1. Community
  2. General
  3. Chatroom

pip by phone

Posted , 2 users are following.

tiswas24537
tiswas24537

has anyone received a letter to say they have to start there pip  claim now even thou there dla dosent run out till june , 

it  has a phone number to ring and 10 questions to answer 

both my conditions are linked to pain and fatigue i have fibro and aspergers syndrome . and i dont know how to answer the questions .i was expecting a form . which could have been filled out by a professional .

2 likes, 10 replies

10 Replies

  • clarachuff
    clarachuff tiswas24537

    Posted

    you shoul;d get your PIP book to fill in soon if you've done the phone thing. Make sure you look REALLY carefully at ALL the questions as you try to answer them, Be TOTALLY honest about what happens to you ON YOUR WORST DAY, as this is what they need to know and they CAN get distracted when reading the completed form if you say things like "mostly I can walk 12 yards but sometimes I can't" ....you HAVE to say "on four out of 6 days  I AM UNABLE to walk MORE THAN 12 yards (or whatever) on the others I can only walk to my gate ...about 4 steps......and struggle to do so due to pain and fatigue.. Keep a diary (there are suggestions within the book to show you what sort of format to use and how to make it clear and concise)) and record the very WORST things that happen to you. If you fall over three times on one day, SAY SO. They are NOT inclined to have a sense of humour so don't try to be light hearted about what you have to say, just make sure you are filling it all in with details of YOUR WORST DAY!!!! Get support from your GP/physio/consultant/carer/support worker/family...there's a space for them to write about you if you're ok with that, and their input can be very upsetting but will back up your statements. Its devastating to read that your partner, for examplke, spends two hours daily helping you to manage in the loo/have a bath/get dressed/change you wet pants etc....but if its true then him saying so can lend backing to what YOU have already said. And if you really can't manage to compolete it, then go to the local Citizens Advice Bureau where there are experts who will help you say the right things in the right way. MAke sure you will be getting a PIP book to fill in by phoning that number yopu called and checking. GOOD LUCK, wish I could help you more.  xx
    • tiswas24537
      tiswas24537 clarachuff

      Posted

      i am stuck with struggling or finding ways around my problems 

      my marriage isent good and i am made to feel like a burden 

      he sees his job as going to work paying the bills. 

      i struggle to get out of bed if i get on my back  so i sleep with a sheet wrapped round so if i get on my back i can pull the sheet across me and roll myself on to my side . .

      i wear maxi dresses all year round because i cant get tights or socks on so i am often vey cold ,my husband has no patceints ,in helping me so i dont ask ,

      i often drop of in the shower so cant have one unless his home incase iknock myself out ,and he cuts my toe nails because i can only reach my right ones the left because i have  to reach over then down.

      , and he chops the veg and lifts the pans and puts things in and out of the oven ,and does the washing up because i drop so much stuff .but thats about it .when his at work i have to manage on cereal 

      toast .

      i cant take meds because i am so sensitive .but i do pay for accupunture treatments out of my dla ,even the doctors reccomend this but not sure if i can get my accupunturist to add her comments or not ,i dont go to the doctors often except for blood test to make sure the fibro isent  masking anything esle ,but thats about it theres no point theres nothing they can do ..

      already this year iv had ,4 weeks of of a pain flare so sore unable to move with it just wrapped myself in a blanket and slept , then that eased up to be replaced by 4weeks of constipation with increased skelton pain and dizziness .  

      now i have two new worring symptoms which i will being seeing the doctor about at the end of the week .find out whats going on  hope the news isent to bad .thanks for your help .

       

    • clarachuff
      clarachuff tiswas24537

      Posted

      and ask your GP to send you to rheumatology when you see him/her ....time you had a proper diagnosis and some decent support from what you tell me!!! I'd be very surprised if that request was denied...and at the end of the day YOU are the oerson needing help so MAKE them take you seriously. Far too many people suffer from symptoms like yours and get a sort of pat on the head and "there there dear" from the doctor...and its \NOT GOOD ENOUGH! SOMETIMES I think you just HAVE to go to doctor and burst into tears no matter what sort of fool you will feel, in order to make them take you seriously. You need and deserve some help and a proper diagnosis would help a lot, If it IS something more serious than Fybro (and goodness knows its a miserable thing to have...got it myself!) then there is almost BOUND to be some medication out there that will suit you, though it might take time to find it. BUT they are wasting YOUR time NOT doing it so get active and get in that surgery and insist!!!!!!!! (nicely of course!!!!) ALL the very best, let me know whjat happens x
    • tiswas24537
      tiswas24537 clarachuff

      Posted

      iv already got a diognoses about 7yrs ago 

      theres nothing they can do 

      i also have a diognoses of Aspergers syndrome 

      which adds to my senssitivity 

      i really cant manage main stream meds 

      one antacid cause me to be constipated for about 5 days 

      i use a really cold gel that stays cold for about 4hrs that helps agreat deal with the pain , the accupunture steadies my other symptoms 

      as long as i can take my time and not do anyone thing for to long i can just about cope

      if it wasnt for the crushing fatigue that hits me the i b s and bladder sensistives i could probly cope with part time work .

      but with all this just getting thru the day is hard work i couldnt cope with work as well if they stop my bennefits i will be in dire straights not being able to afford the little relief i get now .

      and will be even more of burden 

      if i could cope with all the bills and sorting out paper work etc i would be divorced now but with brain fog i just struggle so much , so i have to stay with him and endure the emotional abuse ,

      because theres no real help out there for people with disabilitys people cant see . so its the case of putting up and shutting up i am afraid .

      for people like me .

