Perimenopause or Anxiety or ???

Hi Brenda, I can't drink caffeine near as much either, or even have a glass of wine, bc of how it affects me. So I understand!

I don't know Mercy. I've been dealing with it for almost a year, just want to feel normal again. The more research I do the more I believe that perimeno can bring up old illness in our bodies that were dormant. For me it's probably EBV or Lyme or both. I can't imagine just perimeno could make me this sick.

It's been a little over a year for me. I agree, in my case my brain and body have always been overly sensitive to hormonal changes (bad PMS and hormonal migraines) so it's not surprising that peri is wreaking havock on me. Hormones also have a major effect on the immune system, so that could explain old illnesses that are notoriously difficult to eradicate coming back. Interestingly, I had a mild case of shingles on my leg a couple of years ago. Hmm

Same with me regarding hormones Jen.

And I had mono bad when I was 17, was even hospitalized. Evidently that virus stays in our bodies and resurfaces under major stress like hormone upheaval. All those herpes viruses. For me, I had Lyme in the 90s as well. Double doomed. Hard to know when all the symptoms we experience are the same for peri, Lyme, EBV, anxiety..

Haven't been on for awhile. Wanted to see how you are doing. I thought I was doing well got off all hormones cuz they seemed to make things worse than better. Not sure where to go anymore. Hope

You are having some success on answers

Hi MIchelle, I've been waiting to see a specialist in NYC in August. She advised me to get off all hormones. Didn't seem to make much of a difference anyway, except I'm not sleeping so started taking half a klonopin to help. I had some better weeks but having an awful one currently. Think it's the EBV that's cycling every so many weeks. When it's this bad I just feel like I'm going to die. It's just awful. Had a very normal period right on time this month, just wish it would go away. I can't believe my life has gone to this, being unwell every day.

NYC I would think have some good doctors. I went off all my meds also. I don't even take my vitamins hardly. My sleep is off also. My moods are a bit better without anything. I'm still in a very frustrated mood cuz a few in my family treat me like a child and I absolutely dislike it. I hate they act like nothing should be wrong but oh well I'm doing me and gonna give support where it's appreciated. I was having a real good few weeks and now my sinuses slash allergies that have never been like this are acting up that I feel like complete poooo. Looking for new doctor cuz mine sent me to lab about a month ago and the girls in the lab made jokes about being a frequent flier I should get points. I'm a pretty easy going person but when it comes to the crap I've been through this past year and a half I don't need anymore snide remarks. Hoping to take a little vacation at end of month. I need it and so does my husband. I feel like stress makes my symptoms worse. I also take klonopin as needed. Been a little more useful lately. Of course as you know anxiety feeds at night. I'll be praying you get answers. Sorry I been out of pocket last 2 months. Been trying to keep myself busy off phone 😂😂

I understand, I haven't been writing much either. I just think peri brings up old EBV and causes all this stuff, including your sinuses. So frustrating to me that I had so many doctors and so many tests and nobody even mentioned checking for EBV except the psychiatrist! Not sure if this doc in NY can help, but she's a specialist with EBV (says she's an allergist, infectious disease, internist MD, so think my bases are covered) and deals with Lyme. Will let you know what happens.

Please do let me know. I have never heard of this EBV. I better look into it. I understand your frustration all these specialists and tests that I've had I'm thankful for and thankful I don't have a serious condition but I know my body isn't right since this damn hysterectomy and doctors are to blind to anything else but hot flashes

Ask to get tested for it. Get the 4 titers (IgG and IgM) tested. About 95% of the population have it, it's just a matter of if it reactivates and this can happen during hormonal upheaval or times of stress. Some believe that it's the cause of all perimeno symptoms, even hot flashes. It's viral, so not much we can do about it but support our immune systems with food and herbs. And hope it goes dormant again. It can go on to cause chronic fatigue, fibromyalgia, cancers, it's really stupid.

