Persistent Throat/palate pain after mono

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Hi guys, my names Sarah and I got mono in mid april of 2019. It all started with the classic mono symptoms; fatigue, fever, swollen lymph nodes, extremely painful sore throat, tonsilitis, uvulitis, body aches, and extreme fatigue. My throat was so swollen that the doc gave me steroids to reduce the inflammation so I could breath better. After two weeks I began to feel better, but after that my sore throat continued past the normal 'acute phase' of mono. I was worried and went to an ENT where they scoped me and found I had an adenoid infection as well as a fungal infection in my throat. They perscribed me antibiotics and antifungals which I thought would finally end my pain and I could move on with my life. Unfortunately, I still continued to have pain in my throat and mouth after I finished the meds. I was so worried and disappointed and rushed back to ENT to try to figure out what was wrong. Essentially, the doc explained that sometimes EBV can damage the sensory nerves in the throat and cause lingering pain due to nerve damage in that region. Whether the nerves got damaged due to inflammation or the virus itself is not known. The specialists I have seen are hopeful that my nerves will heal and the pain will subside with time. However I just feel so hopeless when I am experiencing such intense pain everyday. I so desperately want my old life back. My pain feels like a burning and sometimes a sharp shooting pain in the uvula region, soft palate and the oropharynx. I was wondering if anyone has experienced anything similar? I sympathize with anyone going through this awful virus and I hope you all get better soon.

  • Sarah

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  • Posted

    So sorry to hear what you are going through Sarah. I can only empathise having went through mono many years ago how awful it was. I hope and pray that the terrible problems you are having with your throat with settle down very soon. I definitely want to reassure and encourage you that this virus does get better, after 4 months or so I was still feeling terrible with it but another few months down the line I really started to feel much better and see a breakthrough - this is the worst part you're going through right now Sarah. Thinking about you - hang in there.

    Going through a tough time with hip and sciatic pain myself right now and also feeling very down about it, just hoping and praying for God's help and healing for us all on the forum here.

    Take care Sarah and remember - you WILL get through this and get better again - I truly believe that.

    Craig

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    • Posted

      Thank you Craig!

      This virus really is such a living nightmare. Im so glad you are feeling better now from EBV! I hope your sciatic nerve issues heal soon as well! This virus affects people in so many different ways its crazy. I really sympathize with you and anyone else who has been through GF.

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    • Posted

      Thanks Sarah, I really appreciate your kind words as have had such a tough day. Most definitely this virus is awful to go through and affects so many people in so many different ways - but take it from me as someone who was in a similarly desperate position with it at the stage you are at Sarah - there is recovery and good health and full life again after mono - it really doesn't feel like it at the time I know, it's just unfortunate that it's often just an extended time factor with this thing but truly you will get there - hang in there Sarah, thinking about you.

      Craig

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    • Posted

      No problem Craig! We need more positive and nice people in the world like you!!

      Its so hard to hear "it'll just take time" all the time because I so desperately want it to go away now, but im trying to accept it and enjoy my life despite mono. Thank you for giving myself and so many others on this forum hope!!

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    • Posted

      Oh Sarah believe me I wish I was more positive in my own circumstances, it's easy to say but so much harder to do when going through it yourself I really do know that.

      I know it's hard when you hear 'it just takes time' and it really doesn't help when you're suffering and struggling in the moment and just desperately want a breakthrough. Sarah this period, this first 4 or 5 months, in my experience was BY FAR the worst, and the intensity did lessen after that, God willing you won't have to go through anything as tough as this again and you will see improvement and recovery, I remember how just getting through a single day when feeling so drained and unwell and distressed with this virus was just so hard. So it's just about one day at a time and not looking too far ahead - being kind to yourself, resting when you need to, and if you can do something you enjoy each day that doesn't involve a lot of stress, it can be something simple just like watching fav tv show or speaking to friend or whatever, these things can help keep the spirits up when it's so hard to.

      Thinking about you and hoping for a good day today.

      Craig

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