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I'm glad i found this helpful community!
Sorry for the long story!
I'm not sure if the migraine is the source of my problems or a symptom .
I only did one so far , but that's clearly when it all started.
I'm a 37 yo male btw, no serious health issue until this...
1 month ago I had a strong migraine with aura, without headache, my very first one in my whole life.
Very bright zig zag light shining in the middle of my field of view, lasted 30 min before disappearing trough the sides.
After the episode, my brain felt very tired, but I didn’t make too much of it and thought I just needed rest and went to bed.
The next day, i felt big discomfort to sound and light and i felt as if my vision had changed, (i have a small tendency to be cross eyed when i'm tired), and it has worsened ever since, especially because my eyes get tired so much quicker.
Worst of all that day i started to have difficulty thinking, finding my words, having slurred speech, this intense fatigue when i was trying to think. For 10 days, i thought it was a regular migraine postdrome, so i rested a lot , and ate healthier, stopped going out, stopped smoking, i thought it was a good opportunity to get healthier, like a good wake up call.
But it never went away, after 10 days i had a mental breakdown all of a sudden , because i had to face the fact of having to live like this or even worse slowly declining and disappearing into dementia.
The anxiety made everything worse of course...
It took me a few weeks to take control of the fear, so now i'm coping with the condition.
About distinctive symptoms :
Everything that requires brain processing is a challenge, even just adding numbers sometimes.
Regular conversation is so exhausting, I feel like I’m speaking a foreign language in my mother tongue.
I feel like i can only treat direct simple questions , and all "peripheral thinking" is blocked, i used to have ideas all the time floating and now it's just a black hole, as if i had a bucket over my head.
I also often feel disoriented, I have to actually “think” where I am or where I wanna go rather than “knowing it”, i go to places i know but i don't recognize them, or not straight away.
I have this constant feeling of a barrier between my brain and the world perception, as if it was floating in cotton and not directly linked to the world...a bit like a hangover sensation.
Only consolation, some days are better than others, and when this fog lifts a little, it's always in the evening. For the whole month i had 2 evenings with very good clarity, it felt so good that i cried when it happened, but it's equally horrible and disheartening to see it all disappear the following morning...
It's so powerful that i had to adapt my work around it, because some morning, i can't process more than yes/ no,left/ right, i'm super clumsy, do erratic stuff.
My life now consists of waiting for the next day to come and offer some relief ,although i'm not in constant fear, i'm deeply depressed by this condition....
Now I try to remain active and positive, but it’s hard.
Thank you for reading me and courage to all of you guys!
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