has also prolapsed and I am sure my bowel is not far behind. This is a horrible situation. I was examined lying down both by my doctor and by a gyno and both times was told I had no prolapse. However when standing up everything drops!

I am truly depressed and horrified by everything that is happening to my body and do not know what to do. I just wish I knew somebody personally who had this that I could talk with.

4 likes, 33 replies

33 Replies

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  • Posted

    I have been a great believer in pelvic floor muscle exercises, did them whenever I remembered while waiting at traffic lights. elevators etc. However it was not producing the benefits I had hoped for. I was still leaking, had to use liners and my prolapse had not improved.

    I just about gave up. A friend recently told me about a new app (Kegel Aerobics) I got the app 6 weeks ago, what a difference it has made. It seems that it takes a one on one training experience to get real results. This app has 3 reminders, I set them up for twice a day. It starts you as a beginner & you increase levels at your own speed. It than coaches you for a full exercise program. I am now continent, my prolapse has improved, and I can even have sex without pain.

    Try this app available on your smart phone.

  • Posted

    Has anyone here found a gynaecologist who has successfully operated on their prolapses for three times upwards? I have had three repairs and it's gone again. Currently, my NHS gynaecologist suggests leaving it, but my life is so affected by it, -its painful and so uncomfortable. I have been there with pelvic ring pessaries, had a hysterectomy as the womb was affected and became misshapen due to long term prolapse after children. I am an otherwise very fit and active 52 year old. Is there any surgeon anywhere who can make me better? Or any other treatment, anywhere? Thanks
  • Posted

    Hello,

    i also wish I could speak to someone who has had successful surgery.

    I have pelic floor prolapse in all 3 compartments.

    My womb and bladder are right down as well as lining of bowel.

    I am in totall discomfort 24/7 now as this has been going on for nearly 3 years.

    Prior to that it was minimal.

    I have only slight urine leakage.

    Womb right down, and bladder.

    I have been looking at opitions and realise now that different specilaists have different techniques. The patient is aware of this.

    It is difficult for me to do pelvic floor exercises as it is though there is something stuck in my anus. I have had haemorrhoids, with remaining skin tags, and all this i realise rather late is from the pressure of my prolapse. The urogynaecologist does not seem to work with the colorectal specialist, hence there are different techniques and many people have two or 3 surgeries because the first surgey was not the correct surgery.

    Doctors who may be looking at this.

    If you dont come together for us ladies we are going to be left in a worse condition. We need proper assessment.

    ie Investigation under anaesthetic

    Protogram in the sitting position not lying down MRI, the old fashioned method is best. 

    Two brains coming together from both areas to help the patient.

    I have paid privately to get different opinions so I am now in the know.

    Haemorrhoids that are not from bleeding or constipation are from prolapse.

    I am still looking for the right surgeon.

    In USA they do Sacrolpexy with robot.

    There is also Ventral Rectopexy mainly for the rectum, however I believe this also helps with the bladder too.  

    There needs to be a specialist who undersands both areas properly.

    I have back degeneration of my lower spine, so I am not sure if some of these methods will be good for me as I believe with some of these metheods one uses the Sacrum to secure the bladder and womb etc. 

    I believe also that it could be valuable to keep the womb as without it you can also get further back ache. 

    In my opinion albeit rather late I think it is possibly to really explore the PESSARY.

    Especailly if you have low chronic back pain. 

    Any ladies out there with successful ops please let me know.

    Mind over matte ladies, keep strong. 

     

    • Posted

      I had hysterectomy due to prolapse. At same time had posterior repair, a year later had bladder prolapse so had anterior repair.  This time mesh repair, I have had two years of not feeling right down below, but feeling better now.  As the posterior repair was not done with mesh, chances are I will need another repair at some point.  

       

    • Posted

      Hi Christine,

      Thanks for your info much appreciated.

      it is a worry having surgeries. If only more people would write in and offer support and share their stories. 

      If any one could help me with my problem would appreciate.

      Proctogram showed prolapse in all 3 compartments 1 year ago.

      i have discomfort now 24/7 

      My womb is right down to opening of vagina, bladder right down too,

      bowel slipping lining down.

      I'm not sure whether to try out a pessary first to help discomfort,

      or go for banding for haemorrhoidal tissue.

      I am not getting help NHS now.

      After 3 years UCLH colorectal discharged me.

      I am sure they do not BAND patients for haemorrhoids.

      Outside opinion private gave me two options.

      1)  Try banding as a first port of call.

