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I have only been diagnosed with chronic spontaneous urticaria and delayed pressure urticaria recently. It started this February, with every day since I have been so poorly. The usual head to toe with huge chronic hives, swelling of the face, lips, eyes, so numerous hospital visits. I have bowel problems which they think is linked and been told I have not got degeneration of the spine. In the last few months I have really become depressed as I'm in constant pain in all my joints which the consultant has told me is the pressure on my bones. My hair is falling out maybe due to the medication, I constantly feel sick, extreme fatigue, and anxiety. I have changed my whole life where I keep out of the sunlight, try to keep cool, wear loose clothing etc and had to give my job up.Before, I worked full time for a charity, loved being outside, wore what ever I liked, and enjoyed life. My partner says he understands but is constantly on my back to get back to work. When I exhausted he says I'm lazy, and when I say I don't want to go in the heat he gets bored of frustrated as it restrictes me going certain places. When I have trouble walking through pain he tells me to hurry up and walks way in front of me, which puts pressure on me to hurry. This just makes me more anxious which makes my hives go crazy. He seems to think this is going to get better and everything will be back to normal. He came to the consultant with me and he explained this can be disabiling and how it affect me but he thinks it's all attention seeking. What do I do? I know there is no cure and my illness still isn't under control. I have two children, buying a new house at the moment and we are due to get married very soon. I can't promise to get better quick as I hear people with this condition have it for years. Please anyone who has been through this or has any advice, I would very much appreciate it. I can't speak to my surgery as they have said we have never had a patient with this illness so we know nothing about it. I don't have anyone to share just how this illness is wrecking my life.
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