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My son was 8 years old when he started walking with a limp. He was very athletic and his basketball team had just won the championship a month earlier, so I thought he may have pulled a muscle. A week later he was still limping so we took him to his pediatrician who referred him to Children's Hospital. Xrays confirmed he had Perthes. We were devastated. That night as my husband and I sat and watched our son sleep we cried and prayed that he would not have Perthes in both hips. Unfortunately, test results confirmed he had bilateral Perthes in both hips. Our son is now 40 years old. He underwent a hip replacement a year ago and will need to have another. He has suffered almost his entire life. There are days he can barely walk yet won't miss work in order to support his family. Since his hip replacement last year he still lives with pain that has become a way of life for him. This crippling disease will affect millions of children in our lifetime, yet there is absolutely NOTHING, in regards to research or studies being done on prevention or better treatment. Why is it that medical science seems to keep this devastating crippling disease from the public? This disease should not be treated as if it was medical science's "dirty little secret". Children with this debilitating disease suffer both physically and mentally. It strips a child of their God given talents, self esteem, goals and hopes and dreams for a bright future cease to exist.
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