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Why always is someone who wants to express their concerns about other people choices of seeking treatment or the chosen treatment? I am on social media and in a few similar forums and read quite a few comments from people who are probably far away from the reality of being sick or in pain.
Whatever country you live, you get bad and good services. Unfortunately, from the posts I have read including personal experience, women health is more bad experiences than good. If you are in any of the groups about women health then you know that 8 out of 10 posts is BAD experience. And in UK, NHS is the worse system for lots of women, including ME.
Before you share your concerns about other people sharing their treatment routes, or about other users/members using the sites “as a market for treatment” outside UK, think of my story and spare a thought for the ones not as lucky as you. The concerns are appreciated, but if you have ever been in pain, and you bleed 24/7, then you would not say a word. If you don’t have something positive to add or a real option, then refrain from commenting cause you may make a person who is at the edge of desperation, miss a real opportunity to get their health back.
When you get to wear a diaper and two huge night pads and still leak through, that’s not life. When you ruin everything your bum touches, from the chair in the office to the sofa or the car seat, IS NIGHTMARE. Sleeping with plastic covers so you will not ruin the bed, being in excruciating pain, missing on important family dates, going to work with at least 2 pair of extra trousers and 3-4 pants…. I could go on and on about MY LIFE with fibroids and endometriosis.
I am asking the ones that are very proud of NHS and sees other people suggestions as concern, what would you do, if in my shoes? What should I do, when a very “nice” NHS gynaecologist tells me after 3 years when I finally got an appointment to discuss treatment “ Go home, put up with the symptoms until your menopause in a few years” or even worse trying to make me feel guilty asking for surgery “ DO YOU know the financially stress on NHS in such a poor area cause of your unnecessary surgery”.
Yes, exactly what you hear, I was told 4 years ago. Well still bleeding like is no day tomorrow and still cant leave the bed due to pain. You will say probably then why don’t you go private? Well this is the beauty, I cant afford. Why? I am a cleaner on minimum wages, husband had a card accident and now is bed bounded, parents to look after and mortgage to pay.
The cost of private surgery that I was quoted is MY ANNUAL SALARY if I dont LIVE. And the worse is my daughter has fibroids as well. She was booked for hysteroscopy and ablation with the Lead Consultant of the department and guess what? They HAVE done nothing, only ablation because they could not see the fibroids… She was discharged with “100% successful ablation. SHE NEVER had an issue that required ablation and the fibroids are still there. Oh no follow up either about the next step. Her husband is in the army and he took special leave to look after the kids.
The way my life is now, I don’t give a f..k is my surgery is done in the jungle by a monkey dressed up as a doctor. I will travel to any country in this world, to get the treatment that I need and can afford without being at risk of losing my home. As long as is safe and done by a competent doctor and I can afford the fees, I don’t care about the rest.
And yes I am in process of traveling outside UK now with my daughter were we are going to be seen a doctor who knows his job. You don’t have to travel outside your country to find incompetent doctors, go to your nearest hospital and you will find them there.
Wishing you all ladies a fast journey to get the treatment you need.
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