Perimenopause or Anxiety or ???
Posted , 253 users are following.
Hi everyone,
I recently joined this, my first ever forum, in the hope of gaining knowledge and sharing experiences on the strange symptoms I have been experiencing the last few weeks.
My first post focused on Anxiety and the possibility of Chronic Fatigue Syndrome. It has recently been brought to my attention, there is a possibility my symptoms could be hormone related. Something I never actually considered.
Brief list of symptoms...
Fatigue (groggy and heavy type tiredness)
Brain Fog
Feeling detached and 'spaced out'
Weak and Shaky
Jelly Legs
Weak Fingers and Toes
Sensitive to light and sound
Sometimes feels like I have flu or a bad virus (even though I know I don't)
Light Headed
Light Dizziness
Easily tired out
Occasional Palpitations
Frequent urination (occasionally)
Anxious (more so than usual)
Brief History...
I have had anxiety issues, on and off, for many years and also hormone induced migraines. This year the migraines are definitely worse and so too is the anxiety. I had an 8 day brutal migraine early/mid September, followed by 8 days of severe brain fog/dull fuzzy head. I haven't been the same since. I'm also wondering if my symptoms are migraine related? I've had 2 full blood tests done and 2 urine samples taken. All came back normal/clear and healthy. I've also been to see an ENT consultant who ruled out an inner ear virus. He also checked my throat and balance. I had a full eye examination last week and my eyes are in great shape. I have an MRI booked next week and also an appointment to get an ECG recorder fitted for 48 hours.
My symptoms are so broad and general, it could be a number of things... I have even considered CFS. Now I'm thinking it could be hormone related? I feel more anxious not knowing what this is!
Is anybody experiencing anything similar?
Any replies/advice would be greatly appreciated x
27 likes, 1424 replies
Curlylox
Posted
My symptoms started at 38 in 2005. I started having anxiety, sound sensitivity, feeling faint, stomach problems (probably caused by the anxiety) and lots of the other symptoms you all are describing here along with some very negative thoughts and I tried to ignore it all for a year until a full blown depression set in. It was horrendous.
I finally plucked up the courage to go to the doctor and they prescribed 10mg ad's and I took these for around 6 months along with some private CBT. At the time I never thought it could be hormone related and never progressed that option, even though my mum and her sisters all started peri-menopause in their late 30's early 40's.
After 18 months, I had mild symptoms return and had another 6 month course. Since then until November 2013 I've been free and clear of symptoms.
However last year they came back and hit me like a train, much worse than the first time. I was devastated as I thought it was just regular depression and that I had beaten it. I went back to the doctor and she prescribed 10mg ad's again, and this time I had a pretty rough reaction to them, and spent 10 days not eating, feeling nauseous, I lost over a stone in weight and didn't sleep hardly at all. In fact it was so bad, I pretty much moved to the sofa, with the tv as my sanity box. During this time, I also was prescribed diazepam, which frankly made thinks even worse, I took around 3 pills over the course of the 10 days then threw the box away!
So that was November. Since then I decided that this maybe was being caused by peri-menopause after all. I let the ad's settle in and in January went back to the quack to ask about whether HRT would level out my hormones to see if that was what was causing the drastic changes - in fairness she did suggest this would probably alleviate my menopausal symptoms but not necessarily my (assumed) hormonal imbalance. The doctor initially wanted to prescribe more ad's but I was insistent and started taking prempak-C (conjugated estrogens and norgesterel). In the first month I had a 3 week period however they did seem to be taking the edge off the symptoms and things were chugging along quite nicely with me feeling like things were improving.
However about 14 days ago I started getting the negative thoughts going on in my head again, which in turn leads to anxiety and subsequently the very mild depression (I describe mild depression as a feeling of not being inside yourself, but outside looking in, not being able to be enthusiastic about life in general). My biggest fear through all of this is that my symptoms will get so bad, that I will do something to harm myself, even though that is my biggest fear - does that make sense!
