Posted , 4 users are following.
Hi, My name is Dan and I live in Cleveland, Ohio (USA). After multiple wrong diagnosis' from doctors when I was 8 years old, I finally found a doctor at the Cleveland Clinic who confirmed I did in fact have Leg Calf Perthes. I have read many discussions and have heard several different types of operations for those with this condition.
To make a long story and timeline short, I had the surgery when I was 9. Was laid up in bed for about a year and to paint the picture...imagine laying on your back with your legs spread..both legs were in a cast individually from ankle to slightly below the waist, with a bar in the middle separating the 2 legs. I was told I had an extreme case of Perthes, as there were other complications involved. Walking was a 85% chance, running was less than that, playing sports or physical activity was below 50%.
To say the least, I grew up and worked my tail off to overcome all the obstacles thrown my way. I played football and basketball all through high school and continued on with football at a collegiate level.
Although, this post is not about my accomplishments, I just wanted to paint a picture that described what a pretty normal life I lead with this condition.
I'm 30 years old now, and over the past 6 months or so I have for the first time really remembered the pain I felt when I was a child...maybe worse. I'm curious to see if anyone can relate or has/currently is going through what I am now...
My hip continues to lock up to the point where I can't walk..at least once a day. The pain is at the top, center part of my hip joint as well as near the groin. It takes anywhere from 5 mins to sometimes 4-5 hours for it to pop and go back in place. I am afraid to go to the doctor bc I guess I'm sort of in denial and don't want to face the fact that another major surgery is on the near horizon.
Can anyone relate? Your feedback would be helpful and appreciated! Thanks for reading!
0 likes, 4 replies