Peyronie's disease

Posted , 4 users are following.

I woke recently and noticed that my erect penis had curved to the left a bit. I have never had this happen to me before. I rang my doctor and he tells me that I more than likely have Peyronies Disease. I read a bit about this disease and I'm wondering if the curve will get bigger or what other complications I might be facing. Help please

0 likes, 15 replies

15 Replies

  • Posted

    It is also known as induratio penis plastica which is an inflamation of the connective tissue.

    There are remedies available including the surgical removal of the plaque that has formed on the membranes, however it is usually recommended that a delay of at least one year be allowed to establish if the condition worstens, which in many cases it does not.

    You really do need to let your doctor examine you and establish if this is the correct diagnosis, at which time he will give you all the options available and discuss any possible side effects.

    • Posted

      Thank you. Reading about the disease has really frightened me!!
    • Posted

      Worrying about it at this stage is going to tire you out.

      Firstly there is no guarantee that it will get worse.

      Secondly only a small percentage of men have a straight penis anyway, and thirdly there is something that can be done about it.

      Is it becoming a problem at this stage with intimate relations, or is it affecting your ability to urinate? 

    • Posted

      It's not causing any problems right now. I am not in a relationship right now. When I saw my penis with the curve at the top, I got a terrible fright. Strangely, I cannot find any "lumps" as described by other sufferers or I do not have any pain that I am aware of, as I have suffered from painful neuropathy in my genital area for about 4 years and it's virtually impossible to distinguish if the pain is from this or if it's from peyronies. 
    • Posted

      Are you a diabetic John?

      As for the peyronie's I certainly wouldn't worry about that at all at this stage. After all Bill Clinton was a sufferer and he did quite well for himself.

      Now that you have mentioned the neuropathy, I would be quite interested to hear from you if have any idea why that suddenly appeared 4 years ago?

    • Posted

      No, I'm not a diabetic. My doc did tell me about Bill Clinton - I'm honoured :-)

      the neuropathy is a long, long story. Briefly, it first started over 15 years ago, with various "sensations" in my genital area - dull pain, itching, crawling, stabbing, numbness etc. For over 11 years, medication kept it under control. Four years ago, the meds stopped working and I was referred to a pain specialist. He's tried various procedures but none have been effective. No physical cause has been found despite every test known to man being performed. The last 4 years have been soooo difficult. The pain, no sex due to horrific pain after (burning that could last up to 36 hours!!), depression, counselling, eventual break up of my relationship.....so much more that's not possible to explain in a few lines....

    • Posted

      Male genital dysaesthesia is rubbish.

      The scientific community believes that there may be some connect with Rosacea.

      Have your doctor tried you with Doxycycline or Oxyteracycline tablets, and/ or a 1% Hydrocorisone cream?

    • Posted

       The affected area looks normal and no apparent "redness" or other signs of infection. The sensations I experience are "internal" and are not obvious on examination. Creams have not been prescribed as there is no area of infection to treat
    • Posted

      You say that I should not worry about Peyronie's at this stage.....why do you say this? I am worried.
  • Posted

    Hi John,

    I hope you don't mind me adding to your discussion but there were a number of things said here that relate exactly to my experience.

    i have had the disease from birth as far as I'm aware and saw a urologist in my early 20s. Back then it was merely physical but because I could live with it and it didn't Impact too much on the sex I chose no further treatment.

    im now almost 40 and things have changed.

    i too have those painful sensations you describe but are less severe.

    however, I also have developed difficulty in inflating the gland at the tip of my penis, unless I stand up and it seems to be ok, but at a cost of rigidity throughout the rest of the penis.

    although correlation is difficult I personally get relief slightly from vitamins.

    i also have roseaca as was mentioned.

    from my understanding the disease isn't one that one should significantly worry over, though, like you I'm effected mentally which has its own problems on related issues.

    its best to get the diagnosis I suspect and possibly take medication to best live with it.

    good luck.

    • Posted

      Hi Greg,

      Thank you for reply. Have you been diagnosed with Peyronies? Or something else? When you say that in your 20's it was "merely physical", what do you mean? I've read so much over the last few days that my head is ready to explode and I still have no idea if what I have is Peyronies - my doctor isn't available until next Wednesday. The only new "symptom" I seem to be experiencing is the head of my penis is tilting (bending) to the left.  Could this be caused by my ongoing neuropathy? I've read some real horror stories and I've seen some very disturbing pictures. Help? Thanks Greg.

  • Posted

    From recollection I was told that it was either peyronies or simply a scar from impact.

    they didn't do the injected test but did examin me, but because everything was 'userable' then it was upto me whether I wanted to go down the route that might have lead to an operation.

    i chose not to.

    the physical reference referred to the fact there was no pain, just sometimes it was very awkward.

    when I was young and even sneezing seemed to get me erect it was a burden. I'd get several types of erection. Ones where it was rock solid but contorted, much like a shard of ice, those were unusable, other ones were less rigid and had some give to them, those ones were fine....the only problem was I never knew which I'd get, and daily life became a problem.

    relationship wise it is no underestimation to suggest it completely effected the outcome of my life. I walked away from ever single relationship or simply avoided them. It's hard to say whether I'd have turned out misanthropic had I not had this but maybe not, now I'm extremely cynical and resigned to never have kids etc.

    thats not to say it in itself is devastating. We all cope differently, but all that said I'm still very aware that there are people who suffer much more than I with other illnesses or misfortune.

    to answer your question, I know it's definitely peyronies, so many symptoms to be coincidence.

    alcohol has a negative effect too, and substance abuse does it no favours I believe.

    not sure if yours is definitely peyronies, but if it is there are several drugs I believe might help you.

     

    • Posted

      Thank you for your honesty Greg. I see it has had a major impact on your life. I'll have to wait and visit my doctor next week to see what the diagnosis is. The whole thing frightens the life out of me!!
  • Posted

    With regard my situation I've never known anything different.

    you have good and bad days depending on its severity but I've seldom seen horror stories to which you refer.

    i believe in most cases it's insignificant, I'm sure the doctors will say the same.

    there are a number of options available, the reason I didn't opt for surgery was down to the fact you sacrifice length I and the machismo in me didn't like the sound of that.

    ive seen ppl say they are on a regimen of tablets and it relieves symptoms.

    as difficult as it may seem to you now there is little point worrying, this isn't one of the most serious of ailments in my opinion.

    • Posted

      I hear you. After years of pain and discomfort, I was beginning to get some relief recently, so the appearance of this is the last thing  I need. I may have read too much into the "extremes" of this disease.....and frightened myself to the point of panic. 

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