Pilonidal Sinus/Cyst Fibrin Glue Operation

Posted , 14 users are following.

This discussion has been locked due to a period of inactivity. Start a new discussion

Hi,

Thought I would post my experience, I have had a pionidal sinus for the past six years, not known though until around 10 months ago when it actually burst (save the gore)! I finally went to my doctor and explained this strange lump at the bottom of my back and the nasty stuff that was now coming out of it, she advised that it was a pionidal sinus and explianed the operation solution, which would be cutting it out and the healing by secondary intention and this could take some time to heal etc, etc! I asked to be refered to the hospital for a chat with a surgeon, got seen with in 1 month, which is good for NHS standards!! They confirmed again what the problem was and advised me of a new treatment which was being developed by a surgeon who has a particular interest in these, Fiberin Glue and he was based at my local hospital in Derby! Basically, they put you under general then scrape out the sinus and fill it and any tracts with the glue and it invloves being able to return to normal life almost straight away! I went in to hospital and had this done on 27th April, I returned to work on 5th May, 1 week later! So far so good, some scabbing and have 2 small stitches which will disolve in another week or so but I am really hoping that this will be cured!!

I feel for anyone who has this, it is soooo uncomfortable and makes you feel so self concious when it leaks and you are out and about!

Anyway, not sure if this is only available in the UK or not but lets hope it's the way forward!

2 likes, 19 replies

Report

19 Replies

Next
  • Posted

    Good post, I've recently realised I have one too, always presumed it was a boil or something as it would flair up and then 'pop' and it's been doing this for about 10 years now, with about 3 or 4 occurances a year. Only discovered what is was a few weeks ago by pure chance and have since been very worried after reading all the horror stories on treatment and time off work.

    It would be great if you could give progress reports and healing or re-occurances, as non invasive surgery would be great.

    Report
  • Posted

    Yes, good stuff, please do let us know if there are any recurrences. From my experience, all I can say is the surgery itself is the least bit - that's easy to get over. The icky, disgusting, painful and impatient part is the healing time! I felt really handicapped for 6 weeks.
    Report
  • Posted

    Hey,

    Thank you for thinking this was a good post for starters! I hope it might help some people because I 2 felt a little lost and the fear of god put in to me at having such a horrid operation and so much time off work!

    Here is my 2 week update....

    Right, it has been 2 weeks to the day that I had my operation and I feel fine! First week, as I put in my original post, quite sore with some scabbing and a little bit of draining but when I say little I mean less than a zit/spot! Was quite uncomfortable to sit down normally but I will warn you I am a wimp and the thought of stitches makes me go weak at the knees and not in a good sense!

    I started back to work as I said, one week after my operation and I have had no problems at all! My husband checks it for me every day and last night he looked and said the actual main pilonidal sinus hole is closing up really well and the stitches had almost gone.

    So all in all, I feel so much better that hopefully this damn thing won't return or if it does, I will have this operation again as I am not prepared to put myself through weeks/months of healing to have it return.

    I would really advise that you mention to your docs about the Fiberin glue technique that I have had done and will check back to this site and give more updates if you want. I do have a follow up appointment in around 4 weeks so will let you know how I get on.

    Good look though and stay comfy!

    Report
  • Posted

    Hi

    I've just found out today that I have one and I have to go see the doctor to be referred to a surgeon. I'm a complete hypochondriac so i've managed to terrify myself into thinking it's worse than it probably is.

    With the glue technique, can you explain how that works please? If the sinus is filled with this glue does that mean that the lump is still there but filled with glue instead of pus etc?

    How likely is it for recurrence?

    Thanks

    Mike

    Report
  • Posted

    Hi,

    Update time...... I have nothing to update, I am fully healed and feeling sooo much better! Nice to be living life with out that pain in the ass (sorry)!! My stitches had desolved after not even 3 weeks and the Pilonidal hole is now closed and healed. I have a follow up appointment at the hospital at the end of July to make sure there is nothing wrong I guess!

    [b:9c2c448815]In response to madcs[/b:9c2c448815] - That is excatly how I am, I am so scared of anything medical, no word of a lie I have passed out at an X-Ray sign in the hospital. I am a nightmare!! :oops:

    My advice is to ask about this treatment, for me it has worked brilliantly and the surgeon even said mine was worse than he originally thought and was really deep.

