People diagnosed with severe osteoporosis around tscore of -3.5 or worse

Thanks for your response.

It is odd that people with really bad osteoporosis diagnosed but have broken no bones.

I have been told I could easily break my back. I therefore take no risks.

It has affected the way I live my life but my herniated discs stop me from taking any risks anyway as I have pain in my sacroiliac if I try to do much.

When I sneeze now I open my mouth and throat because I had pain when I sneezed once and my husband said to do this. I think that is when I caused the herniated discs. 

Bone strength also factors into how good our bones are!

Hi Pam,

really interesting to find you managed to improve your t scores with supplements. I am also taking calcium vit d etc in one supplement but interested in finding out more about your reasons for taking hyaluronic acid and what is msm ?

Thanks for the feedback. I am doing the natural way until it becomes unwise.

You did not mention vitamin K2 ; are you taking that as well?

I am 

I am prone to anxiety and depression so I just monitor myself for that. I am not on any medication but have been in the past. 

My initial diagnosis was severe at age 70. In Australis, people are not checked before 70 unless they have broken bones which is a shame.

 

Hi Handbrake, I too am now taking MSM. Just 1/2 tsp at this time.  I probably heard about it from Pam or someone else here. I'm using it to heal my stomach from the Prednisone, I think it's working.  I believe it has other benefits as well.  I Ordered high quality (so it says) flakes.  It disolves very well and I put in 8 oz water. No taste. 

Hi Pam

I cannot see where you posted before although I was curious to read your posts. .Do you mind if I am asking some questions ?

1. Did you take medication for OP or you reversed it with supplements?

2. Do you have your dexa numbers before and after  treatment ?

3. Did you have your dexa  in the same place ?

I organized my questions to be easier for you . I will appreciate a lot if you could answer. I asked this way because I did have 4  dexa -scans in 10 years in 3 different places. I  had some unpleasent experience -I mean I am sure at leats in one placeI  had not accurate  results . Thank you very much for taking time to answer .

Mariana

Hi Pam

I cannot see where you posted before although I was curious to read your posts. .Do you mind if I am asking some questions ?

1. Did you take medication for OP or you reversed it with supplements?

2. Do you have your dexa numbers before and after  treatment ?

3. Did you have your dexa  in the same place ?

I organized my questions to be easier for you . I will appreciate a lot if you could answer. I asked this way because I did have 4  dexa -scans in 10 years in 3 different places. I  had some unpleasent experience -I mean I am sure at leats in one placeI  had not accurate  results . Thank you very much for taking time to answer .

Mariana

Hi Layne, hope you are well🤗 Haven't heard of MSM what is it?

methylsulfonylmethane

MSM is used for chronic pain, osteoarthritis, joint inflammation, rheumatoid arthritis, osteoporosis, bursitis, tendonitis, tenosynovitis, musculoskeletal pain, muscle cramps, scleroderma, scar tissue, stretch marks, hair loss, wrinkles, protection against sun/wind burn, eye inflammation, oral hygiene, periodontal disease, wounds, cuts, and abrasions/accelerated wound Healing, ....

Think it can be used externally and internally.

Received links you sent me ...🤔 thanks Layne

When I was first diagnosed I was taking myacalcin nasal spray.  I helped with the pain I had a the base of my spine.  In 2009 I went to an endocrynologist who also worked with esteoporosis patients because of pain in my hip.  I thought the osteoporosis was getting worse but after the bone density test, I was told it reversed to osteopenia.  I had been taking calcium/magnesium/D3/zinc all along, 2 in the morning.  Well, she told me to space it out doing 1 every 12 hours, and to remain consistent with the same brand.  She also took me off the Myacalcin.  But I was still hurting in the hip and it was horrible.

I'm sorry to say, I don't have my numbers.  This has been over a long period of close to 20 years.  I'm 68 now.  My insurance has changed several times because of Palm Beach County changing who they insured with and then retirement I got another insurance.  I have been to several stand along imaging facilities and the only bad experience I had was that the table was so hard and unpadded.  It really hurt my back and I was always in a hurry to get out of there.

As far as the hip pain went, I was referred to an orthopedic physician and had xrays,  Well, I have seriously compressed discs with arthritis.  Pain in the lower back can radiate into the hips.  I am still taking the supplements plus a joint complex.  Calcium can help with pain tolerance.  The only time I take anything for actual pain is at bed time.

My neurologist recommended the Mediterranean diet which which stresses more fish, chicken, and the use of lots of fruits in which some have antiinflamatory properties my favorite being pineapple.  Olive oil the oil mostly used in this diet.  

If you feel like any of the facilities you have gone to wasn't accurate, I would consult with your primary physician.  I do not mind answering your questions at all.  

Hi Pam,

​I was diagnosed with OP after breaking both my wrists last December.  I suffer with OA too, as well as M.E./Fibro and asthma, so they believe at the moment that the steroids I took as a child - apparently they don't give to children under the age of 12 now - stunted and damaged my bone growth/strength.  I am seeing a rheumatologist next month so be interesting to see what they say.

