Pituitary Adenoma: Post Operative difficulties
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Hello,
I had a pituitary tumor removed in middle of March 2019. It has been almost a year in a couple months, however, I have been dealing with a constant "knocking" sound I am hearing in my head. I cannot run or jump (I mean I could, but it would be extremely discomforting) because there is something in/around my head that I feel that is kind of moving (perhaps in a pendulum fashion, but I am unsure of this)... every time I feel/hear it when I walk, try to run/jump, it creates this sound that is like a slight knock on a wooden slab.
I have to irrigate my nose almost every other day or I get severe headaches and naseau, but when I skip an irrigation - I feel like the mucus that I do not clean out makes this knocking sound more prevalent.
My ENT made me feel as though I am overreacting - and he questioned if I thought I was hearing my heart beat. No. My significant other and my mom have both heard this knocking while walking next to me, but they only heard it prior to when I found out I have to irrigate my nose in order to prevent headaches (my doctors never told me I have to continue irrigating, which is another whole set of problems).
The struggle here is how I can convey this to the doctors - when I shake my head, it feels like a loose bolt that perpetuates this knocking sound. That is the only way I can describe it.. and I have tried showing them the sound, but it does not always come on command. They have seen an MRI and they said I am fine. It really sucks and discomforting because my head feels really fragile on most days and I love being active. I am hoping someone might be experiencing the same thing? Even similar?
Thank you.
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