Pituitary Tumor
Posted , 2 users are following.
I've had my six months follow-up MRI done 3 days ago and I'm totally confused with what it says
?this is what was in the results if anyone can help with any sort of information great otherwise ill wait until I see Neurosurgeon again Next week
?Findings: There was no previous imaging available for review .The Pituitary gland is normal in size measuring approximately 7mm in Height.
There is a mild down sloping of the Pituitary floor on the left side ,however the gland appears uniform in signal and enhanced uniformly with no focal lesion seen.
?No supraseller or parasellar mass lesion is identified .The optic chiasm appears normal .An axial T2 series was performed through the remaining brain which was unremarkable there is no hydrocephalus
?comment : NO FOCAL ABNORMALITY DEMONSTRATED
0 likes, 27 replies
courtnay26 a45630
Posted
I think it pretty much says
things look good
they say "no lesion"
that is important
a45630 courtnay26
Posted
yeah I thought that but my previous scan showed a 7mm lesion and I cant understand if there's no lesion why do I still have the symptoms ill guess ill wait to see neurosurgeon
courtnay26 a45630
Posted
yes, neurosurgeons are very smart
I wish I could bring one to my doctor's appt
dambudzo a45630
Posted
the first thing is that they state that they did not have your previous scans (to do a comparison. (might need to follow that up.... contact PALS if necessary). they say that the gland itself measures 7mm,
there is nothing sticking out of the pituitary chasm (the cave where it lives).
there is nothing sticking out towards the optic nerves.
take the date of the previous MRI scans with you to the appointment - maybe the neurosurgeon will be able to find it onscreen during the appointment to have a double check to make the comparison.
you might still have symptoms because if the pituitary was squashed by the lesion then it might not have 'unsquashed' itself. not sure about the significance of the 'mild downsloping on the left'
good luck!
a45630 dambudzo
Posted
Roddy999 a45630
Posted
The "optic chiasm" is a space that the ptituitary shares with the optic nerves. A pituitiary adenoma can expand so as to squash or even damage these nerves. For many people, their first indication of anything wrong is a field test at the optometrist showing loss of peripheral vision. Your report just says that this has not occurred, not even close.
Despite surgery, you could still have hormone imbalance, which your endo can test and compensate for. You are most unlikely to need further surgery.
a45630 Roddy999
Posted
Hi there had a general eye test last week and next week ill be having a vision test but I've had no "optic chiasm"? symptoms the only symptom's are that I've noticed and family noticed is my mood swings weight gain facial & body change with mild constant headaches my sleeping pattern and constant peeing bones aching that's what I'm experiencing
courtnay26 a45630
Posted
a45630 courtnay26
Posted
Hi there has your doctor given you anything to take to help you? also my stomach is getting bigger like I'm pregnant so to speak and also the last to day I've been getting cold and hot My Neurosurgeon said last August watchful waiting until I see him again if the adenoma had grown he will do something which will be this coming Thursday .
?my concern is that the 6 months MRI scan says nothing wrong to my understanding and I no that something is wrong with all the symptom's I'm experiencing .
courtnay26 a45630
Posted
there isnt much that doctors can give you
I take melatonin , etc...
courtnay26 a45630
Posted
a45630 courtnay26
Posted
I only take thyroxine which is 150mg daily as I've had my thyroid removed back in 2007 and cholesterol? tablet ,
?I've just got back from my GP after having another Pituitary Hormone blood test so my surgeon can compare with current MRI results as I don't think they are accurate
courtnay26 a45630
Posted
is that , I would focus on tapering off any
steroids if your on them
when your given the go ahead by your doctor
and I might consider a couple of supplements
like fish oil and ginseng just
for general health
a45630 courtnay26
Posted
used to take fish oil Tablets and doctor told they don't help lol
courtnay26 a45630
Posted
what can I say
I'm pretty sure thay help
courtnay26 a45630
Posted
I don't know if you've already had your surgery
but what I think your saying is your having
symptoms consistant with cushings
cushings is can be a result of many things
like steroids ( hydrocortisone, etc)
a45630 courtnay26
Posted
Since August the 25th last year when i was told i had a pituitary adenoma I've had no test or medications all surgeon said watchful waiting i had a follow up mri Monday just gone an see surgeon next Thursday for results I've had no surgery just the symptoms I've described an they are getting worse daily
a45630 courtnay26
Posted
courtnay26 a45630
Posted
it sounds like a functional tumor
the thing is if you are going to get surgery
you really need an experienced neurosurgeon in pituitary tumors
I'm sure you will probably get surgery soon
good luck
a45630 courtnay26
Posted
Neurosurgeon said he will do something if its grown but this is what I'm most recent MRI Report says but my neurosurgeon has previous CT scan with my 7mm adenoma so from my understanding its saying that there's no tumor ect but I'm still experiencing symptom's
Findings: There was no previous imaging available for review .The Pituitary gland is normal in size measuring approximately 7mm in Height.
There is a mild down sloping of the Pituitary floor on the left side ,however the gland appears uniform in signal and enhanced uniformly with no focal lesion seen.
?No supraseller or parasellar mass lesion is identified .The optic chiasm appears normal .An axial T2 series was performed through the remaining brain which was unremarkable there is no hydrocephalus
?comment : NO FOCAL ABNORMALITY DEMONSTRATED
courtnay26 a45630
Posted
well
you could have cushings syndrome
that means , there could be a tumor in your
adrenals, etc...
Unless you've been taking steroids.
courtnay26
Posted
oh, that's right,
you said you had a pituitary adenoma
I don't kjow why they'd wait if your symptomatic
courtnay26 a45630
Posted
all the medical literature I've read says
do not take thyroxine if you have a
pituitary tumor
it is probably the reason you have so many symptoms
a45630 courtnay26
Posted
courtnay26 a45630
Posted
okay
but that makes it more important
to have your surgery in a timely manner
you don't want your tumor growing
You could also start taking a turmeric supplement
I just use turmeric on my food
a45630 courtnay26
Posted
and still waiting on the Free F3 blood results to come back doctor said everything else is currently normal so will be taking the reports with me to Neurosurgeon as chloride and sodium is still high at 148 compared to results 7 months ago