Peripheral neuropathic pain, sometimes unbearable

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Hello,

I suffer from increasing nerve pain, started from the big toes in both

feet, then during 5 years spread unto lower legs and even started

in the hands now. It is the "tight sock" feeling constantly plus

needle feeling and electric shocks sometimes.

Only Tramol plus Gaba gives some relief, but i maxed out on this

medications.

Can anybody recommend other drugs or supplements ?

Thank you, Chris

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  • Posted

    Hi chris

    I have recently developed tingling then burning in my hands and

    feet and I am having tests at the moment to try and find out the

    cause. I've tried various drugs, probably not trying them for long

    enough, but have been taking Mirtazapine at night for the last

    few weeks. I started on 15mg and now upped the dose to 30mg.

    I have to say that I haven't felt significantly better on the higher

    dose but I do get a good nights sleep. On the Mirtazapine forum

    there are many mixed opinions of this medication but of course

    everyone is different.

    I hope you find something to give you relief. Best wishes.

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    • Posted

      Hello Woodie,

      it's a consolation to hear i'm not alone with this problem.

      I also have troubles sleeping, i'm using anti histamine for that - works fine but

      timing is critical. If i take it in the late evening, the effect lasts

      too long and its hard to get up the next morning.

      Thanks for your idea, i will check it out.

      Report
  • Posted

    Hi Chris I'm so sorry for your pain, but I sure do understand. I'm also maxed out on gabapentin. I'm going to be trying to switch over to Lyrica very soon. I've also had lts of epidural steroid injections in different parts of my back to try and help with pain. Some have worked, some haven't. I've also been given a pamphlet about a spinal chord stimulator that is implanted gor pain relief. Are you a diabetic? What tests have you had done? Be hopeful Chris, I know it's hard!

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    • Posted

      Hello Mari,

      thamks for your answer - i tested negative for diabetes, i assume my

      former contact to pestcides may be the cause.

      I'm trying lyrica now, it seems to work in quite high dosage. Since this med is not covered by my insurance

      it's a costly enterprise.

      I dont know about spinal cord stimulation, i had a lumbar operation

      because i hoped it would solve the problem but it didnt.

      In your case i would first try electric stimulation on the skin along

      the nerve routes - i ordered an affordable machine from ebay and will try this

      out soon.

      Thanks again and let me know about your progress.

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    • Posted

      How is the lyrica working out for you? Any nasty side effects? I hope I can take it with no problems (I don't mesh well with most meds). I'm not a diabetic either, and the neuropathy is one of my biggest problems. It seems to be progressing so darn fast. Are you having any issues with dry eye or mouth? I recently had a lip biopsy to see if all of the crap is from Sjogren's.

      Do you ever have places on your body that randomly get really hot , or do you wake up at night with the neuropathy pain in your arms and hands? I know we have to stay hopeful. I'm guessing you got a Tens unit. Let me know how that works out!

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    • Posted

      Hi Marie

      I wondered if you get sudden hot sweats. These can come on

      for no apparent reason such as when I am sitting reading. 

      Last week when it was hot it was absolutely awful.

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    • Posted

      Hi. I don't get hot sweats like that very often. Sometimes at night I will wake up feeling like my core body temp is really hot and I will be really sweaty around my chest area. Once in awhile I will get a sensation of being overly hot but I won't be sweating a drop. Do you have a problem being out in the heat also?

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    • Posted

      Hi MariC

      As I said previously, last week when it was very hot, Staffordshire, 

      I really didn't know what to do with myself. Even my knees were

      sweating. This burning has only come on in the last six months since

      I retired. I'm waiting an appointment for a nerve ending test and

      have just done a 24hr urine test that the neurogolist requested.

      I carry on as I have always done putting on makeup in a morning

      but very often my face is glowing before I've even finished.

       

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    • Posted

      Gosh! I understand the glowing for sure. A shower (especially if hot) makes my face very flushed. I don't wear blush at all any more. Your nerve tests should start getting you some answers. I've had 4 over the last few years. A skin punch biopsy also helps in diagnosing a nerve disorder. I hope you get some answers and some relief.

      Ps: I understand hot, as I live in Texas! smile

      I'm here to chat anytime.

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    • Posted

      Thanks for your reply and comments Mari. Being new to this site

      I hadn't (naively) thought how widespread we all are!!

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    • Posted

      Sorry to jump in your conversation! But I too suffer from sudden heat flashes! Not menopause, been there done that wink I can be in a freezing grocery store, and all the sudden my face and head are dripping! Make-up has been out of the question sad No rhyme or reason, they happen when they want 24/7! I love in Florida, so it's always hot. Thankful for central air, and an understanding hubby!

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    • Posted

      Hi Mai,

      yes, the lyrica seems to work, i take it 3 times a day together with Tramol.

      Different from Gabapentin (which is much cheaper) it does not cause acid stomach. I also experience this thing is progressing over about 5 years. 

      In addition to Pregabalin / Tramadol I take Vit.B and C. 

      Also i'm trying Normast (italian meds containing Palmitoylethanolamid), which should calm down the MAST cells. This meds is also very expensive but I'm willing for any cost if this disease could be reduced.

      Stress is a good indicator which might be triggering it.

      I dont get dry mouth or the other symptoms you told.

      Thanks for your encouragement and hope there may be a way out of this, i let you know what helps me.

      Chris

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    • Posted

      Hi Liz,

      i got not a problem that you descibed, i live in a hot climate as well (Thailand) - the heat just gets to me sometimes and i feel totally powerless and tired by it. But i guess that's just the age.

      Sorry i got no good idea to help for your symptoms but i will keep this in mind, maybe i come across something.

      Chris

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    • Posted

      Haha thanks for the laugh. U have to laugh. Yes I sweat and drip water sometimes. Not sure menopause or neuropathy and if I sweat so bad why am I not thinner

      Thank you guys for helping and keeping a laugh going

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