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Hi everyone. I have been suffering for 8 years now, and after multiple trips to the ER, having to go through the excruciating lancing and catheter insertions that always fall out, then a marsupialization, only to have the damn thing still come back every few months, I have been on physical, mental and emotional roller coaster.
I'm Canadian. Our healthcare system has it's pros and cons. But I have really lost confidence in the abilities of any of the OBs I have seen since each has handed my situation off to the next. I have not received a clear answer on the removal of the entire gland. I've read horror stories as well as 1 or 2 successful accounts of those who have gotten it done. There seems to be very little understanding of this condition where it pertains to multiple reoccurrences. My doctor told me to go back to the ER when I feel another one coming on (not to wait until it gets unbearable) and whoever is on call will perform the excision. Two days ago I went into emergency, waited 8 hours, gave them my story (again) only to be told they were going to lance it once again and there was no possibility of getting the surgery because it was "not an emergency". I refused. So now, two days later I am in excruciating pain, waiting for my doctor's clinic to open tomorrow, to go back to the clinic where I was originally told nothing could be done.
I'm caught in a loophole. The sitzing, the lancing, the marsupialization, everything seems to be a bandaid solution to a bigger problem. I have been told that the only time the surgery can be performed is during an episode. My doctor is NEVER THERE when it happens or I am travelling (which is usually the case). So what do I do?? I am frustrated and in so much pain. I can't find a doctor who cares to help me. I am willing to pay if necessary, to find someone abroad if that is what I need to do. If anyone has a good lead I am all ears. Thanks for listening!
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