This really is interesting. I had mono right before my hysterectomy and I asked my doctors if I should hold off having it for a bit. They said no and that I would be fine. My spleen was not enlarged just my monoglycerides or how ever you spell it was up. I'll have to ask about it. Doctor will probably look at me crazy but heck they think I am already 😂

Not a coincidence! Did you have mono as a teen? If so, then you had reactivated EBV before your hysto. Seriously, this can create complete havoc in the body. We all blame hormones for these whacky symptoms, and truly they probably are the cause since it leaves our immune systems vulnerable. It really makes sense to me now.

And BTW, out of the umpteen doctors I saw the only one who didn't think I was crazy or depressed was the psychiatrist and she was also the one who said she thought it could be EBV!!

Never had mono in my life that I was aware of. But was real sick the month before my hysterectomy and my sister who's had mono 2 times severely as a teen said she had similar symptoms. So I called and got checked. So yes it's something that I often worried about since because they never tested to see if my monoglycerides went down

Girl now you know your not crazy cuz the psychologist says so. Although all of us on this forum know we aren't crazy. Probably this forum has kept me from going crazy. Missed chatting with you.

If all three IgG's are positive but a negative IgM, then you have active infection. Everyone who ever had mono will show antibodies, but it's the active part that's important. Good chance you had mono as a teen and didn't know it and it just reactivated before your hysto maybe because you were so stressed out about having the surgery?

I know I'm not crazy but when all the doctors start alluding to that it makes you wonder. I only went to the psychiatrist to prove my primary doctor wrong. After I had the EBV test he was like 'oh, you have mono'. No apologies for accusing this of all being in my head. Such an ass. He also said a specialist won't be able to help me. I paid a ton of money for this concierge doctor, what a waste of money. It also cost me my gall bladder which probably didn't need to go.

I'm so sorry. My primary told me the same thing! That I should see a psychiatrist! And that they wouldn't do any further tests until I did that. Unbelievable. They are so imcompentent in their knowledge of the human body and when they don't know what to do, they try to pin it on your and your mental health, vs their lack of knowledge. The medical system needs a huge overhaul, putting women through all this garbage. I'm very sorry you had to lose your gall bladder over it. They tried to take mine out more than once, saying it wasn't functioning, but I started taking artichoke, which helps incrase the flow of bile, went back 2 mos later and it was functioning just fine. You may need to take lipase or other supplement to help you digest fat better bc without the storage tank of bile the gallbladder provides, bile is dumped into the small intestine, on a regular basis, versus when the body senses you've eaten a fatty item, then releases it, and may cause some irritation. Or so I've read. Some have diarrhea bc of it after having their gall bladder removed, others have no symptoms, but you need a way to help you digest fats.

My doctor also outlright lied to my face. Saw them on Friday, had a good pow-wow talk about everything, they brought the psychiatrist up (I had brought my significant other with me who confirmed that I am not crazy), I was told to follow up with them after seeing an endrocrinologist they are referring me to, then by the end of the day, I had a dismissal letter on their online portal system. I called the office manager, who said they had run every test that they felt medically necessary and I should find care somewhere else. And theirs is the only clinic in the small town I live in, for miles. Really?

Omg, are you freaking kidding me? Unreal!

It's worth it to drive far for a better place, but you can't really request your old records since they are marked up with the old doctor's stupid opinion. The psychiatrist I went to was wonderful. She said she has so many patients who are referred to her as having anxiety and unexplained health issues and it turns out to be real health issues, like EBV. She said if you have anxiety it would've showed up when you're younger. I explained to her about googling my symptoms all the time and she said she didn't blame me because I was just trying to find out what was wrong. I'm really glad I went to see her. My doctor had first referred me to a psychologist friend of his, and he just sat there blabbing and just made me feel worse. Telling me how to yoga breathe. I was like, I know how to do that, and it makes no difference and it hurts to breathe. I guess I could go on and on about stupid docs I saw. The cardiologist who told me to have mindfulness before even listening to my f'ing heart. The endocrinologist who said I'm not in perimeno. On and on and on. I'm so p****d today.

