1. Community
  2. Bones, joints and muscles
  3. Fibromyalgia Syndrome

PIP Tribunal and ESA Assessment both next week any one been through these

Posted , 3 users are following.

julia54537
julia54537

Hi all my fibro friends sorry not been in touch for a while got so much going on including both the above Tuesday and Friday next week and fibro already flaring up and really stressed and tired worrying about these has anyone got experience of any of these and whether I would benefit with taking wheelchair or sticking to single crutch or stick as having trouble with legs feeling like jelly too so weak and with Golfers Elbow since new year in dominant arm getting impossible to do anything luckily I work driving kids too and home from school so able to get extra sleep but don't want to wake up and having had flu and sore throat and extra dry mouth not producing any saliva means it's ten time more sore need to get into GP but fully booked all week chronic pain taking everything over have no energy and very sore to eat and drink too sorry to go on but so much paperwork to address getting too much for me as my memory is failing me too and this include forms to move but unable to handle with no support which is vital as where we are at present is full of riding damp and landlord won't address hate living here with my bedroom showing it as well had to move my clothes from a chest of drawers which was destroyed by mould growth back to my parents and no point getting new to be in same position and the Council won't touch meaning I suffer hate living here never looks clean which drags me down too.  Hope your all as well as can be Julia

1 like, 5 replies

5 Replies

  • alison44534
    alison44534 julia54537

    Posted

    Hi julia just saw your post and realised no one had replied,I haven't personally been through any medicals but I wanted to wish you luck for both of them. Can you use your wheelchair by yourself or are you taking someone with you? Rotten you have both medical school in the same week. Do you have to go somewhere for each of them or are they both in the same place?

    xxx

  • trisha87499
    trisha87499 julia54537

    Posted

    How did you get on?
    • julia54537
      julia54537 trisha87499

      Posted

      Hi trisha was absolute nightmare a real grilling with a panel of 3 a dr a judge and woman carer I was absolutely freezing as was sat under air conditioning and given not been well for many weeks and not slept for two nights getting my head around the bundle of papers but worst of all was the fact they failed to keep me in the loop as to what page they were getting txt questions from got really upset and came close to them taking my driving licence away because did not understand that I don't need to know destination where child has to attend school or home or respite not a very good experience but having considered the argument have gone from 8 points to 11 one short of getting higher rate on pip so annoying but they don't have the final decision it goes back to the DWP to finalise it and  if I am owed backdated monies will be on their heads.  Another Assessment tomorrow for ESA and to find out the whereabouts of my original papers and reports.  Hope this helps you thank Julia
    • trisha87499
      trisha87499 julia54537

      Posted

      I had to get Valium from doctors, I had 5 panel people and 2 trainees, i was so nervous, hopeful it went mhhllk
  • trisha87499
    trisha87499 julia54537

    Posted

    Poor you, that's rhe way I felt, I'm educated however I felt out of my depth with them, mainly because of the reasons you said, going through their paperwork and quoting statements I didn't understand, I Felt it was deliberate. The gentleman from the DWP made a comment about how my athritist doesn't match the pain that the bone specialist had specified, I then asked to make a comment on that, that's when I mentioned that my f ca make pain 10 times worse, with that he rolled his eyes! The judge gave him into trouble and then so did I, he soon got the message. Your day will come honey! Trust me
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.