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I am on permanent home parental nutrition and have it running through a Hickman line 24 hours a day, 365 days a year.
I am so overwhelming by the PIP form application I have tried filling it in so many times. I only had it 2 weeks ago now panicking because I had a issue prior to my CAB appointment so lost the time needed to have help. My application has to be done by Friday 10 February.
I have probably done a crazy thing but I looked up various forums, this one, benefit & works one, & smaller sites. I saw your response to someone saying that you know an organisation that could help me.
I have Crohn's disease with having to have my whole large bowel removed including the part of the body that allows toilet visits. I now have short bowel syndrome which causes extreme high output stoma. I also have mental health issues which I have had various appointments with psychiatrists, psychologists, support workers but no better - I have no self worth and am constantly in tears and extremely depressed and cannot do various tasks because of this along side crohn's arthritis, mouth ulcers, psoriasis, eye problems, chronic back pain, pain from scarring both from external and internal. I also have osteoporosis having a fused spine losing 4" since I was diagnosed when I was 32. I am now 58.
I am at a loss what to do for the last week the DWP have been texting me and now had a letter asking why haven't they received the form. They have said ring if I needed more time but if I did that would it go against me?
I just don't know what to do as I'm told PIP is only short-term 2-5 years my condition will never get better due to the amount of surgery I've had my gut and what it does will never improve. I have indefite for both DLA higher rate. My illness doesn't seem to cover the criteria that PIP want and require. My hospital and GP state that they cannot give me any info backing my claim as the government have now made medical notes availability private which to get would cost by a highly hourly rate. I just don't what to do?
I saw your advice to someone and wondered if you give me some advice and the organisation that could possibly help me.
Many thank Les,
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