Wow wow wow. I've got to go meet a client but will respond when I get back. I wondered if I told them I would go see the psychiatrist just to prove them wrong, if they would change their stance and let me see them.  I asked if I could just see a different doctor, manager said, 'No, it's clinic wide,' you need to go somewhere else. So I'm feeling very p••••d today too.

Now to get my doctor to check this. Do i just say I want an EBV test.??? And than to face the lab people again who

Think that I need frequent flyer miles.

No these doctors don't care about what a person feels and how they make people feel. Mine walks in and says what's wrong now. But switching doctors would

Only cost me a ton again cuz they would want all the tests again. Mine also said you need depression meds what I need is some calm my nerves s**t cuz I'm so damn frustrated knowing I feel out of my own body.

I hope for your sake that they endroconolgist works. I have a friend who has an awesome doctor but she sent her to endro and she said that's all she goes to now and loves her endro. She has thyroid issues and menopausal issues. Pretty crappy of the doctors office though. They should be looked into but now adays no one truly cares of the bull crap we get from doctors. That's why insurance costs a fortune

This is awful. But what I would do is ensure you pick the psychologist because like Suzanne going to who they recommended can be just the same crap. I don't blame either for being so dang upset. This is ridiculous for y'all.

Michelle, thanks for all the encouraging words. It is so helpful to hear someone listen, understand and validate everything. I mentioned to Suzanne I think earlier I was going to listen to a webinar about all the misinformation and issues surrounding the thyroid. It was really good. doctor wife team. I ordered the program, it was very reasonable and am sooo excited to try it. Google 316 Jump Start.

Yes, but make sure they do all 4 parts. Three IgG and one IgM. Not sure what lab you use, Labcorp does the correct test, Quest does not.

If all IgG are positive and IgM is negative then you have active EBV.

You have a good reason to want the test, screw what they think!! I just always think karma will get them one day. I used to be judgemental about my mother taking pain meds, probably being punished!

Definitely will look into it. We have to support each other cuz not many around us understand what is happening with us. So when we find people that understand it takes some pressure off of us. Please let me know how an endro does for you. I have mentioned it to my doctor and she doesn't understand why I even asked. Said they couldn't help me. Well she hasn't helped either so not sure what the big deal would be

Dang we have quest here but I'm fixing to tell her what I want. I'm with you screw what they want. I'm the patient. No girl I don't think you being judged. Just one of the fortunate to not just have hot flashes😂😂😂😂. And you get to meeet awesome peoples like me and Julie. 👍👍👍👍

Just remember you need all four parts, not three.

I will. I screen shot so I know what I need

I would push it anyway. I think it's unreasonable and time-consuming have to have referrals from a primary doc anyway. It only complicates the process, extends wait time and it's only so the primary doc can get a another appt in and make more money. I'm still fighing one doc on a bill from a while ago who just called in a referral, then when I needed another one, said I had to come in and make an appt. Then after doing what they asked and doing another appt, they never made the referal and I had to make calls to push it through myself!

Why do we have to fight to get care? We should not have to do that ... it's hard enough just trying to function and do life - work, parenting, housework, laundry, shopping and all the other responsibilities, without that added to it.

I've also been having a terrible time with my ex at the same time, who is trying to turn my child against me, lying and trying to cause me all sorts of problems. I think he is planning to take our child out of the state, but he's supposed to ask for permission first, and he hasn't. When I've asked what they are doing, both are evasive, so I've been dealing with all of that, too, and now, having even more added stress going to the high-ups to get help with these doctors who are just trying to get rid of me becuase they don't want to run any more tests, and they haven't even ran that many, nor basic ones like liver function! When I asked for a basic mineral test, they didn't even know how to do it. I just do the best I can and trust the Lord every single day to get me through.