I get so bad that I can't travel for work, as I can't bear to be alone in a hotel room. I'm a very positive person in general so this is scary. I'm looking forward to spending my retirement travelling the world with my husband, I have two great kids who are grown up and finding their own way in the world, I have a relatively close knit family and really love my job and we don't have any financial worries. I just don't understand what might make me want to feel this way, I'm convinced it's not environmental.
Anyway getting back on point, Thursday and Friday last week were awful. Although things aren't as bad as November, I'm getting anxious again, sleep is being interrupted and anxiety is mildly debilitating in that occasionally I am agitated. From this I can determine that the HRT isn't really working as I would have hoped, but I do still feel that my symptoms are due to peri-menopause and that my monthly cycle is causing some kind of problem with my moods. I've had some spotting and mild cramps so I know my period isn't far away, and prior to taking the HRT, this was exactly the time I would start with these symptoms.
I'm going back to the doctor this week, to increase my ad's to 15mg as I think this will help in the short term. But to also discuss what are my other options for trying to level out my hormones. Does anyone think coming off the HRT and just trying the pill might work?
I've never had any blood tests, most of this is just complete guesswork.
I'm positive about the future - when I haven't got the negative thoughts (which you know if you get them, are impossible to control and difficult to ignore) but I do talk to myself and say "you know this won't last, when it stops life is lovely and I'm happy and I'm looking forward to an exciting future - just keep swimming!" - this is my mantra!
I don't drink alcohol or smoke. I don't drink caffeine either. I'm a couple of stones overweight but fit. I walk everyday and cycle often. Getting outdoors does lift my mood a little but exercise in itself does not improve things.
If anyone can offer any advice on any other things I can try to help with my symptoms, I would be most appreciative.
I should finally say, my husband, daughter (who still lives at home and is nearly 18) and other family members are fabulous and so incredibly supportive I don't know where I would be without them.
Just keep swimming.
sandra63
Posted
jayneejay
Posted
weight loss also with me, especially in early peri.. Sharon, I take a Jarrows Vit B12 tablet occasionally, do you have a Vit B12 injection ? also Iron, with you saying this is a problem, I have mentioned this on other heading s on here, about a month ago when I was rock bottom low with anxiety and feeling dread etc and no energy, I took it upon myself to try iron tabs, ( my bloods were okayish last time they were taken) the FSH the hormone one which tells you if your menopausal or not said I was menopausal ... hahaha
anyway I take half an iron tab daily on waking ... empty stomach, Vit C helps absorption, anyway since taking I have feel amazing, energy up, and no stopping me, which is good as I moved house a couple of weeks ago and needed all the energy I can get, I live in Spain, the iron tabs are105mg i halve mine with pill splitter so take 52.5mg daily, and what a difference it has made for me personally, not saying it will help everyone but for me wow... are you on meds for vitB12 deficiency and aneamia ? as you should be supplementing this.. Jay x
Curlylox
Posted
I also felt that way about the ad's and made my husband sit with me when I took the very first one in case I did something stupid, I was petrified they would make me feel/behave differently which of course they didn't.
I will keep trying different things and posting my progress, but it's lovely to have other people who understand exactly what is going on to talk to. My family are fab, but ultimately if you've never suffered with this, it's difficult for them to relate to.
Jo xx
Campervanqueen
Posted
I do have B12 injections, every 3 months and have been taking iron supplements. Today is a bad day... Feeling very low indeed, almost empty. It's a strange feeling. The smallest thing will send me into either a crying frenzy or a mood swing... Grrr!!! have made an appointment for the doctors to try and push all this again but can't get in until mid April... By then I will probably have had 2 more periods!
