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PHN and Ketamine anyone tried it?

Posted , 4 users are following.

geoffreyPHN
geoffreyPHN

i have seen 60-90 percent success rates in several different chronic pain cases. My friend has gone for the infusion, takes 5 days and can come with side effects. My Pharma and dr. Got great results threw the nasal spray.

i have been rubbing it on my skin with GABA, one of the few things that helps with a full blown electrical attack. I have it in the left side of my face and neck so it effects my ability to talk or eat.

Has anyone tried ketamine at all?

Is there much of a difference between infusion, losenge or spray?

 

0 likes, 5 replies

5 Replies

  • bonnie94603
    bonnie94603 geoffreyPHN

    Posted

    Hello. I have never heard of the ketamine nasal spray in the USA. Where are you? What can you tell me about dose and effects? Also, IV ketamine use here in USA is just taking off. They do it in out patient surgery in a day. But i heard it doesnt last long. Does the 5 day plan you mention require a hospitalization?
  • Kwellness
    Kwellness geoffreyPHN

    Posted

    Yes, I have tried it for a month as a cream that I apply 2x a day on my back.  Its a cocktail of five different drugs including GABA.  I agree it works with the full blown electrical attacks but I think the Capcascin cream applied 3x/day works better.  What is the infusion?  No doctor has ever suggested that to me.  

    I would like to know if anyone has tried the Qutenza 8% capcascin patch?

     

    • bonnie94603
      bonnie94603 Kwellness

      Posted

      It's funny. I use the cream cocktail as well for the rescue from the nerve PAIN when it's particularly nasty. I did the Qtenza treatment at Cleveland Clinic. I had the shingles from my breast bone, under my breast, around to my spine. I think it's the most typical presentation. Anyhow!! I did the Qtenza and it was a nightmare. I had the numbing cream on for OVER an hour. Then came the Qtenza patches. I had several since my area afflicted is large. They stayed on for an hour. I was "supposed" to get iv PAIN medicine or sedation as I required it. I got neither. It was very, very painful. After the hour they wipe it all off but the PAIN is the same. It lasted another 1.5 hrs before it relented. I had ice on the whole time after the treatment and it helped. The Cleveland Clinic doc said he sees a 50/50 success rate. It didn't do squat for me, unfortunately. I have tried acupuncture, an intercostal nerve block, an epidural injection, megadose vitamin IV infusion with a chelation compound, and nothing has worked. Various pain specialists have tried several pain meds. Sometimes I was prescribed pain med doses befitting an end stage cancer patient. That didn't work for me, either. The only thing that FINALLY, Thank God, helped was methadone. It's old, known to be a good drug for PHN. But docs either love it or hate it. I had no alternative. I'm not going to mess with my spinal cord. So it was suicide or methadone. It will be two yrs in May. Right now I am trying to bring down my methadone dose and replacing it with the new drug Xtampa. So far it isn't working, but I am trying. Also, what has helped a lot is the Lyrica and I also take nortriptyline at night. It has been studied a lot, is an older drug, has antidepressive properties, and is a mainstay in the drugs used for PHN and nerve PAIN. I have run out of both of these meds on a weekend. It was really bad, so i know that it works and i have never run out since. I am on medical marijuana. I dont think it is helping my pain,but we are trying different strains still, so we'll see. It helps the anxiety. I am so much better than I was a year ago. I feel very blessed that I found a good pain specialist finally after 5 different ones. I don't know what I would do without him. If your doc doesn't help you or is rigid or uncooperative, get a new one. Hope some of this info helps you.😁

    • geoffreyPHN
      geoffreyPHN bonnie94603

      Posted

      The nasal spray is offered in the us, I am in Canada, I can’t remeber the percentage for the spray but it’s standard. They offer it by losenge. My dr prefers losenge I want the infusion.

      the infusion is a 5 day in hospital infusion. It can provide several months of pain reduction, because you get a lot into you which I believe is more beneficial then daily dosing.

      my friend with spinal pain issues resorted to the ketamine infusion, that after surgery and other pain killers did nothing.

    • geoffreyPHN
      geoffreyPHN Kwellness

      Posted

      Basically yes capsicum works great I rub it on every day as well. I have been adding mannitol to my creams and it has a similar pain blocking action to capsicum. You have to order mannitol it’s an artificial sugar.....pain specialist near Vancouver bc invented it and is selling it for a small fortune but the ingredients are cheap. Cannabis rub is my next favorite but very expensive and I have to use it a lot and a long time for it to be effective.

      The patch might work better I haven’t tried but it wasn’t recommended and the capsicum rub I have works it’s quite strong, I often burn my skin and my neck and then I need to medicate the injured skin area so I would imagine the patch would make the burn and pain worse.

       

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