Pinched nerve feeling in cervical and lumbar with flare up

The heart issues are related to the autonomic nervous system, which controls heart, breathing, temperature etc. I am not in Relapse Remit anymore. I have dealt with this since I was 14 years old, now 29. I have been on a progressive rollercoaster ride for 4 years and now am just getting my voice heard and taken seriously a couple years ago. Teens it was diagnosed anxiety, 4 years ago lupus, with only ana positive low titer and d vitamin issues And i have psoriasis. I tried telling them something was wrong with my nervous system.....no insurance can really put halt on things too. I am for the past 3 year steadily increasing severity of symptoms. I have everyone imaginable. Daily use of walking aids and i am stuck home because i can ni longer drive. Had every test there is for pulmonary, rheumatic And cardio.....all good. I just have careless drs. I am in constant pain with my whole back it is sickening. Muscles stay stiff and spasm constantly, everything has lossed sensation by 1/4 to 1/2. No symptom seems to rest much anymore just intense sporadic periods everyday. Do not know if it is attacks or just ups and downs.....November seemed differed because of pinchy nerve feeling and i just layed there flat because it hurt more m oving.

At what age did this start for you? How long have you had MS and how long did it take for you to go to secondary from the start of the symptoms? Curious to know, my gp says this has at least from what he can tell 10 plus years for me. But I know it has been a while longer, just nobody listened to a 14 year old girl who must have a mental problem. Lol. What symptoms and frequency did you notice that switched you from relapse remit to secondary? This is what I believe I am at or the other progressive. It is not much of relaspes but just symptom severity increase and intensity. November was everything I have already had before, but just all together and was pretty scary bc it was so intense. I now hit my face on things I am looking directly at knowing it is there but i guess it doesnt connect. How old are you may I ask?

