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PIP assessment

Posted , 11 users are following.

lisa16001
lisa16001

Hello,

I have an assessment for PiP in a week and I just wondered if anyone knew what to expect. I'm really worried as I have dropped hours at work and now part time and financially at a loss. Can anyone give any advice or their experience?

Thank you!

0 likes, 32 replies

32 Replies

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  • end
    end lisa16001

    Posted

    Hi Lisa,

    I've not had a PIP assessment as still DLA system. It maybe worthwhile you reading the criteria and info on PIP on the website. Will give you a good insight as what to expect and where you fit into it.

    Remember it's about the effect on your day to day living and not what condition you have. Try and be clear about how you are affected.

    Try not to stress about it, I know easier said.

    X

    • lisa16001
      lisa16001 end

      Posted

      I had a read the other day and also had a look on action for ME. Lots of people have just recommended that I do base it on my absolute worst day. 

      Thank you for your advice x

  • beth90152
    beth90152 lisa16001

    Posted

    No advice I'm afraid - but me too... Mine's this Thurs, I've also had to cut back on work and my income is half of what it should be - and I'm also very anxious about the assessment. So much that I've just been in tears on my husband, saying why do they have to come here (I'm largely housebound) and make me prove how ill I am when the form and evidence that I sent already proves that! So I have great empathy, will be praying for yours as I pray for mine, and will fill you in after I've had mine so that you know a bit more of what to expect.
    • lisa16001
      lisa16001 beth90152

      Posted

      Thanks. I'm able to get to mine but I am really concerned about it. I'm being investiagting for a possible sleep disorder and CFS but its still not diagonsed. I fall asleep at the drop of a hat so I can be a bit dangerous. I'm 20 years old and I feel like they won't have a lot of belief in me since i'm so young sad . Good luck on thursday! 
    • beth90152
      beth90152 lisa16001

      Posted

      Hi Lisa, it was fine actually. Any advice I'd been given kind of left my brain! But the chap was very friendly and felt like he was on our side, leaving us optimistic that I should get what their criteria says I should get. I guess that will be proved, or otherwise, in a few weeks. I've given them all the paper evidence I possibly could, and his questions yesterday were fairly straightforward. I couldn't see much point to the 'exercises' he made me do (reaching up and down, which I can't do very far. Plus some simple brain exercises - remember these objects, count backwards in sevens from 100 (random!) and finger coordination) but he didn't make me do any that I couldn't - so took me at my word that I couldn't stand up without immense pain for example. He basically asked all the same questions that were on the form. I guess they're looking for consistency. As my condition has got significantly worse since my initial application (from wheelchair dependent to house bound) that wasn't a problem! Ask me any specific questions that you want to, I'm not sure whether I've been helpful with what I've said here xx
    • JulieBadger
      JulieBadger beth90152

      Posted

      Mine went really well but the result was still a lower score and they give you the result in a table format and written.  They added up differently on mine so I replied telling them the results were different and argued my case for more points.  I was then awarded enough to score high on both areas.  Hope the result for you is what it should be x
  • caitlin39841
    caitlin39841 lisa16001

    Posted

    hi lisa. there's site called ''Benefits & Work''. it's got good info. on how best to deal with the PIP.

    all good wishes

    • brian312
      brian312 caitlin39841

      Posted

      Membership of B&W costs about £19.50 per year. I think it's brilliant, and so do the other CFS sufferers I know who have used it. It warns of the various reasons why an honest claim can fail through difficulties that an uninformed claimant might not expect.
  • sharon04040
    sharon04040 lisa16001

    Posted

    Hi Lisa not much advise I'm afraid, I've had the forms for PIP for 3weeks now but some off the questions don't seem to connect if you know what I mean, I'm now on less hours from work and also half pay for being on the sick once again. I don't know how to approach this as I also suffer with Fibro, Adrenal Insufficiency and now diagnosed with Growth Hormone, a Piturtary Disease. My heD is a shed. So I wish you good luck and hope things go as they should do for you x
    • lisa16001
      lisa16001 sharon04040

      Posted

      Thank you, I had help from the advice shop to fill out my forms, it would of been impossbile myself. Good luck x
    • JulieBadger
      JulieBadger sharon04040

      Posted

      Watch out for the deadline date they have stated for you to submit your forms. Mine was only 4 weeks I think? x
  • Deb1982
    Deb1982 lisa16001

    Posted

    Hi Lisa 

    i had my pip meeting back in January after waiting 11 months for the appointment.

    i got the highest rate in mobility but nothing for the care side, as I can look after myself, once you get thet I was giving a letter to keep stating that I was disabled, I then was able to show this at the postoffice when my car tax was due and this gets you your tax free,and also received a blue badge for the car so I can now park in town as I don't walk far 50 meters and my legs don't want to do more with out pain.

    all I can advise is don't say on a good day or bad day, tell them like your having a the worst day ever,tell them that when you go out you need someone with you or that you need a walking stick,tell them exsatlely what this illness has done to your life.

    i hope this helps and good luck

     

    • lisa16001
      lisa16001 Deb1982

      Posted

      Thank you.

      I don't think i'll get the motibility as I can walk unaided but as for in the house I am a nightmare. I'm back with my parents and can't do anyting unless supported or its done for me. Just get nervous because I'm only 20 they might think its bizarre.

      Thanks for your advice. 

  • pam_87693
    pam_87693 lisa16001

    Posted

    My advice is think how you are today, think how your were 5 years ago, have you got worse? If so, do you know why, then project if you have a firm diagnosis how you will feel in the years ahead, as fibromyalgia and chronic fatigue as yet are not clearly understood.
    • lisa16001
      lisa16001 pam_87693

      Posted

      I don't as of yet have a diagnosis and I went to see a ME specialist and he has sent me to sleep medicine and everythings up in the air until I have an assessment. 

      I can clearly state what has changed in my life though. 

      Hopefully I won't be judged by my age. 

      Thanks 

    • caitlin39841
      caitlin39841 lisa16001

      Posted

      hi lisa. oh dear, sry to hear it's all up in the air again.............yikes. what has the consultant done in respect of 'sleep medicine'?/

      Caitlin

    • lisa16001
      lisa16001 caitlin39841

      Posted

      Hi,

      I'm to have a band fitted around my arm to monitor me then I've got to go in and sleep over night and for obs during the day. They are looking at narcolepsy and sleep apnea before deciding on CFS. Hopefully get called in soon and get some answers.

      Lisa

    • caitlin39841
      caitlin39841 lisa16001

      Posted

      thanks Lisa. so they haven't given u a 'definitive' diagnosis as yet? do u know how that'll affect ur PIP evaluation/appointment?

      Caitlin

    • lisa16001
      lisa16001 caitlin39841

      Posted

      I was told when I went to the advice shop that for PIP they aren't looking for a diagnosis they are looking for how the symptoms of what's wrong affects me so it would be irelevant. I can fall asleep with instantly so that's really the most dangerous thing that affects me.

      Lisa

    • caitlin39841
      caitlin39841 lisa16001

      Posted

      gosh it must be v. frightening & dangerous for u? sounds a lot like narcoplesy?
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