PHN Intercostal Neuralgia in my ribs 10 years
Posted , 4 users are following.
Hello I hope I am posting correct this is my very first post here. I hate to see others suffering from this but I find so much comfort from finally seeing others understand. I have suffered from this for over ten years now. This is all through my intercostal nerves on my left side in my rib cage under my left breast goes under my arm pit and wraps around my back but the back area is just a dull ache. I have tried the meds in the world for nerve damage and the problem is a late very late diagnosis so well you know the story. I have a spinal cord stimulator put in last year that helps with the pain but it takes that plus pain meds to give me relief and my leads have came loose from the transmitter so right now I am awaiting surgery to have them replaced. I am on strong pain meds and I just don't know what seems to work the best as far as pain meds but I guess my question is does that depend on the person? ?? I was on Norco but we had to move to long acting pain meds and they are talking about the fentynal patch. I am sure I did not spell that right. I have not decided if that is a route I want to take or not. Thanks for any input you may have at all.
2 likes, 8 replies
LoriMcInerney LisaE1972
Posted
I take Nuerontin for my nerve pain. It's non-narcotic and has really changed my quality of life. My nerve pain is a result of Post Herpetic Neurolgia. The same virus from chicken pox and shingles did me in. I too have suffered for a decade.
I hope your surgery goes well.
LisaE1972 LoriMcInerney
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ron96331 LoriMcInerney
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Thanks for your comment, and hi to Lisa too. I have PHN on the right side of my head, it means headaches really all the time. I'm on Neurontin and was interested in what you say about it being non-narcotic, others have said it's an opoid. Like you I find it does do a lot of good and I don't know what I'd do without it. I'm aware though, of a dependency. How has this been for you?
LoriMcInerney ron96331
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catherine67370 LisaE1972
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I was misdiagnosed with shingles on my left eyebrow, left side of forehead and scalp 16 months ago now. I have, like you, tried everything in the world, traditional and alternative medicine, all to no avail.
I have continuous itch around my eyebrow and scalp, which is causing me great distress.
I have traditionla Chinese acupuncture once a week which does help while the needles are in, but nothing longer than that.
I have seen an neurologist who specialises in Botox for long tern pain which I am going ahead with on July 5 as that's the earliest appointment I could get, so will keep you posted.
I can't offer any more input to you, but you're NOT alone. Catherine
LisaE1972 catherine67370
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LoriMcInerney LisaE1972
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My PHN is in my genitles. It is relentless. When I was a young child I had chickenpox longer and worse than all my classmates. They were really bad in all the warm spots like armpits, in between my toes and fingers, my eyes, on my genitles and up into my vagina. Back then no one knew what I was ailing from. They told me to not wear nylon panties, no bubblebaths, no colored toilet paper (yes that was a thing lol) and how to clean myslef better after emptying my bladder. I mean with PHN there is nothing to see, no odor, no redness, no itching, no swelling or leisions.
As an adult I got a bad case of the shingles on my left side which reignited the virus that had been dormant in my genitles.
Besides the pain which is unbearable I have a difficult time getting dressed. Underpants, pantyhose, leggins, jeans, you name it hurts that area. I've tried cute dresses and skirts but honestly it's worse than pants. As women we can get hot down there and getting sticky with no panties...I digress. So my world is small, sometimes lonesome. It's hard to male plans and keep them.
All in all I feel for you. This PHN is the worst. I am wishing the best for you
~ Lori
LisaE1972 LoriMcInerney
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