Yesterday, i was feeling pretty good, even got some exerices in, then, as soon as I layed down, started feeling strange again with the breathing, sick feeling, and flushing through my body. I was like, Really? Really? I finally got to sleep but had to get up what seemed like 8 times to pee...

Sorry about your ex Julie. You certainly don't need all that on top of what you're going thru.

And wow, do I know those symptoms too well. I can only explain it to be an adrenaline rush through my body, and it starts with the burning and painful leg, then my shoulders ache, then feel weird in my stomach and head, then get the sick flu feeling. It's just awful. Sometimes I only get up once to the bathroom, other nights it's non stop. This week was really bad with the flu feeling, feels like I'm dying.

Hoping the doc I'm going to see in NY will run mineral, virus, vitamin, metal tests. I'm going to ask her. I just can't believe that not one specialist I saw ever requested any of these tests. Not even the naturopath. Ughhhhh

Oh Julie sorry to hear all the added stress. Exs can be so selfish and using kids and turning them against the other parent sucks. My husband had that problem with his ex and his kids are horrible to him. What you need to remember is that st the end of the day you did what you needed to for the child.

Yes this health care we get is a joke!!!! The up to be 8 times is your anxiety that this crap we dealing with causes. I get the same way!!! My big issue lately besides the anxiety is that if I sit any amount of time I get up I'm so stiff I can barely move. And hurts something awful. My husband asked me tonight when I got up whatnthe heck is wrong with you. Why you moving so slow.

It's horrible. He sees it happening and they still won't believe when I go to doctor to tell them. I tried to exercise cuz I was doing well losing weight , eating right before this hysterectomy and I could barely get out of chair for days.

I so hope this doctor in NY helps you Suzanne. I tell my husband all the time that I have to ask for testing so I shouldn't have to pay these doctors bills cuz they don't know what's happening.

Thanks Suzanne ... when you get the sick flu feeling, is it like for a day or week or momentarily? Mine is momentarily, just lasts for a few seconds, but it can repeat, and when it happens, even though it's brief, it is scary and feelis like I'm going to lose consciousness or die! I don't like it. Do you ever find it hard to try to explain all these weird sensations? I sure do. Had another doctor send a 'dismissal letter' (a gyn) becuase they don't know what to do, obviously don't want to keep their medical oath to help patients and tell you to go somewhere else. Seriously considering going to the media over this form of unethical malpractice and refusal to even attempt to treat a patient.

On a good note...I believe I had a major breakthrough on the issues with ex by way of someone who said they would be willing to testify to help us. I was so very encouraged by that. 

Do you live near NYC or is it a long way for you to travel? Hopefully not. When my doc said 'You should just go to the Mayo Clinic,' (when they can run many of these basic tests themselves) How am I supposed to do that -- drive to another state, take days off work, whose going to take care of my child?

That's a great point Michelle! Why should we pay them if they are not delivering results, and we have to fight tooth and nail for every test? What if we took our car to a mechanic, or hired a contractor to remodel a room, and they did neither, should we have to pay them? And this is our health and livelihood! Seriously, we need to stand up to these people who act like they are God and have the same authority and question these things, even if it comes to a heated verbal exchange, or raising our voices a bit, It could help thousands, maybe millions of patients/women in our shoes in the long run.

I'm going to tell a doctor that from last year who made me make an appt just to make a referral when they previously did it over the phone, then charged me $80, but they never made the referral. 

Julie where do you live because this is awful for your doctor to do the things they have done. My doctor thinks I'm crazy also but she still runs tests to get my money.

I've pretty much chalked up all this to anxiety issues. But I don't want to take another pill that just makes me feel crappy. I never had an issue with medicines and now they have opposite effects on me and make me feel horrible. Steroids make me so tired it's all I can do to stay awake.

