pip update

Posted , 5 users are following.

So I got my letter yesterday and they say I scored 0 on everything when I read it through I was fuming to see that my assessor lied more than once both me and my husband were there and he was in sheer shock when he read it too. They say I can ask them to look at it again and then appeal. Honestly I think I have gone in a complete state of denial. (Well if he says I can do all this then I can) found my self determined to start the gym for the long term, telling myself it's all due to muscle weakness. Iv done some pilates and already I feel a huge difference in my back I know it's going to take me a long time to be completely pain free if ever. Listen to me Jeees. Can I really combat fibro or am I just pushing myself to more suffering. Maybe I'm still just not ready to admit defeat I don't know, what do you all think please tell me I'm not losing my mind xx

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8 Replies

  • Posted

    Hi nicola, same here, i scored 0 for everything too all because my assessor lied and completely under played everything i said. i have now sent in my mandatory reconsideration with documents  from my specialist and gp to prove the assessor lied, so will have to see what happens now, (if anything) but i will take it as far as i can as i know what the outcome should be if they followed the guidlines they are supposed too.. as for your beat this attitude it's great to have, but just take it steady and don't make yourself worse. but i'm sure your body will tell you what's enough.. are you going to challenge the decision from DWP?. 

    Gill

    xxx

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  • Posted

    Sorry to hear they lied on your form, when you say there's a huge difference in your back is that for the better or worse? If it has helped then keep it up, it can't hurt. the problem is when we're in pain we don't move much, not moving creates more pain and weakness and and it's a downward spiral. If your able to do Pilates and it has made even the tiniest bit of difference for the better than I suggest keep doing it, slowly and don't push yourself to far but at least 5 times a week. I think this condition makes it a lot harder to ever be 100% pain free but I don't think you can't bring your pain to a tolerable background hum If you find something that makes a difference. Pilates is well known for rehabilitation of injuries. It was set up to help dancers recover from injuries and it strengthens but also stretches muscles and works your core stability. Good luck and I would still complain if the assessor has blatantly lied and you have a witness to that.
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  • Posted

    Hi Nicola

    ​Dont let this be. These so called doctors are full of crap as far as i am concerned. They see you for what a half hour appointment and know your lifes history from that. Can you raise your arm? Can you do this or that? If specialists dont know how to cure this awful disease then please tell me how a retired doctor knows by you raising your arm etc that you can go about your daily life pain free. Im so irate right now. They dont see the emotional toll this takes on us as wellas the painful side of it. Please hun dont let this be. Appeal and fight to get the right decision. As far as you doing exercise etc, some people find it helps but others like myself cant even walk short distances without being in agony. Just dont push yourself too much. Listen to your body. I really hope you get all this sorted soon.

    ​Love and gentle hugs hun xxx

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  • Posted

    Hi nicola Im sickned by your pip decision for the assessor to lie well Im left speechless. Dont give up fight it all the way even get your MP involved I wouldnt let them get away with this. Its not right fair how we are being treated. we need to make a stand at our appauling treatment. Your not loosing your mind hun though it feels at times that we are. As for the gym becareful listen to your body as everything may seem fine one miniute, then pow fibro hits you back with a vengence. so please be very careful and dont push to hard. Ive tried in the past to beat fibro Ive come off worse ended up in bed for over 6 months with carers in looking after me. we can some times go into remission where we are pain free but it doesnt last long fibro is soon back and hitting back twice as hard. you take care big hug coming to you. xx
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  • Posted

    Thanks everyone I wasn't going to bother with an appeal I was going to wait for my ct and mri results before I re applied, but now I'm not sure. Iv done a 25 min walk today and feel very refreshed for It. The problem is on a normal day I can do most things although it puts me in a lot of pain and I feel like I'm a fraud for even applying in the first place. There are people that cannot do the things I can so I'm trying to think positively. I'm so up and down with my emotions though. I feel cheated but at the same time I'm thinking if I keep up with exercise for 6 months and it helps then I don't need pip xx
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  • Posted

    Well basically you just give them more info about your illness and say how it makes you feel day to day then give then your Drs info so they can get more info also go to the CAB citizen advice bourogh and they can help ok 

     

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