pityriasis lichenoides chronica PLC sufferer for 21 years
Posted , 65 users are following.
Hi, have suffered with PLC for 21 years now! I have it covering my entire body apart from my face thankfully! Was diagnosed at 7 years old after a bout of chickenpox, had every diagnosis under the sun until I was admitted to hospital at age 18! Had been told for years that I had psoriasis but after 8 days on a dermatology ward, countless biopsies, blood tests, photographs and being seen by a group of dermatologists at a seminar it was decided that I had PLC! Have had the light treatment which works wonders but it always returns after a few weeks, have used countless steroid creams, antibiotics including erythmocin and tetrocycline and have also taken aggressive immunosuppresants all of which did nowt!! Summer time is great as it will clear up for a while if I do a spot of sunbathing but I find it a vicous circle as i'm embarrased by it and tend to cover up! Was told that it is viral and on my last appt with a specialist was discharged and told it'll burn itself out at some point and clear up on its own! After 21 years I highly doubt it and have learnt to accept I have this for life. Its frustrating as it is so rare and not much is known about it.
4 likes, 106 replies
rukma39626 Guest
Posted
hello everyone. My struggle with plc began in 2009. noticed a few spots post a camping trip and it has been 10 years since then. at the time i consulted a dermatologist who put me on a variety of medicines. she never bothered to do a biopsy. stopped going to her after 6 months of different medications and creams when the lesions seemed to look better. later on i learnt to live with the lesions. after that i joined medical school and my friends encouraged me visit the dermatologist there. new lesions seemed to crop up post starting therapy and then finally got a biopsy done and got my answer! i was taking dapsone at one point. dapsone is usually used for leprosy treatment. but then i just stopped following up. now i get a few new lesions here and there. the previous ones have lightened. thinking of starting bromelain. love the discussion here. finally feel like I'm not the only one.
brenda23819 Guest
Posted
do you have white flat round places on you and i also have places on my back that feels like i have gravel in them and you talk about itching they drive me crazy. my friend told me o lay in the tanning bed that it should help. right now i would try anything way mine itches.
connie72600 Guest
Posted
Hello i am diagnosed with PLC can i have a dog with this disease?
connie72600 Guest
Posted
Hello Im diagnosed with PLC can i have a dog or live with a person who has a dog?
connie72600 Guest
Posted
Im diagnosed with PLC can i have a dog or live with a person who has a dog?
joshuapryce1987 Guest
Posted
Try something different, there are always new ways we can tackle tricky situations.
rose15137 Guest
Posted
I have SUFFERED with pityriasis lichenoid chronica for many years also. It is my belief that at some point in my life I disrupted the flora in my gut with medication.
When this finally occurred to me... i began eating yogurt first thing in the morning. I am happy to say for the first time in a long time my skin is almost clear!
crystal80590 Guest
Posted
hello my son started with a rash around 3 for a year i was told it was eczema the more i faught the doctors diagnoses the more angry he got. So i switched dr then they told me it was mollescum contagion i tried this oral medicine snd nothing changed. i said it has been 2 years mollescum does not last that long. so i webt to the next dr and he instanlty said were doing a biopsy and was diagnosed 6 months ago that he has PLC. the more i dig the more i think is this really rare??? could vaccine be the cause. he was never sick prior he never had chicken pox or anything they say relates to this diagnose? hes 5 and going to start school and reading everyones story it makes my stomach to turn thinking this is a forever thing. why is this happening what is causing this. And did all of your diagnoses every turn into t cell lymphomatic???? please help
lisa88408 Guest
Posted
Hi, I have suffered with PLC for 18 years without being diagnosed. I just got diagnosed. However I have been keeping it under control by making a paste of turmeric(curcumin) and applying it on my skin for 15-20 minutes before bathing. In India turmeric is used as an antiseptic. the results are amazing. It has dried up all the red blotches. I do this a couple of times a week to keep the new spots in check.
as part of my diet routine I drink a veggie juice of carrot, cucumber, apple, ginger, pineapple, celery and apple cider vinegar every morning. I'm sure this has helped too. I also have a gluten intolerance.
so over the years with a change in my diet it has lessened.
please do try making a turmeric paste with turmeric powder and water and apply it on your body. it has done wonders for me. I hope it helps you all !
Lakshmi123 lisa88408
Posted
hi lisa,
this is Lakshmi from india..need to connect with you.do you have any insta or fb I'd.
kelseyOC Guest
Edited
oops- look aboove 😃
kelseyOC Guest
Posted
hello all!
Im a 33 year old mother who was diagnosed with PLC three years ago. i have some questions I would love if anyone is interested in sharing.
Has anyone figured out the presumed cause of their PLC? Im mystified by whats brought mine on.
Does your PLC get much worse when you are sick? I currently have a cold and my PLC is worse than ever.
Does anyone link their PLC with root canal/ dental work? or Parasites?
Any encouraging words? I am feeling very sad and discouraged and alone with little medical support and no one around me who is familiar with it.