I think I may try looking at my foods. I do have certain intolerances anyway so could be that something is playing on that too maybe... It's hard being a woman! I feel sorry for my other half and my three teenage boys!!! Grouch alert! Will this get better? I think, looking back, I've been suffering from the fogginess and random joint pain/nausea feelings for around 18 months now but all of a sudden it's kicked in big time. I really don't know where to place myself. Thank goodness for being able to read other peoples perceptions of things and how you all are dealing with it xx
Myrika83
Posted
jayneejay
Posted
maybe you just have severe PMS .. if your periods are normal then its likely not to be peri... peri is when they are irregular and reduce from every month to every other etc until they stop ... once stopped for a period of one year they say full menopause is reached...
maybe is some of the meds you have been put on affecting you etc...
regards Jay xx
Curlylox
Posted
during any stage:
headaches/migraines
anxiety symptoms, such as; random pain around your chest area, bobbling sensation around your solar plexus - this is adrenalin, all over prickly heat (mine starts from top of my head and travels all the way down to my feet in around 2 seconds)
sore or achy joints
negative feelings <-- in my opinion this is the worst of them all and anti depressants can help with this
depression - often this is caused by not addressing the anxiety
feeling low
feeling detached from yourself - the best way i can describe this is if you've ever been in shock or a significant amount of pain such as childbirth - you are experiencing things but you don't really feel "there"!
nausea
loss of appetite
night sweats
hot flashes
feelings of apprehension
agitation
anger
irritability
mood swings
crying for no apparent reason
vaginal dryness
low libido
tinnitus
dizziness
itchy skin
hair loss
sleeping problems
bad memory
weight gain
hearing sensitivity
incontinence
light headedness
changes in body odour
increase in facial hair
painful sensation under the skin (skin feels sore to touch in patches)
burning tongue
breath odour
gum bleeding
osteoporosis
tingling in extremities
changes in fingernails
muscle tension
irregular heartbeat
bloating
gastrointestinal distress
unable to concentrate
scared to be on your own
melasma (skin pigmentation problems)
my periods stayed as regular as clockwork on a 31 day cycle until december last year, and like you, the week preceding my period and the first 2 days are the worst time for me.
so far, i don't know if hrt or ad's are helpful for me, however just knowing that there are things you could possibly try to help yourself regardless of whether you get any help from your doctor is good to know, and finding other ladies who are also experiencing a bad reaction to their peri is very comforting.
hope things improve for you.
jo xx in="" my="" opinion="" this="" is="" the="" worst="" of="" them="" all="" and="" anti="" depressants="" can="" help="" with="" this="" depression="" -="" often="" this="" is="" caused="" by="" not="" addressing="" the="" anxiety="" feeling="" low="" feeling="" detached="" from="" yourself="" -="" the="" best="" way="" i="" can="" describe="" this="" is="" if="" you've="" ever="" been="" in="" shock="" or="" a="" significant="" amount="" of="" pain="" such="" as="" childbirth="" -="" you="" are="" experiencing="" things="" but="" you="" don't="" really="" feel="" "there"!="" nausea="" loss="" of="" appetite="" night="" sweats="" hot="" flashes="" feelings="" of="" apprehension="" agitation="" anger="" irritability="" mood="" swings="" crying="" for="" no="" apparent="" reason="" vaginal="" dryness="" low="" libido="" tinnitus="" dizziness="" itchy="" skin="" hair="" loss="" sleeping="" problems="" bad="" memory="" weight="" gain="" hearing="" sensitivity="" incontinence="" light="" headedness="" changes="" in="" body="" odour="" increase="" in="" facial="" hair="" painful="" sensation="" under="" the="" skin="" (skin="" feels="" sore="" to="" touch="" in="" patches)="" burning="" tongue="" breath="" odour="" gum="" bleeding="" osteoporosis="" tingling="" in="" extremities="" changes="" in="" fingernails="" muscle="" tension="" irregular="" heartbeat="" bloating="" gastrointestinal="" distress="" unable="" to="" concentrate="" scared="" to="" be="" on="" your="" own="" melasma="" (skin="" pigmentation="" problems)="" my="" periods="" stayed="" as="" regular="" as="" clockwork="" on="" a="" 31="" day="" cycle="" until="" december="" last="" year,="" and="" like="" you,="" the="" week="" preceding="" my="" period="" and="" the="" first="" 2="" days="" are="" the="" worst="" time="" for="" me.="" so="" far,="" i="" don't="" know="" if="" hrt="" or="" ad's="" are="" helpful="" for="" me,="" however="" just="" knowing="" that="" there="" are="" things="" you="" could="" possibly="" try="" to="" help="" yourself="" regardless="" of="" whether="" you="" get="" any="" help="" from="" your="" doctor="" is="" good="" to="" know,="" and="" finding="" other="" ladies="" who="" are="" also="" experiencing="" a="" bad="" reaction="" to="" their="" peri="" is="" very="" comforting.="" hope="" things="" improve="" for="" you.="" jo="">-- in my opinion this is the worst of them all and anti depressants can help with this
depression - often this is caused by not addressing the anxiety
feeling low
feeling detached from yourself - the best way i can describe this is if you've ever been in shock or a significant amount of pain such as childbirth - you are experiencing things but you don't really feel "there"!
