People suffering with Mirt WD
Posted , 3 users are following.
people who are having a hard time going down off the mirt, please think about this advise. I had heard and read to many very bad medical things that have happened to people who a) have a hard time in decline from mirt b) suffer when going to lower levels of mirt and have symptoms of nausea or any unrelated symptoms of the orignal reason you went on mirt.
if you have any pain or symptoms during the decline off mirt please consider staying on the mirt.
im saying this because to many people are doing a full WD only to be hit with odd physical problems. Auto immune diseases and many aliments that baffle the doctors. Stay put on the lowest dose. Some people do not have any trouble going off mirt. This post is not for you! . We don't know how many people are affected by mirt WD because the pharm company does not take numbers. That's why I wanted a facebook page ( not available for site to friends ) because we could finally put some numbers together as to how many people actually have mirt WD. It's been rough because it's not so easy to find everyone on facebook. Any ideas are welcome. Let's get some numbers together and maybe together we can fight this nasty drug. Although it does well for some and maybe most? For others it's devastating our lives.
0 likes, 19 replies
norma72045 London_ridge
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In my case it's IBS so the lower I get down the more pain I'm in and like you say GPs haven't got a clue.
anyway how do we get on this facebook thingy you've got.? Do you remember Emanuel doing one but he's now disappeared.
anyway it's great to have you back I miss our little chats,and on the plus side your one of the great success stories of WD from Mirt.
London_ridge norma72045
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Near with typos on my phone.
How are you???
I hope you are doing well much love to you ! I'm so gla I r still hanging with the group
❤️💚💜💙💛
London_ridge
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david28533 London_ridge
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London_ridge david28533
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i have had my fair share of bad times but nothing compares to the every day agony of mirt WD.in a physical sense Right at the end, or what I thought was the end. I developed more anxiety and kidney stones. I didn't know why. Soon I was at the emergancy and they treated and released me. The next day I was back with unbreakable pain, they did blood tests and found my calcium levels were to high, like very high and so they admitted me and put me on medication to lower it. It's called hyperparathyroid and it's very rare. No doctors want to hear about mirt, they found that insane im sure you have gotten a raised eye brow or two talking about mirt WD right. So I just shut up and let me treat me for my new illness. The mirt WD broke my threshold for what my body could manage and down it went. A month later surgery to removed the para gland, one of four. Then into recovery which honest im not all that recovered. I am back to three hours of work and it's lite work with caring for my grandkids. I lost a job I loved and I have a stack of medical bills. Im stuck functioning on a low level and it's rough but im alive !!! Maybe a good reason all this happened but can't come up with one so. I'll wait and see. I have met beautiful people here on the forum. AMericans don't use as much remeron as they do in the UK, from what I understand. I guess that's why we are here and they aren't on an American site. Paxil seems to be the drug people have such a hard time with here and yet I went off paxil cold turkey and it was bad, it took six weeks but compared to mirt it was like a smoke bomb compared to nuke warfare. To me I never sought medicinal attention for paxil WD. Nor did I have any future problems with it. Mirt...now that's a whole big elephant, one bite at a time I guess. Feel better soon ❤️
david28533 London_ridge
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London_ridge david28533
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david28533 London_ridge
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norma72045 david28533
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Im glad you found Rose now there's a lady that you'll find helpful.
Ive just come back from my GPs asking him for help WD from Mirt was like trying to win the lottery,he hasn't got a clue.
Still Im going to take the plunge and start WD down to 7.5 slowly I'll soon see what happens. You just stay with it you've got to far to go back.
Take care Love to you and your wife.
david28533 norma72045
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norma72045 david28533
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im thinking now as I write this at 1-00 in the morning (another night up) whether to go back to 15 mg to see if the pain eases.my somack feels like it's got a bulldozer in there.
You talking about bowel habits yesterday,I was thinking and yes I go more as I've been WD,plus the more I go the worse the pain becomes,I go after every meal.
Maybe your stronger than me but I'm not even down to 7.5yet and the pain is getting me down ,and yes it does drain your strength. Take care.
Tomorrow I'm going to look into what Rose has put on for us to google.
david28533 norma72045
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norma72045 david28533
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But I've very politely ask for there help in WD.so I'll see what I get back,if I don't get a good enough reply,then like you they will have a piece of my mind. (The Mirt mind the temper WD side)
As for my hubby he's picking up a bit now,but I don't know if I already told you from the biopsy he got Septseimia and the GP said he's lucky to be alive and it can take up to two months to get out of his system.
So neither of us are much good at the moment,and thank you for remembering him considering what your going through.
You take care and I'll let you know if Merck get back to me.
London_ridge
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❤️💛❤️💛💚💙💚💙💛💙💚💙💙💚💙💚💛💚
norma72045 London_ridge
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i did speak to I think her name was Fluffymare ,I think,you see I talk to two people with similar names and I keep sending them each other's posts it's got to be a bit of a laugh.lol. Anyway she popped up a few weeks ago.
But David I spoke with I think about last August, and the resonn I picked him up was because he suffers IBS and you don't here of many people on Mirt withIBS. But he then went quiet for a while,but he's returned since he went cold turkey off 7.5. and he seems to be going through hell.
But I'm finding the lower I come down the worse the pain is so Im stuck at 12.5because I couldn't take any more pain.
im due to see my GP at 12-00 so we'll see what he suggest I don't hold out much hope.
Ohhhh it's great to have you back,even if you are the other side of the world. You were a great inspiration to me. Keep in touch Rose I think you could be a counsellor on here.lol. Love You 💜❤️💙
norma72045 London_ridge
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