    Basically, they give you the general ana, inject dye in to the hole which shows up any further tracts that might be branching off the main sinus (mine was), scrape out all the crap and pus in them and inject it with the glue, if needs be, add a couple of stitches and your done!

    The registra said it was about as efective as the other ops but obviously less painful and disruptive to your life!

    Anymore questions, please don't hesitate to ask, but don't worry, these might be annoying but they are not life threatening!! Don't live with it but ask about this fibrin glue, it's got 100% from me! :D

    Good luck!

    Report
    • Posted

      Hi. It's been a while but how is everything now? I've just been diagnosed. Told that the earliest I can have my op using the glue is 7th September. However I'm starting uni and this is probably gonna be 3hours away from home. Not sure wether to get my op done now or at Xmas when I can have more time off😥 advice please
      Report
  • Posted

    Winnieroos

    I have very recently been diagnosed with a Pilondal Sinus - after about 5 months of it being called an abcess or a cyst or a spot!

    The surgeon didn't really discuss options but just said it will a big cut and you will be off your feet for at least 4 weeks!

    I am not happy about this especially after just starting a new job (after being unemployed for 12 months).

    Please can you let me know the name of the person at Derby who is using the Fibrin glue method AND whether you have had any recurrence to date.

    (The NHS website only refers to fibrin glue treatment for fistulas and even then it says it has a really low success rate of 14%).

    Report
  • Posted

    Hi there,

    I'm interested in this Fibrin glue treatment too as I've just been diagnosed with PS and have been scheduled for an operation. However the consultant told me that the procedure they use will be decided upon on the day which I'm not too happy about. I floated the idea of the glue treatment to him but he pretty much dismissed me out of hand.

    I'm rather worried about the recurrence rates and also the healing time. I honestly cannot afford to take that much time off of work so the fibrin glue seems to solve all of my problems.

    If you could give me the name of the Surgeon that performed the treatment at Derby I'd be interested in trying to speak to him. I'd be more than willing to travel there.

    Cheers

    Matt

    Report
  • Posted

    Winnieroos,

    Was it a Dr **** who you saw at *****?

    Adders

    [size=9:965b65da03]

    [color=red:965b65da03](Sorry but Patient Admin have removed either a Consultants name, a Doctors name and or a Hospital / s name / s from this posting as it is the policy of Patient UK not to publish these on this forum. If you wish to communicate directly with people, you should register, for free, with the forum (click Register in the menu list below the green banner above). You and other registered members will then be able to communicate with each other via Private Messaging (PM) or e-mail.)[/color:965b65da03][/size:965b65da03]

    Report
  • Posted

    Hi i may have one of these, can you let me know how it has gone since you had the fibirin glue put in please.

    Thanks

    Report
  • Posted

    Hi please tell me this worked for you ??

    I've had 8 operations in total and maybe another one coming. I've just read a little on the procedure you have had, would like to know more if you have the time. Thanks smile 

    Report
  • Posted

    Hi,

    Like many others here I just found your post and I have what is being called a cyst In that general area.  And like others the initial solution being floated is removal via knife which I do not want esp after reading about fibrin glue.  About 7 years ago I had an infected sebaceous cyst which was removed by knife and local ana and it took me awhile to recover as the hole was very deep.

    Could you please message me or let me know how I can get in touch -- I would be grateful if you could give me the contact details for your physician in Derby.

    Many thanks

    Report
  • Posted

    Hi, how is your condition now, is it completely healed? Last yr i had PS surgery, but it occured again.

     

    Report
  • Posted

    Hi

    I am glad I found your blog, about fibrin glue for this condition. Which hospital and surgeon did you see, as I would like to suggest to my doctor this line of treatment. I have gone the usal way of 2 ops, neither succesful and it might work for me. Did u get the treatment on NHS, if not how much did it cost, because I would pay if it would help, so I can get my life back.

    Thanks Issy

    Thank you for letting us know.

    Report

Join this discussion or start a new one?

New discussion

Report as inappropriate

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up