      2)  If you get relief HALO could be an option too, this procedure can also include hitching lining of bowel.(muco-pexy)

      Let me say I do not have full blown haemorrhoids.

      I do not suffer from bleeding or constipation.

      i have constant anal discomfort.

      Summer 2013 had thrombosed haemorrhoid was in bed and now have many skin tags.

      Now I have discomfort in my anus 24/7

      Discomfort when sitting, lying down etc etc.

      I probably need assessment under anaesthetic.

      Has anyone had this?

      Unfortunately chronic low back pain from disc degeneration has not helped.

      There is a possibility that my back is the main problem as I have had 10 years of chronic back pain on waking primarily. I only get 4/5 hrs sleep if I'm lucky and remain very fatigued.

      Is there anyone else who has chronic back pain that may contribute to their prolapse?

      Christine I wish you well.

      Even in the private sector you are not analysed by colorectal and uro-gynaecologist together. All specialists have different  skills and techniques.

      I have only realised after 3 years of struggling.

      If any doctors are reading these forums.

      There needs to be joint assessment (colorectal and uro-gynaecologist together.

      As an NHS patient are choice of hospital is prohibited.

      The NHS site infers that we have a choice to choose our hospital, however this is not true.

      The GP will send you to the local hospital not always the best for your condition because of funding issues. 

      We are all in need of a better NHS.

      Sandra

       

  • Posted

    are you still on here? I have the same thing and I'm scared..
  • Posted

    Katz,

    Just come back to this site.

    Any news with you.

    Sandra2468

  • Posted

    Hi everyone - it is so good to read there are so many ladies who are in the same trouble as I am, I had begun to think it was such a rare occurance and although I feel for all of us it is good to know I am not alone.   It seems strange there is not an easy solution to our problem   I have been aware of my prolapse for nearly two years, at first it didn't seem too bad but now has progressed to quite a miserable time.   Although I had a hysterectomy about nine years ago i should have paid more attention at the time to do the exercises that were recommended which may have stopped the prolapse occurring.   My prolapse is outside my body like a heavy plum or small pear when I stand but usually retreats on lying down.   I do the exercises I have found on the net sporadically.   I saw my consultant about two months ago and he said he didn't think exercises would make any difference but I still do them sometimes.   The only options for me were either surgery or carry on as best I can.   What has made my prolapse so bad is because I have always suffered from constipation and now it is even worse, I like to take vitamin suppliments but really have to watch out to see they don't have iron which makes matter so much worse.   I hope for all our sakes there is a really effective treatment so so soon.
  • Posted

    I'm having surgery in about three weeks for rectocele,cystocele,pelvic floor ddysfunction & vaginally vault prolaspe has

    anyone else had this surgery and can I expect...

  • Posted

    Hi, I had that surgery done on October. It was alright. After surgery you feel pressure down below even when you're holding just a glass of water. Careful with sneezing or coughing and even speaking loud. First time sex after surgery was alright because I was afraid of possible pain, but no, it was really alright. I feel great so.far, and I'm happy I.did it. I did a anterior and posterior pelvic floor repair. So you're going to be alright too for sure. Good luck smile

  • Posted

    Just another thing, there are thousands of women in the same position as us. This is actually very normal to happen to women that had children. Especially me I had five and my last was 11 pounds. At some point in a woman's life a prolapse will happen

    At the time I was ashamed and sad, girl how much I've cried. But now I joke about it and I accepted and very important, bear in mind prolapses can recur...

  • Posted

    I also feel completely disgusted by my prolapse. I can fully understand how distressing this is for you. I'm 28 and have been trying to deal with a prolapse for about 5 years now. I've had 4 corrective ops and one undo op as I was advised to have the mesh removed at one point. I am now a mystery because the surgery hasn't been successful. I'm now, in what can only be described as, limbo. My mental state is suffering greatly, as is my life and relationship.

    Like you, I've only ever been examined lying down, but as you say, the issue is gravity! Mime was obviously at a grade that was obvious even when I did lie down though. However, I havealways wanted them to see the full extent of what I deal with in a daily basis.

    Do you suffer pain? Have they suggested a ring pessary to you?

  • Posted

    Go see a urogynacologist they do repairs on all the organs . I just had prolapse surgery and recovering from it. 6/8 weeks to recover
    • Posted

      Did the surgery shorten your vagina?I heard a hysterectomy can do the same.  The doctor asked me if I was sexually active.  He said he will do his best but there are no guarantees. He said 2 months to recover.  Did the surgery last?

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