Posted , 5 users are following.
New to the group. Had shingles initially when I was 22 years old. Since then I have had chronic pain and tried literally every treatment out there from homeopathic to injections to creams to pills to...everything. I have several doctors that specialize both in pain management but also virology, specifically VSV. It turns out there are some interesting genetic things that can happen with the shingles virus and how your immune system fights it. It looks like my case is unique, but I'm not alone. I have an immunodeficiency to fighting the shingles virus and I've actually been having recurrences of shingles along with PHN. I'm having a massive course of anti-virals along with my normal pain management. If anyone wants to chat about my experience I am more than happy to share as it can be tough when there isn't any relief in site. My latest pain management has consisted of a qutenza 8% capsaicin patch every 2-3 months that provides some relief.
2 likes, 7 replies