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I have had Epilepsy since I was 14 and I suggest the Doctors try the drugs they put us on before they ask us to take them !
I have taken phenobarbitone since 14 gradually the dose went up and the Hospital said to me "Do not take anymore than 120mg at night and 90mg in the morning. I am now on Keppra also and I want to down them but I am not allowed to. I know my own body and feel like a guinea pig.
I want to down the keppra and phenobarbs as I only need 120 night time and 90 mornings (pheno) and approx 500 x 2 of keppra If I get the shakes
I can always take an extra Keppra but no they want me on high dosage.
Good luck All
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