1. Community
  2. Bones, joints and muscles
  3. Fibromyalgia Syndrome

PIP AWARDED !!

Posted , 12 users are following.

Amanda_Awake
Amanda_Awake

Hi everyone,

I have been awarded PIP daily living at standard rate. Nothing for mobility though.

I totally understand all the others who said the assesment was a farce. I stressed that my main problems were severe fatigue and insomnia. Fatigue was not mentioned in the decision at all!. Sleep was only mentioned because I was being helped with medication!.

They do lie and the do ignore most of what you tell them at the assesment it seems !!

Anyway I am not going to appeal it as I am just glad to be awarded something and would hate to rock the boat. I have heard such horror stories about appeals!

Thank you to all the lovely people who helped me through this PIP process.

Amanda

 

0 likes, 25 replies

25 Replies

Prev
  • gemmagemma
    gemmagemma Amanda_Awake

    Posted

    I have not been awarded PIP. I had a brain tumour removed 3 years ago and haven't been well enough to work. I have since been diagnosed with ME and wide spread pain. I have also got epilepsy since my operation. I have asked the ME clinic to appeal against it. I tried to do some volunteering a few months ago that is when I knew I wasn't up to it. I'm plagued with fatigue, pain, swollen neck and spine and other areas of the body fell like burning.. Can't cope anymore I've lost friends they don't understand because I look OK in the other side. Pain clinic is useless. I'm in a vicious cycle. And not to be awarded PIP is the icing on the cake.
    • Amanda_Awake
      Amanda_Awake gemmagemma

      Posted

      You really should appeal this !!

      How on earth can they refuse you ??

      Wish I could help more but have no clue about appealing !!

      You will get lots of help on this forum and I have heard so many stories of them changing their minds and awarding PIP after all!!

      Best of luck and keep us informed

      Amanda

    • pollmadoll64
      pollmadoll64 Amanda_Awake

      Posted

      To appeal you have to tell them you dispute their decision within a month.Then you will be at Mandatory Reconsideration level. If they still say no you go for a tribunal which can be done by sending in a SSCS1 form stating why you disagree. I have been waiting since January.
    • pollmadoll64
      pollmadoll64 Amanda_Awake

      Posted

      I am waiting for the Tribunal to make their decision after Pips replied to my reasons for appealing. It is such an unfair and overly stressful process to go through. my GP has written a supporting letter to state the negative affect this is having on my health
    • Amanda_Awake
      Amanda_Awake pollmadoll64

      Posted

      It will be awful having all that stress and fibro !!. I know I was in a flare just waiting for the assesment then decision! so you must be suffering. It's so unfair the way we have to try to convince people to believe we are ill!

      I also don't understand how an assessor can chat to you for an hour, then pass this information over to someone who has never met you before and then they decide to ignore the diagnoses the doctor gave you !!!  We didnt diagnose ourselves.

      I wish you the very best of luck with your tribunal

      Please keep in touch and let me know how you get on !!

      Amanda

  • Puppysue
    Puppysue Amanda_Awake

    Posted

    Hi. And well done. I posted my pip form 2april and had my assignment 6 may lasting 2 hours i have wheelchair. Zimmer frames commode and bath lift all of which were assessed by OT. So keeping my fingers crossed for something. I was given a home visit although i never requested one. So just waiting now.
Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.