pemhigous vulgaris

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I'm asking on behalf of my sister who has Pemhigous Vulgaris. She was diagnosed last March 2016 after months of suffering and has since been taking Prednisolone and Mycophenolate. She was initially prescribed 60mg of Prednisolone and is now taking 10mg daily  and she is also taking 2 grams of Mycophenolate.

Does anyone know if you can come off Mycophenolate cold turkey style or would she have to wean off gradually. Her next appointment with the consultant is in two months time but would really like to know before then as she doesn't feel like being on this drug much longer, as she is taking steps towards her own health care plan with alternative medicine.

Thanks, much appreciate if someone knows about if its ok to just stop this drug and she's  aware that she cannot abruptly stop the steroids.

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  • Posted

    Sorry to hear see has Pemhigous Vulgaris. See should consult with her doctor before weaning off any prescribed medication. That's very important for her safety, because the doctor who put her own will likely know best. 

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  • Posted

    Hello Yvonne, I am sorry to hear that your sister has Pemphigus Vulgaris.  This is a very serious autoimmune disease & your sister needs to talk to her Consultant before doing anything.  There is no cure.  She can't just stop Mycophenolate Mofetil & if she decided to stop taking it, it is likely that the PV would flare & she would be back at square one again.

    What part of the country does your sister live in?

     

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