Pins and Needles
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Does anybody get pins and needles and twitching legs. Ive been getting pin and needles which quite bad of a night, My sjogrens consultant and told me to up my plaquenil to 400mg a day instead of 200gm all my bloods are within the normal range apart from slightly raised ESR but normal for me im worried sick it may be MS
1 like, 23 replies
shaq26875 christine63572
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christine63572 shaq26875
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lily65668 christine63572
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Quite right Christine. I think we all have to make our own choices as to whether or not to have a lip biopsy. It works out for some, and not for others.
I also realise that for some posters a positive result would enable them to get insurance cover for their treatment. In fact, I suspect that would be the case for me as well, though I've never investigated it. I've never had any general treatment for the condition, just for the different symptoms - e.g. levothyroxine for my underactive thyroid, a steroid inhaler for lung inflammation, both of which are covered by my insurance, plus a variety of OTC drops and gels for my dry eyes.
I was offered a lip biopsy 13 years ago, but declined for all the usual reasons - not least the fact that my mouth wasn't at all dry at that point, so I suspected it would come out negative. So far I haven't regretted it, and of course there's always the possibility it could be done at a later stage if necessary.
I hope you continue to do well on your current treatment regime.
shaq26875 christine63572
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too true Christine and no 2 Drs seem to agree as far as the 2 rheums I have seen, go. One said if no symptoms for 1 year then I could reduce to 200mg to once daily for another year and if still no return of symptoms then I could stop the plaq. The next rheum said ..."NO such things as flares, you have an auto immune problem which needs to be managed"
diane03050 christine63572
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christine63572 diane03050
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