nausea
loss of appetite
night sweats
hot flashes
feelings of apprehension
agitation
anger
irritability
mood swings
crying for no apparent reason
vaginal dryness
low libido
tinnitus
dizziness
itchy skin
hair loss
sleeping problems
bad memory
weight gain
hearing sensitivity
incontinence
light headedness
changes in body odour
increase in facial hair
painful sensation under the skin (skin feels sore to touch in patches)
burning tongue
breath odour
gum bleeding
osteoporosis
tingling in extremities
changes in fingernails
muscle tension
irregular heartbeat
bloating
gastrointestinal distress
unable to concentrate
scared to be on your own
melasma (skin pigmentation problems)
my periods stayed as regular as clockwork on a 31 day cycle until december last year, and like you, the week preceding my period and the first 2 days are the worst time for me.
so far, i don't know if hrt or ad's are helpful for me, however just knowing that there are things you could possibly try to help yourself regardless of whether you get any help from your doctor is good to know, and finding other ladies who are also experiencing a bad reaction to their peri is very comforting.
hope things improve for you.
jo xx>
kim27003
Posted
Curlylox, you just described my symptoms. As heartbreaking as it is to know other women are suffering in
the same way. It is also very comforting. Bitter sweet.
I have felt so isolated in how I was feeling. I have always been in control, strong, the one everyone leaned
on. The last year I have secretly been falling apart. Afraid I was going to either die or, go totally mad.
Thank you, ladies. You have given me a sense of hope.
Curlylox
Posted
You don't have to do anything in secret any more. Please speak up if you are feeling rubbish, we've all been there and some still are. Sharing through this vile experience really helps.
Jo xx
dawn87621
Posted
Sandy07
Posted
sandra63
Posted
Curlylox
Posted
I was researching if the hormonal phases of your cycle could have some impact on the symptoms. I found this article which is very enlightening. Looking back over the last 4 months it seems my problems seem intimately tied up with the Luteal Phase which is confusing as these would suggest I have PMS. Although as no one really understands either PMS or peri menopause, so long as you are still ovulating in peri, then these PMS studies may help you to understand what is happening to your body.
There are some useful food advice tips in the article as well.
http://www.lef.org/protocols/female_reproductive/premenstrual_syndrome_02.htm?source=search&key=pms
kim27003
Posted
I can relate to the feeling of not recognizing myself. It has been so challenging for me to put on the front of "I'm fine" in front of everyone. Only to fall apart when alone. The nights use to be the hardest for me. That iswhen the anxiety seems to kick into overdrive. However, it is now a constant in my life. Day and night.
Over the last week or so, I have started having a swooshing sound in my ears. Driving me crazy! Sometimes I feel like it keeps time with my heartbeat. Anyone else experience this?