Posted , 3 users are following.
Hi all on Friday I was informed I might have to add a new medication to the already load I've got. 3 options and 2 of them are pen injections and the third is Infliximab other two I can't remember sorry.
What am asking is what have other people's experiences been with these if on them.
Thank you.
0 likes, 10 replies
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susan260867 derek29031976
Posted
Hi
May be humoral that's a pen injection. Gets delivered to pharmacy and must be kept in fridge. OK if your consultant is on the ball. You will need to go to hospital to prove you can inject to get a loading dose first. This confirms you have no reactions and then you sort this yourself at home.
Infliximab requires a hospital appointment usually once every eight weeks and time usually takes 2-3 hours depending on how busy they are on the ward. I had both neither worked for me but hopefully they will for you. Good luck and best wishes.
Sue
derek29031976 susan260867
Posted
Darasdad1 derek29031976
Posted
Hi Derek - I had infusions of Influximab as the last roll of the dice. Apparently it works (to some extent) for 7 out of 10. My UC worsened quickly thereafter and I had surgery. The side-effects can be quite nasty. Sorry my experience isn't a more positive one. Good Luck.
derek29031976 Darasdad1
Posted
Hi Darasdad,
Thank you for your info and really sorry it didn't work for you and you had to have surgery. Do you mind me asking what side effects you encountered??
Darasdad1 derek29031976
Posted
Hi Derek - I didn't have time to e pertinence side-effects as my condition worsened and the treatment was abandoned after 4 days. There are a heightened risk of Cancer with Infliximab. You can check out the information on-line. I'm actually pleased with the results of surgery especially as I am drug free. I had two serious flares and was prescribed with courses of Prednisolone starting at 40mg along with Immunosuppresants, enemas and suppositories of various sorts. With UC and the drugs U felt absolutely dreadful. Now I feel fine but I do have a Stoma.
derek29031976 Darasdad1
Posted
Hi Darasdad, thanks for replying again. I was diagnosed with uc in middle of 2014 and by end of Jan 2016 I was in hospital with a bad flare up as no drugs worked. Same year I flared up again in July and went on for 6 months after trying everything you mentioned above, again ended up in hospital. Since July last year am on my 3rd flare up but the first two was controlled with suppositories. This one so far nothing has touched it and am on my second week of 40mg pred. Am also on azathioprine 200mg a day and been on that over a year. Got to contact the consultant next week to let them know what's going on and then it might be up the steroids or be admitted again.
Bet it feels good being med free, at the minute am taking 17 tablets plus a sachet just in the morning and getting really fed up with it all.
Darasdad1 derek29031976
Posted
Sounds familiar to me Derek. I was diagnosed in 2012 and struggled with UC while the drugs were continually ramped up. I pray Infliximab works for you. If it doesn't surgery is not the end of the world as many others on here will testify. Fingers crossed, good luck.
derek29031976 Darasdad1
Posted
Hope you don't mind me messaging again just reading what you had to go through seems very similar to what I am going through now. Who's decision was it to go through with surgery yours or your consultants?? And how long was you was it before you could return to work??
Darasdad1 derek29031976
Posted
Hi Derek - I was introduced to a Surgeon so he could explain what would happen in the event the medication didn't work. I felt I as being steered that way and the Consultant dictated a letter in front of me to my GP. Basically, this became an irrelevance because I was so ill and once the Infliximab failedI was left with no choice. Afterwards I was told there was a danger the UC could have become toxic. I have images from the flexi sig the day before my operation and even now they make me cringe they're so awful. I'm in the fortunate position of having retired early so work is not an issue. Physically I could work.
derek29031976 Darasdad1
Posted