Wendy girl, I have too much issues! Lol. The constantly non stop vibrating feel can feel like buzzing....like I have held on to a weedeater too long and now permanent result, it ranges from mild to omg....it drives me nuts! Pain relief, ssince I have so much joint pain , I take oxycodone and it helps with my skeletal and muscle pain, not nerve pain though. Nerve pain is horrible, and it is everywhere from out of nowhere shooting to pulsing for a few or just constant in my eye, back arm or leg, but the constant does not happen as often as the shooting or pulsing ones. I do have a diagnosis as Lupus a couple years ago because new non MS symptoms emerged and it was, hair falling out, horribly and still does but not as bad and it comes and goes now.....could be related to vit. D and b12 deficiency and stress. 4 years ago my psoriasis went from being mild small patches here and there since birth to full blown every fall and winter my hands, fingernails and toenails are awful, cracking etc,. My feet, thinking I had Raynauds are grey and blue only when standing or sitting still and freezing all the time. Since November though I do not feel like it is Raynauds. I believe it is from MS jacking up my temperature regulation and now my feet will not warm up at all, even with a heating pad. It gets so bad my husband freaked out one night when he came to bbed and said they felt like I have put them in the,freezer. He was scared and scurrying around for all my electric heating stuff and it stilI did not help. They do not ever feel warm, so like a diabetic with neuropathy I have developed those pimple like things "chilibans" , on my feet, hands(the worse) and even my scalp and face line, but that is rare. I started this past couple years red, swollen and inflammed joints on my hands, fingers, feet, toes, elbows and knees. But that only lasted spring through the summer and took a couple rounds of steroids and it has not came back since then.....maybe since my body has so much inflammation, it just reacted wacko. The labs for lupus all came back negative, sed rate was normal but my C-reactive protein was 17.6.....pretty high with cuttoff at 3. With lupus your sed rate is high and crp is normal. Vitamin D2 was less than 4 and still is. Neuro says Hypovitaminosis??? B12 was 192, with 200 in the low normal range, so that is not enough of a deficiency to cause demylenation and can go with MSer peeps also. Other than that, I did not fit Lupus. So, I do not believe it is. Just think our bodies all react different to MS and maybe just the pain in itself caused me to flair with some other issues for awhile. Or maybe whatever damage this crap has done has caused some part of my nervous system to go haywire. I did do yoga up until 3 years ago. I can no longer do it. If i move a certain way spasm city, no balance anymore and i am just dead dog tired. I have a lot of other skeletal issues that have developed probably in result to the non stop muscle stiffness and contraction, especially in my neck, shoulders and baback. Ever since I was 16 I woke up one morning with my neck stiff to the left and I could not move it, took a few days to go back straight and it has stayed in those areas permanently stiff and contracted. My spine has a double s scoliosis from neck to my tailbone, kyphosis and chest deformity. All they can tell me and I can find is it being from muscles being tightened and over time making deformities. I also have a very very mild chiari malformation at 1.5mm due to the scoliosis they say. But mild is 3mm and doesnt give symptoms of ms until you reach 5mm. Neuro and radiologist found it not clinically significant...,.well, that to me apart from ms is another issue to worry about. The restleg leg issue, I have too developed these last couple years....It bothers me everyday. It can be mild or it can be horrible and to sit down when it is that bad drives me crazy to feel it. I have to stand. Have you had xray on your hip sacral area? This is how I found out my tailbone pain, my hips and tailbone feel the same way, it can come and go. Maybe from inflammation. But, boy it feels like my butt is broke lol. Sitting is not as bad as the pain standing. I do take xanax, and zanaflex for muscle relaxer, it is okay. It cuts down about 1/4 to 1/2 of my legs. I am on the lowest dose though, i just wanted night relief bc I do not sleep good, 2 to 4 hours at best due to severe spasms, do you ever get them in your low back through your butt and upper thigh ? The butt ones are killer, my muscles constantly twitch there everyday. I am supposed to take the zanaflex 3 timesva day but i do not because, it has a major interaction with birth control and I wish my hubby would quit being a sissy and go get snipped lol. I have 3 kiddos ages 11, 4 and 2. It has become the hardest to not be able to do much physically with them. We used to enjoy hiking and putdoor activities and now i am left home because i cannot do it anymore. I have problems being in a scooter chair at the grocery store, idk if it is the sensory overload, which has really messed with me these last 2 years, it just sets up a response of hyperactive nerves and or I just shut down and cannot lift my arms ....so embarrassing. I do not get out much anymore because of that and or I push to hard and start getting pale and dizzy. Do you have these light stars in your vision that comes and goes? I have seen them since i was 14. I now also have permanent static like vision, best way I guess i have found is wikipedia snow static. It can be mild or moderate, but it never goes away anymore.

Sciatica has been a issue or what it seems i gues sciatica feels like since i was prego with my first at 17. It seems to show up at least a few times a year. I have always had numb tingling since the start and it does not go away anymore either. My face even does it along with my right side since the summer not as movable. My throat muscles are now pretty bad. Throughout the day it can get pretty bad (choking, going through my nose). Feel like it is closing up. I tried explaining this to my neuro about in the morning when I wake up and get up for about the first hour , the best I can describe it is brain/head wooshes....like shorting out shocks, not painfulful but involves my whole head area, face and cape of shoulders. It goes in waves like if it was a sound jhooom, or zzzzhhhzz or shoom idk. Cannot figurebout how to explain it. It might be related to the Lhermittes sign. My head doesnt have to be down though. Ranting on.

Keep in touch.....thanks for listening

Kayla

I do want to add I have had episodes of left left paralyzed for a day and half and here and there what I can only guess is optic neuritis with sharp stabbing pain behind my eye, i do not get headaches at all. And it can feel like that for a day or 2 and is so bad it makes me nauseous and on occasion dry heave. Pulsing, pressure and stabbing. After the intense part is over, for a week to 3 it is soreness with moving and has before darkened my vvision at times and once filled half my bottom sight black for a few hours on the eye affected.