I have seen an ad on Facebook about chiropractors that have helped people with hypertension and anxiety and other things. I'm seriously thinking about looking into that because I've wasted enough money on doctors at least this would

Try to do something

Thanks Michelle. I am sorry to hear that about your husband's kids, that's so sad. My child is starting to become defiant, disrespectful, and I'm concerned. And only since his father has started doing these things to poison his mind and misrepresent what's really going on. My child even repeated verbiage from our court order that he shouldn't even know, and that shouldn't even be discussed with him, he's a child. And repeating things his father has told him that aren't even true. Not even remotely. But what do I do? The same thing? Say, no, daddy is lying, I did send a letter, here's a copy? No, because then I'm doing the same thing, showing him things he doesn't neeed to see or know about, only the adults. So I am at a loss for what to do to help him, and put a stop to it. When he visits his father and I call, he says Hi, then Bye. And I am a good mom!

Like I was telling Suzanne, I believe I had a breakthrough recently with a third party who was willing to testify that he was making false allegations just to cause me grief, and using our child to do it. So I may have to go through another court battle but if I have to, I do, and I will get through it, with the grace of God. Just like through this. One Day At A Time.

Maybe circulation on the pain? Do you walk ever? Or put your legs out in front of you and stretch? I know my hips and hamstrings can get so tight and sore and I just have to get down on the floor and stretch them sometimes.

I felt that way yesterday big time with the added stress. My legs and limbs just felt very heavy and weird. I knew if I could get my circulation going it would help. Epsom salts in your bath and a little lavender essential oil can really help, too! Also that magnesium spray that you spray on your skin so it gets right into your bloodstreem faster. Great for muscles and helping you relax. Doctor Axe has a good one.

Oh man, for days? Where are you at with the hormones? Are you still taking?

I'm in the Midwest I know, I don't get it. Did I tell you that they said the doctor won't run any more tests unless you get cleared for psychiatric?Seriously???

Chiropractic care may be able to help! I am actually already seeing one again, just recently, and have another appt tmrw. This one has a massage person in her clinic and recommends getting a massage right before the adjustment to relax your body make it work better. I was seeing one just for getting out of place here and there, but I thought, maybe it would help if I saw one on a regular basis a couple times a week. Chiropractic adjusts all the muslces/nerves so you get proper nerve supply to organs etc. for proper systemic function.

I was inspired to do this based on Doctor Bergman's videos online. Oh my gosh you have to watch google him. He has one on nearly every health subject! He has cured people of all kinds of stuff, that were just a mess with their health. I would go to him in a heart beat but I think he's in Calif. long ways from me.

We all have some level of anxiety. But  do you have something major  going on that would cause these magnitude of health issues? I wouldn't accept that label if a docor is trying to slap it on you, unless you have peace about it in your heart, body and soul. 

Chiropractors can be alot cheaper, too!! Go to a really holistic one. Some want to take all kinds of xrays then put you on a weekly plan forever to make money to where it's like you have a car payment bill each month. If you have insurance, most will pay for part of it, too.

My doctor told me to go to Mayo too. I made the appt but found my insurance wouldn't cover it. And to go to Minnesota isn't the most convenient!!

I'm in PA for the summer so NY is about an hour and a half away.

The flu feelings cycle. Usually are worse for about 5 days straight, come and go, and I feel like dying. It's the worse. I've read that EBV cycles every 6 weeks, so maybe it's that. Will see how I do for the next 4 weeks now. Today was better, not great, but not awful. I had a hard time sleeping last night though because I was itchy all over. The adrenaline rushes and burning foot are getting better now too, maybe it was all the progesterone?

Happy to hear things are looking up with regards to the ex.

Hang in there!!

You are doing the right thing with your son. My ex used to tell our oldest that he couldn't come to his events because I wouldn't pick him up and that I left him with no vehicle. I finally had to have a little come to Jesus meeting with my son. He was 7 and I had to use circumstances like why his aunt didn't have the same car because his dad was drinking and driving and lost his license and how it was not my responsibility to take care of him. My children was my concern.