​Did you find an endocrinologist helpful?  Or the neurologist? And what is myacalcin spray?

​I feel a bit like I am scrabbling around in the dark at times trying to work out what is best for me!  So all help useful in my mind to aid me in making the correct decisions for my health

​I too am following a healthier diet and trying to take more exercise as and when I can....without doing myself a mischief! lol

​I hope you are not suffering too much.

​kind regards Carrie

Hi Layne,

MSM I have heard of, but had forgotten about.    Do you think it is helping?

​kind regards Carrie

 

Hi Pam/Mariana,

I'd be interested to know too! 

​kind regards Carrie

Hi Pam,

​Apologies if I missed your answer to Patty, bu I would be interested to know too   If hyaluronic acid will really help.....think I responded about the msm in a different post.....thank you for your help

​kind regards Carrie

Hi Pam,

Me again!  lol

​Apologies if I repeat myself....you say you take calcium, magnesium, D3 and zinc in one tablet, is that prescribed or do you buy?

​I take the ical-d3, a separate magnesium and zinc, along with k2, along with a mutli tablet that includes boron, etc.  I'd be very interested in knowing the joint complex with hyalauric acid and msm you are taking if you don't mind ?

​I was diagnosed with OP last December and suffer with OA too.   My t scores were given as -4 so I know I'm not good and would love to get down to the osteopenia level through natural means   If we can beat this, or reduce our scores it has to be a good thing

​kind regards Carrie 

I just looked up hyaloronic acid and I guess it is used for osteoarthritis as it may help with joint lubricaton. Isn't it also one of the ingredients in modern skin creams for the aged to help plump up the wrinkles?  Doesn't sound like it has any direct effect on osteoporosis as such. At least webmd didn't indicate that.  MSM is used for many different disorders, including inflammatory ones, and osteoporosis but webmd says there isn't any published literature as yet about it.  Sounds like a safe sort of experiment to make, taking MSM, just like we are taking our Vitamin K2 despite the doctors' ignorance about it, for example.  May look into it myself if it's available here.

Carrie and Anhaga, I just wrote a big post and the page disappeared. Ugh.

I'll try again. 

Im taking MSM to help heal my stomache from taking Prednisone for over 1 1/2 years. It gave me silent acid reflux that I didn't know about.

im starting with 1/2 tsp MSM daily for about 5 weeks. I sometimes forget to drink it. I got high quality flakes. No taste, dissolves pretty well. I'll increase it now. My reflux symtoms have really decreased. Only feel slight symptoms when I eat things off my diet. 

I'm also reading a book about how our brain and body are so connected. So that may be helping me too. Meditation, etc. I think if we are putting natural, healthy things in our body and doing other healthy things with intention of making us better then that is positive and instead of the body fighting then perhaps it will heal itself as it was intended. 

Intersting thing I read was...pain and the brain, we feel pain, it tells the brain, then the brain tells you your in pain, and so on... So after I feel the pain I say, ok...there's pain, now I don't need to feel that anymore so I feel a release. Kind of fun.  

I believe that we can "learn" to be ill.  In the same way you are showing we can "learn" to be well.  Now if I could just figure out why my back hurts, and whether my spine is crumbling or not....

Thank you so so much Pam for your answer. I am sorry that you have so much pain .I am 66 going on 67 - not going on 17 as in the musical and I had always thin bones but diagnosed with OP just 10 y ago. I took just ca/mg/vit d and recently vit  K2.

I am thinking seriously that Myacalcin helped you to reverse OP . I do not know why they don,t use it anymore . At least I did not see anyone having this treatment nowadays .But I do remember one of my old relatives took the same medication many years ago.How did you see that calcium helps with pain ? What are you taking at bedtime ? An antiinflamatory pill ? I will send you a PM asking you for the name of your calcium /magnezium /zinc/ pill .The brand  name will not go through this page because of the advertise bla bla . Thank you again for taking time to answer.

Take care .

Hello Carrie ,

MSM I saw in many supplements along with glucosamine condroitin.I do know poeple who are doing extremly well on this supplement .But  I  also  there is a giudline that sais if in 3 month one will not notice improvement it means that it is not working for that person .Everybody is different .

