PIONEALOMA changes?

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G'day from down under Australia.... I am 38 ... I have a range of health issues ranging from SLE lupus , degenerative disc disorder , scoliosis. Stage 2-3 kidney failure. Well I had a Tia in 2007 and was diagnosed with PIONEALOMA. Well all these years it has been considered stable. Now I have shown some symptoms that I thought was lupus , but to my surprise the rumatologist thinks that the PIONEALOMA has changed to cancerous...

Symptoms are....

Fatigue. , dry mouth ,,, migraines. , upward eye , , Loss of appetite , , memory loss and confusion..... , ....

Well the question is ... Has anyone else had these symptoms and has had PIONEALOMA change...any theory , advice will be greatly helpful.... I am at my whits end at the moment.... I am usually an upbeat kind of positive person.... At the moment I am really not myself.... THIS IS NOT ME.... THIS CANT POSSIBLY BE MY LIFE...... So for gods sake ....... Please help.....anything...something.....please.....thank you for your time....

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6 Replies

  • Posted

    Hi tracey,

    you really seem to be in the wars. I am sorry to see you suffering. Have you asked the specialist about possible outcomes because you seem to have a few complications.

    Richard

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    • Posted

      Thank you Richard for your reply. The rumatologist has decided that the PIONEALOMA needs the attention at the moment. My lupus , kidneys and fibromylangia is a minor thing right now and can wait a while for further checkup. He seems to think that the problems I am having right now are related to the PIONEALOMA changing to cancer. So until I have the MRI  , I am sitting here in limbo.  I suppose I just wait I guess. But not being able to eat at the moment is becoming a concern. I just don't know what to do in the mean time????? Thanks... Do u have any of the same health issues I do?? If so what?
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  • Posted

    I live with mental health problems day to day

    Richard

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    • Posted

      Thank you for replying mate. We are all here to ask questions and to help others where we can. Some times it is a matter of letting out a little frustration whilst waiting for results

       the unknown is some times be more stressful than getting the results.  Thanks mate god bless.

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    • Posted

      G'day there mate... Well I finally have an apt for the MRI to have the PIONEALOMA  checked on Thursday... Well a bit stressed... Thought I'd let u know what was happening...
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