PF or not PF, that is the question....
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I've had PF for 16 years now.
Stretching, ice, taping, massage, night-splints, injections, surgery, etc.
Nothing worked. The Surgery made it 10 times worse (judged by how long I could walk before pain stopped me).
Last year I saw another specialist who thought it might be Tarsal Tunnel Syndrome - investigated that but no progress there.
A month ago I saw another foot specialist - he says there is no evidence on the MRI of PF - in fact there is no evidence that I even had the operation. This is not PF he says (after 16yrs trying to cure PF!!!!)
He says I have Extensor hallus Longus & Extensor Digitorum Longus, tendon injury. I't seems to be caused by a flattening of a the arch but not what might be called fallen arches. I'm now seeing a physio who has me on a strengthening program for the next 5 months. There are surgery options but need to go through the 5months with absoulte determination - 10minutes exercises 4 times a day for the next 3 weeks and more after that.
My experience would suggest that the diagnosis is key. I've been on other message boards where some have had the PF for 5+ years and now I wonder is it really PF for those people either. As for me .....time will tell but I would recommend anyone with ongoing feet issues to get a second and a third opinion.
0 likes, 16 replies
ray62350
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Airwave ray62350
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ray62350 Airwave
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I have access to medical journals and have read up on the condition and treatment in "Foot & Ankle International" specifically "Stage I and II Posterior Tibial Tendon Dysfunction Treated by a Structured Nonoperative Management Protocol: An Orthosis and Exercise Program" Richard G. Alvarez, Andrew Marini, Coleen Schmitt and Charles L. Saltzman Foot Ankle Int 2006 27: 2.
The physio I was sent to by the Consultant gave me the details of this source. You might be able to get it online through google.
The exercises are very specific and tedoius. My concern is that IF I don't have the diagnosed condition, that it might be doing harm. I reckon it can't get much worse in my case so what the hell.
I have to sit with my feet off the ground (on a table). I bring the soles of my feet together (turning the feet inwards) and hold for ten seconds, relax for 5 seconds and repeat 10 times. This is ONE set - I have to do 4 sets - takes about 15mins and this I am doing 4 times a day. (Some days I only get 3 sets done but I'm working on it and I've only been on the program for 10 days now). He also want's me to stretch teh muscles concerned - difficult to describe - Have to have both hands on the ground and one foot (say left foot) with heel stuck hard to the ground , the other foot resting just behind my knee. The left leg has to be straight and then I have to arch my bum upwards - or increase the arch in my lower back. its a killer!.
Be careful - I'm used to stretching and exercise of all kinds - a new exercise may cause more injury than good and I am going back to the physio on Aug 22nd - so I'm under medical supervision. THe physio is also in direct contact with the Orthapedic Surgeon so there is a chain of command associated with this treatment. In two weeks he is going to add to what I have to do - all this will continue for 4-5months before any other action will be taken.
AnnB ray62350
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ray62350 AnnB
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August 17th 1998 whilst warming up for a Rugby match, felt a 'ping' (tear) in both arches. it was teh start of professionalism and we were being paid per match so I kept going. It wasn't particularly sore during the match but afterwards the pain was noticeable. The rest of that season I got the physio to friction them before each training and to tape them. After running/playing I used to stand in a bucket of ice until numb - that eased the pain!
I really can't remember the type of pain 16 years later but the reason I went for the surgery was the burning pain in the heels and eventually over the soles of the feet. It would get worse the more I walked but if I had been resting for a 4-6week spell (only doing what I had to do) I could get by for an hour. After te operation it would only take 5minutes to get to this mind-numbing burning pain. I've been using crutches on and off for the last 4 years since the op. If i try a short quick walk/run say to cross teh road - I can get a short sharp stabbing pain somewhere between heels and arches but that is not a real problem - it is the aftermath - the non-ending burn, throbbing pain that can really be mind-numbing. when I've set the process going then even the shortest walk - 20feet - can aggrivate it to the point of it not being worth moving. The crutches do help even though I don't really weight bear - it seems to help just to walk at a dead-man's pace and short steps. I've never had the first-step-in-the-morning pain that I read is associated with PF but often my feet will be painful befoer I get out of bed. I've always associated this with inflammation. I did manage to get orthotics made (about 7 different pairs - 6 of which were a waste of money) and they do seem to help a little - as in I wouldn't be able to take 5 steps without them. I'm now taking oxychontin 5mg slow release pain tablets - prescribed by a pain management doctor. These are morphene derivatives - they do allow me to walk for about an hour-and-a-half twice a week - I went down this road to try to get some exercise to prevent other muscle wastage. The curious thing here is that I would have thought I should be in bits after teh hour+ walk but no - sometimes its as if there is nothing wrong at all.
There are soooo many things that could be the cause for all of us foot-sufferers - I really do urge people to get more than one opinion. I've been to 6 or 7 different specialists doctors and its only the latest who has suggested it is not PF
ray62350
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ladyjack51 ray62350
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ray62350 ladyjack51
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cindy69729 ray62350
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I have a follow up with my orthopaedic surgeon this month I will ask him to refer me to a foot specialist.
I wish you well - can you share the excercises with us all.
ray62350 cindy69729
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Another site worth a read:
http://www.footeducation.com/
ladyjack51 ray62350
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ray62350 ladyjack51
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So have you had an x-ray?
There is no way except a physical examination to check for PF that I am aware of other than an MRI as only it will show up the different density of scar tissue compared with the surrounding natural tissue. I suspect an ultrasound scan may indicate some tissue differentiation but I'm not sure it would go deep enough for PF. I am fortunate to have medial cover so have seen a number of "specialists" over the years - even they seem to differ so its a question of finding one that has the experience of many different issues. I was on the verge of going to the States to find someone and have already been to London investigating Tarsal Tunnel syndrome but without the MRI (which showed NO PF damage - even after the operation to partially cut it!). It seems to me there are so many different structures in the foot and lower leg that may cause a problem that your average foot specialist seems poorly trained. For me, even if I didn't have insurance, I would be searching for someone who could diagnose the problem as life is passing by without my partaking in so many different ways.
ladyjack51 ray62350
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ray62350 ladyjack51
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cindy69729 ray62350
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ladyjack51 cindy69729
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