Posted , 4 users are following.
I've struggled through the last 20 years; needing extra thyroxine just to be able to 'not be a zombie' (which meant permanently suppressed TSH). As a result I now have a number of rare autoimmune medical conditions, allergies and intolerances.
I post this as a warning to others: beware permanently suppressed TSH, more thyroxine is not the answer - there is something else wrong!! In my case it was not converting T4 to T3. If this sounds familiar, take action, get it investigated. Try NDT (natural desiccated thyroid) - it's the answer for some. Make an appointment with each doctor at the surgery until you find one who will listen. I take a one sided sheet of paper titled: 'briefing note for consultation with doctor xxx on ddmmyy' and starting with a section labelled 'objectives from consultation'. Followed by a section labelled 'supporting information'. Keep it succinct. At the beginning of the consultation say: 'as we have limited time would you mind reading this as it will help us get the best out of this consultation'. Take two copies, one for you, one for the doctor to keep. All the best.
2 likes, 28 replies