Peripheral Arterial Disease

Posted , 10 users are following.

I have had neuropathy in both feet for nearly two years, This was discovered by a podiatrist but I was not advised to see a doctor as it was not something that can usually be cured but I would only be sent to a pain clinic. As I have always had a phobia of doctors for various reasons, I decided to accept the condition. Recently however, I found that the neuropathy was spreading up my legs and to my hands causing a tingling sensation in my fingers, which being a musician I found worrying. Obviously it was time to overcome my reluctance to consult my GP! - the doctor told me I had a condition called Peripheral Arterial Disease and would certainly need investigating without delay. I am now being sent for blood tests. It would be interesting to know of anyone experiencing a similar condition and if so what kind of treatments I could expect to receive.

1 like, 12 replies

12 Replies

  • Posted

    Hi Anthony....just read your post and I think I may have something similar going on. Can you tell me how this first started for you and how the numbness and tingling feels please? I have got to make an appointment to see my doctor for further investigation. Thanks!
    • Posted

      Hi coolbreeze,I've been treated by my g.p for arthritis for three years,it started with burning soles of my feet,it progressed to calf pain after walking a short distance, then small cuts that wouldn't heal on my toes very sore nails and freezing numb feet,I can only sleep in bed if I dangle my leg over the side.I did some research and realised I needed to see a vascular specialist,within tweo weeks I had seen one and had duplex and Doppler scan which revealed a blocked femoral artery in groin and few in other parts of leg.My asdvise don't leave it go with your gut instinct you know your body better than anyone ,good luck I'm waiting to see what they are deciding to do with me,will keep you posted.

    • Posted

      I know this discussion is long past, but would like to know if you have advice. My dad went through the exact same thing, 6 weeks ago he underwent surgery to unblock arteries on his right leg, an incision at the groin, 12 staples and the surgeon said it was a success. Only thing is, 5 weeks post surgery, his foot on the leg that was unblocked is in complete agony, looks infected but doc says it isnt. Even elevated or at rest, the foot will either go roasting hot and only cold cream helps, not even a damp cloth helps, or it goes frozen cold but feels hot to touch. Hes in complete agony with this about 90% of the day and night. Back for follow up with surgeon in 5 weeks time. Just to see if anything similar happened with yourself?  Any info would be appreciated.
    • Posted

      Hi sheyenne,I have an appointment on Friday 12th to see the surgeon,hopefully he has decided what he's going to do,I've had a terrible Christmas because I can't walk,and continuous numb feet or burning feet,no let up at all.I'm sorry to hear about your dad I hope he doesn't suffer too long,I will let you know how it goes on Friday.

    • Posted

      Sorry forgot to ask ,did your dad have these symptums before his op ,burning and freezing feet.
    • Posted

      Hi, Thanks for getting back to me. Yes he had constant burning and numbness in his feet and calves for about a year. Struggled to walk more than a few yards. Just a bit disheartening as we thought after the op things would ease a bit, but after joining several discussions, its becoming more likely that the arteries have blocked again, or there is quite a bit of nerve damage.. We managed to get the surgeon to see him on Thursday 11th after 3 heated phone calls,  rather than wait another 5 weeks. Will let you know how the appointment goes.
    • Posted

      Hi,really hope you get some answers,I'm hoping I will be okay after my op,but reading between the lines,I havnt spoken to anyone who is,I was diagnosed with arthritis for two years,then a DVT ,then no it was a bakers cyst if I had been correctly diagnosed maybe it would all be fine,good luck to your dad

  • Posted

    Hello Anthony,

    I am pleased that this forum exist for the people who suffer from Buergers Disease. It's about time! I was diagnosed with this disease in 1998 at the young age of 31. I am now 48 and am truly blessed that I can still walk even though I have had half of my left foot and 3 toes on my right foot amputated. I have also had a Fem-Pop bypass behind the knee on my left leg in 1998 and in a rather radical bypass performed on my femoral artery in my left leg done with a corrigate plastic hose from my groin to the knee and from there about 5 inches down they grafted a cadaver's artery.

    Being I have suffered from this disease for a long time, I have researched for years on the cause of this illness and although smoking tobacco is believed to be the main cause, I have always had a different theory of which I believe has already been proved if you look closely at the facts.

    I do not believe that tobacco is the main culprit here at all. I'll explain why. although tobacco does constrict vessels in it's pure form and does not help at all, I find it very interesting that native americans had used tobacco in their culture for centuries without a verified case of cancer or Burger's Disease and tobacco only became DEADLY after it was mass produced at the beginning of the 20th century because they added more nicotine and chemicals to allow it to be more addictive for profit. Then Buerger's Disease was discovered in around 1924 after tobacco was industrialized for a few decades. When I was diagnosed with this disease, approxiamately 1 in 20,000 American tobacco users contracted the disease. Currently that has increased to 1 in 10,000 because more chemicals are allowed by the FDA to a certain limit. But..... it is interesting to note that in Asia where there is no FDA or enforcement by governments such as India, China and Viet Nam. Are you ready for this? In those countries Buerger's Disease is in epidemic proportions such as India where their disease rate is astronomical. Around 1 in 20 smokers have the disease. Why is that? A doctor once told me it was because they were inbred which is a load of crap! If that were the case then Arkansas, USA would be #1 in Buerger's Disease cases.

