PIP not awarded... Any advice. I have up to the 22th May to appeal :/

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PIP not awarded 0 points! Advice please

Hello!

I had my PIP assessment a few weeks back I suppose I was having an OK day and my fault at the moment is putting a brave face on and always worrying what people think!!!! but after a 2 hour interview I was exhausted and deflated. I received a letter and report from PIP a few weeks ago and guess what I didn't get awarded.

A little bit about me. In August 2012 i just turned 32, collapsed with a full seizure. After a lot of tests and a 6 hour biopsy the hospital found a grade 2 large deep meningioma brain tumour. I am lucky it wasn't malignant but it has left me with cognitive problems, fatigue everyday, pain, focal epilepsy (seizures are now controlled but I do have auras but it could be the drugs) and I'm not the Gemma I used to be... I used to run 10K, go on nice holidays, see friends, family now I can't work because I am fatigued after walking 10 minutes and I feel pain everywhere especially my neck and spine (I have a lump that sticks out like a sore thumb like a hump) over the last few years I have been fighting to get well and I even tried dating again but didn't work out. I volunteered at a charity shop and came home crying because I couldn't concentrate, I felt fatigue, pain and I struggled on the till. I had tests done at the end of last year because I just knew something wasn't right I was then diagnosed with ME and wide spread pain. I've been through the wars and I don't want to dwell on my illnesses but I think after working from the age of 14 to 32 I deserve a little help. There is so much more I could put in this message but I think you can see I'm struggling in general. I've seen chiropractors, physiotherapists but I get migraines... I think it's all neurological my problems 😒

The ME clinic are going to write a letter to PIP to try and get them the change their decision but my occupational therapist isn't hopeful because I haven't been awarded any points. I can walk for 5 minutes and wash myself basically. Anyone got any advice/help to fight my case????? Very specific Examples to dispute????

I gave the PIP assessor and PIP so much back up. I'm now waiting to see a rheumatologist because the pain clinic are focusing pain to be just the mind and not the body ffs! I have appointments coming out of my ears.

Hope you are enjoying the weather. I'm lying down in the garden resting xx

0 likes, 33 replies

33 Replies

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  • Posted

    Why did you say you were having an 'OK day and putting a brave face on' it's hardly the right way to pursue a claim or to react with an assessor.

    based on my personal experience, I would ensure that anything you post to them is sent recorded delivery. They have a habit of saying 'we not received anything in writing from you' which means it's their word against there's. Also make sure you have copies of everything you send them

    • Posted

      I didn't say to the assessor I was having a good day or putting a brave face on I meant in general!
  • Posted

    Hi my advice to you is to go to your local cab they can help you
    • Posted

      Half of them have closed down due to lack of funding and now only offer a telephone service.
  • Posted

    'I was having an okay day and my fault at the moment is putting a brave face on'

    ​so from that I think anyone would surmise you arnt as bad as you make out. I'm not saying that's the case, only how you might come across. 

    • Posted

      Which is a fair comment to make and one that the DWP could justifiably use against you.

      However,human nature being what it is it is quite a normal reaction. When people ask how I am my stock reply is - 'fine and you?'

      Most people play down their inabilities.

    • Posted

      Lol Les  your so right, like being in the doctors surgery where everyone replys im fine thank you, i wonder why they are at the doctors then!

      Sue 

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