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Phleb report

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Maritana
Maritana

Hi Sheryl and Everyone here!

Started my phlebbing procedure 3 weeks ago at 717 ferritin and 86% TS

The first occasion went fine and I felt strong afterwards (my main symptoms  has been various aching located pretty much everywhere in the body and depression/exhaustion) My doctor insists that my venesections should occur every 2 weeks, havent got any good answer why other than something about low blood pressure. 4 days ago I did my second one and afterwards I experienced the WORST fatique ever and it still keeps me in bed...My eyes hurts and floods (like when your having a flue) I have read about drinking and eating alot and that you could feel tired the day after but this is crazy. Are there any theories out there, I recall someone wrote that after a phleb, when the red blood cells are recreated, the iron deposits dump "too much" iron in to the blod which increases the TS level? Or am I just totally off here? Would love to hear your thoughts!

1 like, 4 replies

4 Replies

  • sheryl37154
    sheryl37154 Maritana

    Posted

    Hi Maritana, I am glad to hear you have started a reasonable phlebotomy program.  As I feel best after a phleb I don't know the answers for your extreme fatigue/flu like symptoms.  Is the phleb too fast?  If so, ask them to slow it down, especially if you are suffering too low blood pressure.    I consume very little sugar and starchy food, and always include protein in my meals/snacks - so I don't know if that makes any difference.  Coconut water replaces electrolytes naturally and healthily.  My TS% is usually always high - last test 107% - that does not make sense!?  I have not read about dumping too much iron in to the blood but that is the aim of the venesections to get the iron that is stored out of the organs.  I will be asking my haemotologis about my TS% next visit.  We, with HH, are also known to have low blood pressure, and also low cholesterol - benefits of the disorder.

    Your TS% = your Serum Iron divided by your Total Iron Binding Capacity (ability to get even more iron), Serum Iron is the iron in your blood stream, TS% is the iron transported around the body, and Serum Ferritin is the iron stored.

    From some of the words you use, I suspect you speak French.  I was looking at the Hemochromatose dot org website the other day but could only make out a few words and phrases - not enough to satisfy my curiosity.  Have you checked it out and if so, do they provide any useful info?  It looks like they believe that HH occurs 1 in 300 among the French people, and 1 in 100 in Celtic people.

    • Maritana
      Maritana sheryl37154

      Posted

      Ah, thanks! Learning something everyday. Haven´t got these ferritin versions right...I feel better today but it took a week so maybe an infection could be the cause. I noticed I spelt fatique as in french but the fact is I´m not that good at it, but I´ll will have a look. By the way, have you seen this one: www.ibs-hemochromatosis-fibromyalgia-cfids.com

      Quite interesting for my symptoms anyhow...

    • Emis_Moderator
      Emis_Moderator sheryl37154

      Posted

      "I was looking at the Hemochromatose dot org website the other day but could only make out a few words and phrases - not enough to satisfy my curiosity."

      If you view the website in Google Chrome browser this will offer to translate the site for you. If you are using Internet Explorer and right click you can use the "Translate with Bing" option.

      Regards,

      Alan

       

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