Perineum Clob
Posted , 8 users are following.
Hi ladies I have been trying to deal with LS now for nearly a year. A lot less than some of you I appreciate and don't want to sound impatient but I take one step forward and 3 backwards that's for sure but I am trying to stay positive.
I have some active LS in my perineum area and it is really hard to get this under control. Initially I did apply Clob there for a few weeks but stopped when I noticed the area was thinning out. Lately it has become very sore and tight and the red lesion is just not healing. I went to Gyno today and she said to resume using the steriod in that area - not directly on the crack but around it? She said not to be afraid of the thinning but I am nervous. I have no labia minora left but it has settled up the sides it's now just in the perinium. I wake up in the morning and it feels good but after I have been on my feet for a couple of hours I am sore and irratated. Does anyone else have a similar experience or can reassure me to keep applying the steroid as told today? Something else contributing to my nervousness was that first Gyno did biopsy and said it wasn't LS , (had already used steroid for few weeks), 2 Gynos since are certain on presentation it is and I have had it for years. I don't get an itch. I really feel for everyone with this awful problem and am very grateful for this site for support and advice.
1 like, 14 replies
norma54754 Jess1612
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I think most of the medical profession give out standard advice because they don't know how else to deal with it.
Even the steroids prescribed are not specificately for LS as there isn't one!
We are each different and don't neccessarily respond to the same treatment.
We can keep trying to find what's best for oneself by looking at what works for others and considering different a approach.
I think reducing inflammation and histamine release may not cure but helps to calm symptoms.
I put a few suggestions in a reply tp Wigster although they are only my humble opinions.
Jess1612 norma54754
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alison54950 Jess1612
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Jess1612 alison54950
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janniey Jess1612
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alison54950 janniey
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lynne1945 Jess1612
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One thing I often wonder when reading these posts is how you ladies know if your skin is thinning? I peer into a mirror daily applying my cream and moisturiser and except for the lesion I can't tell about thinning. Maybe it's my eyesight !
I wish you well Jess in your search for relief from this bloody awful problem, as I wish for all of us. I too am grateful for support here as I know not a soul with this condition and never heard of it before a year ago.
Jess1612 lynne1945
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karen41728 Jess1612
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caroline16811 Jess1612
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Like you I have no Labia minors left and has tearing of the perineum all the time no sooner had it healed but id have another nick again. Drove me crazy and was so depressing. But since I started reading this forum I did 3 things I want doing before. I patted with water after every wee then dried then applied moisturiser. And applied steroid rubbing in for 90 seconds after 2 weeks or so it was string enough that as I apply that or moisturizer I just apply gentle pressure and stretch the perineum. It is now more normal and died not tear like it did. I know we are all different but this had definitely not thinned the the skin for me quite the opposite, it had strengthened it. I hope it clears it for you too. it's a horrible, worrying depressing condition. I also check with mirror daily. I'd I had done this before I probably would not have been so dense and lost my labia. Just thought it "felt" a little bit on down there till saw the consultant and he said about the fusing. I was clueless ! I could kick myself !!!!. Let us know how you get on Jess.
Jess1612 caroline16811
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caroline16811 Jess1612
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Did your Dr day why you had to use the dreams in that order ?
lynne1945 Jess1612
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But anyway, hope you had a biopsy for certainty!
All the best
Lynne
Jess1612 lynne1945
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