    I am going to share a revelation with you. When I first was diagnosed with this disease I was told I could never smoke or chew tobacco ever again. I had quit for 3 years but I did still enjoy the pleasure of smoking but I always thought in the back of my mind....what if medical professionals were wrong. What if it's something else. And being the curious person I am and fiercely independant, never liking to be told what to do I had to experiment. I did just that. I had an ulcer in my left foot for about a year before it finally healed. I had to undergo hyperbaric oxygen chamber treatments for about 3 hours a day for about 4 months. The doctor told me I could not have tobacco in any form ever. Not even Copenhagen. Well.....I know it was a risk but I dipped the entire time and still healed from my wounds.  I then told the doctor what I was doing and he was speechless. I admit it was foolish but I was told I was going to eventually die from this disease anyway and after so many agonizing years of pain, all I can say is it does change your outlook on life very much. So I experimented further. I tried various other brands of cigarettes to see how they affected me and I wanted to validate my theory. And every other brand of cigarette has ill effects immediately but the only brand I found to be the least harmful was Camel. I have been smoking for 10 years and as long as I take my blood thinners and keep moving, I find I can function as a relitively normal person. I certainly don't reccomend you try this at all but if you ever wonder how much deadly chemicals are in a typical cigarette such as Marlboro, try this someday and you will see what I mean. Take a black light in a dark room and look at a cigarette under the light and you will see that it glows with purple looking dark grains all over it. This is the crap that causes Buerger's Disease. I once was given a pack of Queens from Viet Nam and after just a few drags, my leg was so stiff and in pain I could hardly walk. What makes Asian cigarettes so different from ours?

    I feel for all of you suffering from this "Man Made" disease because I spent 3 solid years in constant pain in a wheelchair and have beern passed around like a hot potato from doc to doc. Either they don't know how to treat you or it scares the hell out of them. And certainly smoking does not help but I do not believe that tobacco is the main problem here but rather additives that the FDA allows to be doused on every cigarette! Why!!! Is it a damn conspiracy? And if it is so deadly then why not prohibit the substance? Money...Money...Money!!! It's a win win for the manufacturers, the government and quite possibly the medical establishments.

    Sincerly yours,

    OnionBuerger

    • Posted

      Oh dear..... Are you trying to convince yourself ? Because you certainly are not convincing anyone else dear! If you inhale crap you will be and feel crap.....why is that surprising ....oh and a drain on the NHS 
  • Posted

    Hi, Hope your doing well, Have you had any news or anyone else had any news on weather stents in groin work. I am considering surgery soon as I am fedup with not being able to walk very far due to pain in the calf area. Please if anyone can give any advice welcome. Janet.
    • Posted

      Hi Janet I have claudication numb burning feet can't walk more than five steps without stopping.I'm seeing the surgeon on Friday to see what my tests have shown up,I will post to let you know .

    • Posted

      Janet,

      I had this happen to me over 10 years ago when I was in my 30's (doctors are baffled by it). I was an athlete, I was in great shape, ran all the time, and then this happened.

       I've taken every kind of herb and supplement you can imagine, and they have gotten me nowhere. I did have stents put in, and they lasted about a month and failed. I did that numerous times and each time they ended up failing within a month. The doctors tried bypass surgery as well. It failed after a month. So after 18 procedures, I finally got tired of being cut on and I gave up.

      What HAS worked for me is pushing myself as hard as I can to walk as often as I can. It's not a cure, but it does make it better over time. If you can get a treadmill, and a good exercise bike, it will help you a lot. You will be able to work your leg for longer periods on a bike than on a treadmill, so that is probably actually the better of the two if you can only choose one. The more you work your leg, the more the secondary veins will try to take over. It's extremely painful, it's aggravating, it's depressing, etc etc etc. But the only way I've found to make it better is just to fight the pain and walk as much as I can and exercise the leg as much as I can. Also, one aspirin a day seems to help as well.

      In the beginning, about 10 ft was all I could do. But now, on my good days, I can make it half a mile before having to stop. So it WILL get better if you work your butt off at it. Unfortunately, it will take a long time, lots of hard work, and dealing with a lot of pain.

      There IS a chance that the stents will work for you. And if you go that route, I hope they do. But at best. the Dr's only expect them to last, at the very most, 10 years.

      Good luck to you in whatever you decide.

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