I will try and write the name of one supplement that is used in usa but I did see it in eu also some years ago. So the name is osteo bi flex .Try to search for this 3 words and read about .Now I am curious if it will go ..Bye now .M

Carrie , sorry I must be hungry ,I eat some letters and some words ,I am in hurry and making mistakes ,Sorry. It looks my message   went through .So the one I sent you is FYI ,I am sure you can find another one ,but the one I  mentioned to  you seems to have to best ratio of the ingredients .Bye.M

 

Hi Layne,

​Oh double ugh on the post disappearing   Hate it when that happens.  I try to remember to copy and paste before I click on the reply button, then if it doesn't want to go thru, I paste what I just wrote lol

​I had heard of the MSM supplement, but didn't know one could take flakes.  Do you think it helps your OP too or OA/joints?  I take a half teaspoon of manuka honey to aid my acid reflux/indigestion I used to get.  Seems to help

​I totally agree that our minds and bodies are intertwined.  Meditation and relaxation is supposed to help a lot, especially in fighting stress levels.  I need to do mine more, time runs away with me at the moment.  Do you have a particular mantra to help 'deal with the pain'?  Does it work??! lol  I have read several books on subjects similar, but do need to take them on board more.  There is a lot in positive thinking I know, it is just sometimes easier to do than at others when things seem particularly hard. 

​kind regards Carrie 

Hi Jean,

​You may be right, I can't remember, if it isn't that, then it is certainly something similar, I must check out my skin cream! lol  I am hoping that the natural gelatin capsule I am taking will do an equally good job of lubricating the joints.  Shame it doesn't have a beneficial aspect on OP from what you've read, at least as far as the published literature goes.  Think, like you, I will still look into it.  As you say, the Dr's didn't tell us about K2, so maybe this could help too, just no-one published results yet.

​Let me know how you get on

​Take care! kind regards Carrie

Hi Mariana,

​Ahh...msm with glucosomine, it is coming back to me I might have seen something....though for some reason my brain reckons I saw a separate supplement containing msm.  Must have a look thru my bits.

​I haven't had a message thru from you - just messaged you asking lol  Or did you mean the above post?  I will check out those 3 words!!  Thank you   Plus have you any info on myacalcin?  Would be gratefully received if you could message me   Thank you

Take care

​kind regards Carrie

It's for joint health and is usualy part of a joint complex supplement.  And yes, I have seen it in the face creams.  

Hi all,

great idea about the cut and paste Carrie wii use that next time ! 

Laynne .. Posts not getting through does get tiresome but noticed non capital letters and spacing seems to help. I agree about your pain findings, yesterday I woke up with so many aches and pains but went for a walk with my hubby managed 10 miles then came home and helped him paint our garden fence ( upper body work out??) I forgot all about my aches and pains but did worry that I'd feel it this morning ..as luck would have it I feel better than I've felt in a long while 

 

As I've said many, many times -' the Power of the Mind ' - works for me too!

A good walk in the fresh air beats any amount of pills. We're so fortunate to be able to walk pain free - despite our osteoporosis. 10 miles that's more than just a stroll -fantastic.

Take care and remain positive.

Thanks for your encouragement Mary ???? it's amazing how a bit of sunshine helps our motivation it's so easy to get bogged down when everything aches but keeping active and good diet ( not to forget the occasional sin??) takes our mind of things 

wishing you all a positive attitude for healthy bones

Hi Patty,

- I just got fed up trying to remember what I typed else!! lol

?Yes I think Mariana mentioned not using capitals, so I am trying to remember

?Fab you feel better than you have for a long time after the painting   I think as long as we are sensible

?Do take care, kind regards Carrie

Hi Mary, Patty, et al,

?The power of the mind most definately helps....some days easier than others.  I'm looking forward to some fresh sea air myself this weekend, off to Cornwall lol  Won't be able to do a huge amount of walking due to my M.E./Fibro as well, but will certainly be more relaxed hopefully and that in itself may help me do a bit more   Positive thinking eh!!!

?Have a great weekend everyone!

?kind regards Carrie

Hi Patty,

Now that is quite a good walk, another 3 miles and you'd have been claiming a half-marathon. The best we manage is about 5 miles because Pauline's knee complains more and more, the further we go. It's good that you are getting the exercise, it really is a big yes, yes but without the vits, particularly d, K2, calcium & zinc as well as magnesium, boron and various others, it won't work very well on it's own. I can't remember if you've read the book or visited the site where the 20 recommended nutrients are listed but if you want a link, let me know and I'll message you.

Regards

Colin.

Wow, Handbrake, 10 miles!  Heck I'm trying to get back to almost 2 miles. My right hip and front left quad bugging me. I'm so excited for you!

 

Someone asked if I had a mantra, I don't, but as I was reading these posts I remember I sometimes (and now I think I'll make it a mantra) say in my mind "release" and I consciously make my muscles relax and my mind and low and behold, my pain goes. Live in the present moment. Ahhhhhh....

Last night here was beautiful. I don't care for high humidity but last night was dry, a cool breeze, sunny yet clouds. So y'all are right, all "problems" go away... love Mother Nature! 

Hi Layne,

?I think it was me who asked about the mantra! lol  'Release' sounds good....I use 'let it go' lol  I constantly have to watch my shoulders don't tense up - years of asthma and bad breathing from childhood! So round shouldered - but am trying to improve myself as best I can

?Yes, living in the present moment!!!!! lol

Mother Nature - awe inspiring

?kind regards Carrie