He was a little upset but I had to tell the truth cuz I couldn't keep being the blame when his dad never paid support and never paid for his activities. He just wanted to be the good guy

I need to check out this magnesium spray. And yes I love my essential oils. Just started using and have liked what I've tried so far. The scent is a bit strong for me but I can deal if it helps.

I'm using my estrogen cream once a week and that's only to help ease the hormone headaches. I feel that I'm not as crabby without them now. I only changed this because I was reading where hormone creams stay in system longer than a pill and I could be more or less overdosing my body. I see my gyno in 2 weeks so we will see cuz I'm making her run a full lab test on al hormones

No I'm not at peace with my anxiety diagnosis. Yes I might have some but never had these symptoms. I hate it was ever put in my charts because doctors and specialist see that and that's there answer also. I have to find the chiropractor that had the ad on face book. It's about 30

Minutes from me but if it helps I'm all about it.

Did I tell you about the chiropractor Doctor Bergman and his videos online about all kinds of health issues and the way the body works and how he is completely turning things around for people? He is so brilliant. Check him out.

I am tired from rearranging most of my home yesterday to create more room, but very excited today, because I got a period again! Hadn't had one for four months, and it was only two days, then had another one two weeks later like it. Previous to that was four months apart, too. 

My gut and body wisdom has been telling me all along that it does not seem right to take hormones every single day. Because that's not the way our bodies utilize them. So I used the estrogen every day twice day and progesterone only on days 12-26. I had no idea where I was in my cycle because I hadn't had a period, so I started on July 1 as Day one. 

So this tells me by cycle is coming back into balance. I am having more better days, other than some strange sensations in the back of my throat that are a little scary. Another one of those hard to describe weirdo symptoms. Idk if it's like GERD or acid reflux something now? Sometimes it feels like a very slight burning. I been using a little baking soda in water. Every since I had doubled the progesterone about 2 mos ago, I started getting a strange taste in my mouth and making a lot of saliva. Maybe it is the body's way of getting rid of excess hormones because it was too much? Who knows? I have also read alot of saliva is the body's way of preparing for a lot of acid coming up. Also didn't sleep as well most of last week, but the shaking sensation has been less.

But I am so happy to have period back. I don't care if I have one until I'm 80, if it keeps me feeling normal, ha. I hope you are feeling well today!

Thanks for sharing this Michelle. I thought and thought about it and decided, based on your confirmation, that I can't let me son go around thinking that I'm lying and moved away from his father without informing him. I have the original letter, plus the certified letters I sent that were rejected by his father, and I think I had better have a sit-down and just say that that is not true, I did notify his father, even got legal advice on how to properly do it, etc. I know he has been telling our son lies for some time now, based on my son's change in behavior towards me, but I wasn't sure what, so hearing that was the last straw for me. I am a nice person, good to his father but all he keeps doing is lying, misrepresenting anything he can and other bad things, while I'm just trying to be a good honest person, raise my son right, work and do life. And while dealing with these healht challenges. It's not fair.

I pray all works out for you and your son. I never wanted my children to feel like it was there fault I left there dad or never wanted to talk bad about him because I wanted them to create there own feelings about him. But like yours mine was always blaming me as too why he didn't show at school stuff and ball games. I realized I had to put my foot down and give real proof to my son because I worked hard to raise them and give them what they needed while he never gave me a dime to me for them. And the added stress is not good for your health. If ya need anything let me know.

Yes, more stress and no, not good! I feel powerless to change it most of the time, other than pure reliance on the Lord. My son missed the important family reunion, which was awful that he couldn't meet his little cousins, etc. (and I offered to give his dad a day he wanted in exchange for that). And after that, his dad has been putting him up to callig me multiple times asking why he can't now go do an activity with his dad on the day I offered to trade, trying to make me the bad guy again. There is no working with this man. He is highly manipulative and is putting our kiddo smack in the middle which is not right. I tried to tell our son he couldn't go because his daddy never answered my offer to trade that day, so he could go to his family reunion, which was clearly more important, and which got missed. But he keeps calling and asking anyway. I've had to just keep telling him I offered to trade days so he could go, but his daddy never answered, and that I'm sorry, I love you, and hang up.