    • clarachuff
      clarachuff tiswas24537

      Posted

      simply because it WAS a diagnosis SEVEN YEARS ago doesn't mean you cant have a review and see what has happened since then!  YOU and they don't know it hasn't now developed into full-blown RA and that IS manageable with care ( I've got that as well!!!)  If I can live with it, then anyone can as I am the worlds biggest wimp where pain and discomfort's concerned....but you do have to go and be a nuisance if thats what you want to help you cope better. As for saying" there's no real help out there for peole with disabilities"....fiddlesticks!!!

      There's LOADS of help for disabled people out there if you go looking for it......just cos your horrible fybro isn't as visible as a broken leg in a cast for example doesn't mean people can walk all over you. I KNOW how crushing and debilitating the pain and fatigue can be...I had to give up my beloved job as Care Manager because of it and I mourned that for months....and then made up my mind to DO what I could and try not to miss too much what I couldn't. Its really hard, Tiswas, I KNOW it is, but it HAS to come from you and you CAN do it. Get that PIP form filled in with CAB help (they will do home visits sometimes) and look to the future...albeit not the future you planned but a future YOU are in con trol of.And maybe ask if you could try some mild anti depressants to help you get back on track? Of course it might take time for you........... with your poorly tummyand bladder problems........ to find the right ones but please don't write off every medication, its highly possible there's one sitting on a shelf just waiting to help you!!!

      All the best.

    • tiswas24537
      tiswas24537 clarachuff

      Posted

      i am afraid we will have to agree to disgree . 

      i have spoken to many people on this forum who are just as bad of as me if not worse for taking meds . the long term side effects of most meds are terriable and i really cant stand the thought of being anyworse.

      as to help with invisable dissabillitys i am a bit of an expert ,i fought for years for my son just to get him an education eventuly i got 6 hrs a week home tutor, with one day a week in a school hall with one to one assisant

      but he missed so much , the senoir school was just not suitable the biggest in england with a police man on duty ,in the school both my non Aspergers girls had trouble coping so i knew my son wouldnt cope , in the end i had to move countys  to get the special needs education that he needed , 

      moved from the seat of learning oxfordshire to north yorkshire to get it 

      his been left school now 8yrs and has been forgotten .about .even social services have come up with nothing since the princess trust scheme he went on that was 3yrs ago . 

      i fought to get him into special needs colleage so he could learn social skills they were happy to take him if we could get funding ,we applied for a years funding and was turned down because of budget cuts . he could have been self suffient by now and having a life instead his at home with no futrue .

      so please dont say fiddlesticks  because for some of us there is no help , even his social worker said of the record that travis would get more help if he was setting fire to cars and robbing . straight from the horses mouth

       

    • clarachuff
      clarachuff tiswas24537

      Posted

      poor Travis, you and he have really been through the mill haven't you...and its disgraceful that you have had to jump through so many hoops to get even a little bit of support or information. I was horrified whan my son'd mental health care ended on his 16th birthday and he was left to muddle along until he suddenly bcame an adult (ie at 18) so he DID "muddle along" for two long years and in the process became even more unwell. It truly is dreadful that anyone has to battle for what there is and its SO hard to find where it is and how to use it when you get it....and my heart gors out to you both that senior svhool sounds dreadful and very frightening.

      But you didn't mention THIS part of your struggle to cope in your original post so I'm sorry if you feel I was dismissive of the battle you have had. My experience tells me there CAN be drugs that MIGHT help you....I'm  on morphine now; I've tried most of them and of course they can and do cause many horrid side effects and problems. but some do work and if you were able to bear it, finding the right one for you might help with your pain . 

      my fiddlesticks was directed not at you and your issues...but to emphasise that as I went on to say, there IS help out there to get your PIP forms completed  .....not for the world di I intend to imply anything rude or dismissive and I am truly sorry if that has offended you. 

      ALL THE VERY BEST to you ALL, x

    • tiswas24537
      tiswas24537 clarachuff

      Posted

      it did read like that . i know theres help out there for forms we have a great guy who works for DAG disability action group who fills in forms but with so many people after his time and skills i am worried that he may be to inandated to help .cab here rarely do forms due to cuts . .

      but i can try and do them with fightback 4justice over the phone if things come to push . 

      sorry about your son to .

      Aspergers runs in our family theres me my son and a middle brother with it , and loads of pressure falls on me i have to try and keep contact wiith my brother but his very reclusive and suffers from serve depression, and with me with the smae problems but not as serve gets me down when i ring him . but if i dont then i could be getting a phone call saying his commited suicde ,

      no one eles in the family bothers to take up the slack it all falls on me and as you can imagine with just  fibro its harder enough to get thru the day  add aspergers to its even harder  to get thru the day with out added presure and worry of a sibling,so i do my best at phoning him once a week . eek i do have to look after myself to but i do worry about him . as well as to what is going to happen to my son when i am gone ,i wont live for ever .

  • belmez2015
    belmez2015 tiswas24537

    Posted

    Morning, I had the same DLA was to run out May 2015 Letter Jan this year. Then all i can say is what followed was shameful and shambolic by the DWP.

    Try not to answer all the questions in one go. Sit down think about your answers honestly and how they effect you, then when you do your phone interview your not in a panic to answer the questions in a hurry and you've thought out your responses.even better if you can get support in filling out any form.

    This is just another cost cutting exercise as more people than expected are having one to one interviews.

    I ended up having a one to one interview and that is where my farce with the DWP started. But that's not for here.

    Just be relaxed and if you cant answer or are unable to answer let them know you will gave to get back to them. Keep calm

    • tiswas24537
      tiswas24537 belmez2015

      Posted

      thanks hun already done it was basicly confirmation questions

      they said i should here from them in 3 weeks and recieve a form to fill in .

      dont no how its all going to work out 

      but its a worry 

       

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.