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Pheochromocytoma

Posted , 4 users are following.

bbgrl88
bbgrl88

Had my surgery Aug 1st 2014 to remove the pheo that was on my left adrenal gland. Also a neuro fibro tumor in my stomach by my aorta. Surgery was 4 hrs long. The incision is quite large. Goes from breast bone all the way down passed my belly button. I was in the hospital for 7 days. Had 41 staples. It's been 3.5 weeks and still recoverying. I'm off work for a total of 6 weeks. All my symptoms, heart palputations, pressure in chest, high blood pressure, high sugars, sweating, bad pains in my head, are gone. From here on out I will have to go for tests and praying that I don't get any recurring tumors. I thank all the specialists I had. Cardioligist, surgeon, and hormone specialist. I am from Canada.

0 likes, 11 replies

11 Replies

  • marey
    marey bbgrl88

    Posted

    very very best wishes to you bb and congratulations on having got through surgery. You sound entirely ready to embrace the joys of life and I wish you every happiness in your ongoing journey.

    with very best wishes from marey x

  • Merryl
    Merryl bbgrl88

    Posted

    Hi, I had tests for this quite a few years ago, but luckily they came back normal. At least the worse is over for you now and you can get on with your life.

    Good luck for the future x

    • marey
      marey Merryl

      Posted

      thats a lovely sentiment Merryl! 

      i'm just chipping in to say that i joined the adrenal group due to the fact that i have developed hypothyroidism...i understand there can often be a link with the adrenals and so i'm looking to learn as much as possible.

      i would be very interested in hearing from both of you about your conditions, the role of adrenals, and in particular what you think caused your various conditions?

      with very best wishes from marey

    • Merryl
      Merryl marey

      Posted

      Hi Marey,

      Well that's strange because I have an underactive thyroid too. I am only on 75mg but feel I should be on at least 100mg. I joined a thyroid group but have'nt been on there for a long time. I know they mentioned the adrenals on the site. I was tested for pheochromocytoma because of high blood pressure but as I said the  tests were normal.

      Best wishes 

    • marey
      marey Merryl

      Posted

      hi merryl

      aha!

      do you think an issue with your adrenals caused your hypothyroid?

      i've been invited to join a facebook thyroid group...will come back and let you know how i get on...or maybe you'll find your way over there too?

      hpw's your diet...you eating enough good stuff?

      hey bb....how are you now? 

      keep us updated xxxxxxxxxxxxxxxx

    • Merryl
      Merryl marey

      Posted

      Okay let me know. I joined the THYROID UK  group which is very good. I will have to go back on there and see what's new. My diet is not that good because I was diagnosed with a dismotility disorder of the oesophagus 6 weeks ago so my diet is limited. I also have an hiatus hernia which I have had for over 20 years so have enough to go on with.

      I have found quite a lot of people on this site with the dismotility disorder. I can pick up some good tips on what foods to eat on here.     

    • marey
      marey Merryl

      Posted

      that's great!

      so you'll be being supercool and going for all those nutrient smoothies!! but also taking care with the cruciferous veg....which for others are supreme supercool smoothie material.

      well see you on T UK...or face book.

      love marey x

    • bbgrl88
      bbgrl88 marey

      Posted

      I'm not sure what exactly causes pheo's, but mine was hereditary. Even with that, it is a very rare condition. I was lucky to have only a sliver of the adrenal gland taken out. I was originally told the entire gland would be removed. But even with only one adrenal gland, the other one takes over. The adrenal glands are a big part of your body. They release hormones, they affect kidney function, and basically effect most organs and tissues.
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