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G'day from down under Australia... Well I am 38 I have SLE lupus , degenerative disc disorder , scolliosis , stage 2-3 kidney failure. I had a Tia in 2007 , was diagnosed with PIONEALOMA . I went to my rumatologist yesterday expecting help with my lupus.... Only to find that he is more concerned that my PIONEALOMA may have changed to be cancerous. He thinks that my simptoms are not lupus or kidney related , but are from the PIONEALOMA change... Blood and urine tests show low b12 ... Low vitamin d... Amemia... Stage 2-3 kidney falure... I have gone off my food.whish is strange for me. I have trouble seing , which can be lupus or the PIONEALOMA . I am looking upwards..my eyes are not looking normal. I. Am having migraines again. And some weakness down my left side.
My question is... Does anyone else have PIONEALOMA ... And has it changed.... Has any one had these symptoms .... I am beside myself with worry... I will have an MRI in about one month time.... So for now I need some help ... Please... Anything will be appreciated ...thank you. And in addition memory loss. Sorry ...c I'm jot thinking straight. Thanks again.
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