Got ton of blood tests at endo today, and slowly wading into this 316 Jumpstart program. 

When you say you had to put your foot down and give real proof to your son, do you have any suggestions on that I can do? Show him the emails to his father? Or something like that?

GIrl it's so hard because you want your kids to be kids but at some point you have to do what you feel is right for your situation. Pray about it. God is listening. With my son I probably should have prayed but I was over the edge because it was my fault I didn't pick his dad up to come to his tournament. That did it for me. I asked him why his aunt had new car he said cuz she wanted one I said no cuz your dad was drunk and wrecked her car. Than explained what consequences of drunk driving all meant. I felt a lot of weight off my shoulders. I told my son that people make bad choices and lie but that he needed to know the truth cuz it wasn't my responsibility to pick his father up. I'm also thankful that I wasn't going through all this medical crap when I went through this stuff with my child's dad. Bless your heart cuz being a single mom hard enough without add crap.

Everyone keeps telling me that an endro is who I should see also but my doctor says there's nothing they can do???

Hello Michelle

After seeing about three more doctors and just more contradictory advice, another ER visit, and hearing "it's anxiety, it's anxiety, are you sure this isn't related to anxiety?" and each time, they asked me that before they even examined me! So I think they looked at my records and drew that conclusion before even walking in, which I don't like. 

After hearing this over and over and my labs coming back normal each time, maybe they are right. To me, anxiety is a certain set of symptoms, whereas mine are broad and systemic it seems like something else. But I am so tired of fighting and arguing. It's either anxiety or menopause/peri causing it. I wasn't happy when the last doctor looked at me and said, 'You're anxiety is causing your symptoms,' -- putting words in my mouth. But maybe they're right.....this has been such a long and frustrating journey. I googled anxiety and panic disorder (even though in each instance of these symptoms I am NOT panicked or panicky, they just happen even when there's no stressor), and saw a long list of symptoms, many of which I have. Others are just unexplainable. Anyone out there feeling the same? How are you?

That's exactly why I went to a psychiatrist, to confirm that anxiety was causing all the crazy symptoms.  After being told all the time that you are perfectly healthy when you know you're not, it's so frustrating. I think I was labeled as well. The psychiatrist, a woman fanning herself from a hot flash, confirmed that I do NOT have anxiety nor depression. She's the one who said to get checked for EBV, that perimeno can cause these viruses to reactivate. Smart woman. I went to a specialist in NYC last week, now on an antiviral. Hoping I'll start feeling better soon. 

Hello Julie

Sorry but I looked a few times and didn't show anyone had been chatting. Now it shows 4 days ago. Gotta love technology.  I understand where you are coming from but I know your frustrated and ready to throw the towel in but yes I have anxiety and some days and weeks are better than the next but I'm not totally ruling it as that for I didn't have any of this prior to this hysterectomy.  I'm having good days good weeks and than bam it's back to square one. 

Now I can barely get around.  There sending me to an orthopedic doctor. My legs and back get so stiff it's crazy.  Watching what I eat can't lose weight want to start working out and have no energy.  

I think I have learned to deal with this crap so much that I just keep hoping for the best.

I hope things are better for u also with your son.  Been thinking about ya hoping life was getting easier.  I see orthopedic on Friday interested to see what he says 

Talk soon. 

I'm so glad that you may finally be getting somewhere.  I have a few good days and than 2 weeks of off and on.   Trying to keep plugging through it.  If my muscles would not hurt so bad I may feel like doing more.   

Keep in touch girl.  Hope this is the right direction for ya