PHN alternative therapies herbs supplements...anything

Posted , 12 users are following.

I have excruciating PHN. It feels like I'm being poked with thorns or multiple needs being twisted in me....the itch also drives me up the wall. The pain is much worse now that the blisters have fallen and skin is healing.

i was wondering if anyone has found help in any alternative or natural remedies.....anything that has helped them. There are many promises on the web about vitamin packs that cure PHN but I don't trust them.....so was wondering if any of you found anything to be helpful. I am already on amithriptyline and it isn't helping.....I'm being stung now as I am typing....if I sit like a statue I'm safe. What a life! So sad for all of us.....

would be be grateful for your thoughts ideas and suggestions.....

jubs

0 likes, 17 replies

17 Replies

Prev
  • Edited

    I really hopes that this helps anyone who has these issues of severe pain , numbness, tingling etc. Some days are worse then others. I have this intermittent pain all throughout the day and all the research, doctors , specialist, dentists, chiropractors and alternative healing I have come to a couple of things that help.

    It's very rare to have the pain like I do all the time. Pain like this lasting over a year is unheard of. I have been to the very best doctors in NYC. For a while we just thought it was trigeminal neuralgia which is all called by another name affecting the 5th cranial nerve nick named the suicide disease. I could go into a long complaint about all the things I tried and all the money I spent but I feel that would be just be a waste. You need to calm that nerve down and a Benozdiazpine is the best way to get relief. Which is Activan, Valium, , Zanax ( to strong) or Klonopin. I take klonopin because it lasts the longest and it doesn't kick your butt like zanax or Activan. Like I said I tried everything and I was got lucky because I went to a dentist seeking relief from this mysterious PHN (I never got a rash & barely had chicken pox when I was a kid) This dentist just wanting to take advantage of my insurance told me my wisdom teeth were impacted and and I was grinding my teeth from TMJ so to slow the grinding down he gave me a mouth guard and prescription for zanax. Before he pulled my teeth I noticed the tingling, numbness and burning sensation went away but did not connect it to the zanax right away. Long story short he pulled my teeth and the problem was not solved so I went to the neurologist and explained the situation and we realized it was the zanax. I did not want to take zanax because it was way to powerful. I decided on Klonopin and it has been my saving grace. You have to be very careful with Klonpin because it is a schedule 1 classified narcotic. Many people abuse it and it is habit forming. Doctors where giving me hydro codone and it wouldn't phase these sharp shooting pains around my eye , forehand , sometimes above the lip and would go bi-lateral when it got really bad. I was lucky to stumble upon it. Like I said I tried everything, amitriptiline, gabapentin, lyrica, you name it I tried it but it is the Klonopin that get me normal. Just be wise with it and explain the situation to a good doctor because people that do all that doctor shopping and garbage like that ruin it for people like us that have real symptons. 4 years ago Klonopin was a schedule 3, Gabapentin wasn't even scheduled but people find ways to abuse it and now even that is a scheduled drug. Plus without insurance those prescriptions can be extremely expensive.

       Hope that helped
    
  • Posted

    I've been injecting with pet vitamins for over three years now. Injections are typically 125mg of B1 and 1mg of B12 intramuscularly, and would have around 100 injection a year. I also take a multi b and vitamin d. I had v1 shingles, made worse by being on dimethyl fumarate and starting antivirals late. No eye damage thankfully. Sensation has returned to the skin (eye, forehead, scalp), but I still get itchy and the underlying bone still feels weird, especially under my eyebrow. Healing is very slow, but at least I am healing and not a prescription drug addict as can so easily happen with this horrible affliction.

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.