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I was just wondering if anybody else has experienced this?
I have been having these really weird feelings in my head. Kind of like the room spinning feeling you'd get after one too many. Also if it's quiet and there's a loud noise it is like a firework has gone off in my head and takes me a few seconds to recognise what the noise was.
And then there's the smells. For the past few months I have been smelling cigarette smoke. I put it down to assuming the neighbours were smoking near their window and I was noticing it due to being a new ex-smoker. However, over the last month or so I have been smelling a horrible burning smell. The best way to describe it is like the smell given off after a big fire has been put out and sometimes it's a smell of burnt hair or electrical burning. I didn't think anything of it apart from it being very annoying, but I mentioned it in passing to my GP last week (just the smell thingy). She said she wasn't sure about it and would need to speak to a colleague and get back to me.
The next day she called to say she had sent a referral for a CT scan, but didn't give any indication as to what she thought the problem was. When I asked her what it could be all she said was that I needed to have the scan to rule things out?
I try not to visit Dr Google as (I'm sure you're all aware) I end up convincing myself I have some rare exotic, incureable disease, but I received my appointment letter today for an appointment this Thursday and the sheer speed of it has scared the living daylights out of me, I usually have to wait months for any appointments.
Sooooo, off to google I go and now I'm scared I have something sinister wrong with me - I avoid all things to do with the brain as it makes me feel physically sick, can't even look at drawn pictures of it - where as before the letter arrived I was content to think it was another symptom of EDS to add to all of the pain and fatigue.
Sorry for sounding like a loon, but if there is anyone who can offer any sort of explanation and/or confirmation that EDS is behind this I will be very grateful
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