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Petrified of optical migraines any advice

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debbi77688
debbi77688

Hello all,

I'm so sorry to bother you, and I'm also sorry if this is a topic already is talked about somewhere. I've been suffering from optical migraines for the past year. I never know when they will come, or what triggers them.? I have been keeping a diary, nothing found as of yet. It starts with a blind spot, quickly turns to a silver squiggly line that last for about 20 minutes, then followed by the migraine. I can get them one day, and then again the next day, then not for 2 weeks, then 1 a week, I never know when . I'm so scared of them they are ruining my life! I'm afraid to drive, or work that I'll get one . I have been to the eye Doctor she says my eyes are good , I've also been to the Neurologist she say migraines . I have insisted on an MRI which I do early November . Does anyone else get these, and if you do are you scared, and if not scared, how do cope through them? my head goes straight into panic, I think like tumor, or stroke, or my vision wont ever come back. It's making me so sad . i do get a big migraine after the visual, but I will deal with that part no problem, its the visual part that gets me. I hate these things! Thank you for reading, I hope you are all Well

0 likes, 2 replies

2 Replies

  • daryl29722
    daryl29722 debbi77688

    Posted

    Hi debbi, I read your comment with interest. Do you have elevated blood pressure that is just in the high range but not too high? Do your ears ring and is there a surreal feeling when you see the squiggly line? I was told the same thing (eye migraines) when I was having them, I was also having the blind spot (like reading words but couldn't see the whole word, like the middle was missing is the best way to describe it) I had these episodes for months and like yours, they came and went. Then in 2018 I had two subarachnoid haemorrhages. It's good you're getting an MRI soon as a SAH is a headache you'd never want to experience. Let me know how you went and what the outcome was. All the best to you.

    • debbi77688
      debbi77688 daryl29722

      Posted

      Thank you so much for all your kind words, I am so sorry you had to go through all that. i do not have high blood pressure thank goodness, but i do get that weird feeling during, and after for a day which freaks me out even more. i get them just as you said, words missing and then the light show. I'm deathly afraid of them like I'll pass out, or have a stroke, or I wont get my vision back. They are ruining my life! Thank you again

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