Pityriasis Rosea in 3 year old

Posted , 5 users are following.

Hi,

My little three year old has been diagnosed with pityriasis Rosea. It's so hard to stop her scratching at night. I don't know if showering her twice a day is making it better or worse. I shower her using pinetosl. I have a prescription for a steroid cream I am yet to get, I didn't think it would get as bad as it has and it's only week two sad i didn't get much advice from the doctor .. He had to seek a second opinion for it when he saw her skin. I'm not sure there's much he knew about it .. I was wondering if you guys could tell me how PR makes you feel ? Does it make you tired ? Give you a fever or make you less hungry ? Are your joints sore ? Just so I know how to work with my little one on this. I can't exactly take her out tanning and the suns not out as much as it's still winter here in Australia! Any advice on how I can manage it for her ?

Thanks

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11 Replies

  • Posted

    Exposure to sunlight is one of the best ways to reduce the rash. To stop the itching a zinc based cream such as sudocream works really well. I would avoid showers as warm or hot water will make the rash much worse. 
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    • Posted

      It will take time as there is no cure for this. The good news is it will go by itself and the rash leaves no scars. As the rash looks bad most people cover it up but that is the worst thing you can do as overheating the skin makes the rash worse. I wish you well.
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  • Posted

    Bless her heart!! For me, and all cases are different as you've probably read, it was like I had stickers in my clothing and they were irritating me. Heat made it worse. I'm thinking showering 2x a day is not as good as heat made mine worse. Loose clothing. Desitin helped - diaper rash ointment. Try to keep her mind off of it by keeping her occupied or busy. As mine dried up they got more itchy. I will pray for her and you - for ways to help her through it. It will go away. I'll pray for a short duration!!

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    • Posted

      Thank you so much for your advice and prayers ! Will be slowing the showers down for sure, they didn't seem to be making a difference anyways and I'd rather it be dry than red and puffy all the time ! Thanks again

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  • Posted

    Poor thing, it must be so difficult for her. I do hope it clears up soon.

    When I had my first hearld patch I remember feeling feverish, achy and I had a sore throat. The worst part for me was also the night, it was unbearable, some nights I didn't even sleep.

    I did find it useful to put the steroids creams in the fridge because they felt very cool on my skin when I used them at night. Camomile lotion helped, not much but on some days it did give me little relief.

    Coconut oil was soothing at times too, I just think you will need to see what's working for your daughter.

    I also tried the head and shoulders theory only once a day, that helped at the beginning but then my PR became worse so now I'm on steroids.

    I do think you should take your daughter to see a dermatologist/specialist. I find, well in the UK GPs know very little other than general medicine and even if they can help they won't. I asked my Dr to prescribe me steroids when I had PR for over 3 months and she said no, but my dermatologist said that's what I needed.

    Sorry I couldn't be of more help to you, will be thinking of you and your daughter and hoping things improve soon. Let me know how things progress.

    All the best.

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    • Posted

      Thanks for your help, she did start off feverish too so at least I can link the two up ! And yeah I'm gonna get onto the steroid cream. I'm gonna keep trying different things like you have till we hit what works for us smile

      It's the same in Australia.. Doesn't seem like our doctors know much or can help much in regards to this so this support group is all I really have right now !

      Thank you so much for your help !

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  • Posted

    Hi,

    First, as a Prek/K teacher I can only imagine what you aare going through (I work with little ones on a daily basis). I have read many people get tired/joint aches etc. I could tell no different because I am like that all the time (I have fibromyalgia).

    As a 43 year old woman in my 4th week and I am 99% sure its gone (thank God), I was absolutely miserable. I can't imagine having this as a kid.

    The steriod cream only offered minor relief to me. What worked 10% amazing instead within an hour of putting it on was 40% zinc oxide diaper rash cream.  In the U.S. I used the RED box Maximum Strength Bordeaux's Butt Paste.  My husband put it on me first thing in the morning, the afternoon if I was home, and right before bed.  I learned about using zinc oxide from the wonderful people on this board, not one of my 4 doctors mentioned it. And that's what really worked for me.  Good luck!

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    • Posted

      I meant what worked 100% amazing, not 10% LOL sorry!

      Also last week, my third week, I got put on tapered steroid dose pack and it cleared it ALL up.

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    • Posted

      You're so right, not one doctor really offered any advice or alternatives to help it .. They told me it wouldn't even be itchy and would last a couple of days sad so glad I found this page ! And yes I'm sticking with the diaper cream many preach about thank God there's a way ! And will definitely use some steroid cream. Glad yours went away quick I'm going to be religious with this cream and hopefully we can report back soon it's good. Thank you so much

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    • Posted

      See how long the steriod cream appears to last on them. Everyone is different. For me it only helped maybe 2 hrs. The diaper rash cream relief lasted about 10 hrs for me. I stopped using the steroid cream the day after I was given it. The oral steroids worked for me, but in a 3 yr old - I don't know if they give those to 3 yr olds. Lots of people have had success with sun exposure/tanning beds. You can't put a 3 yr old in a tanning bed. I am exceptionally fair skinned and tried sun exposure, it did nothing for me.

      I think it's all trial and error and depends on the individual's body. I felt like doctors only wanted to give the prescription cream and either didn't know alternatives or didn't want to legally suggest them. I am in no way an alternative medication/wholistic med believer but tried others suggestions out of desperation and some worked and some didn't. Plus I'm an adult and not a small child. I did not fit the "typical" age range of people who get this horrid rash and your child isn't the typical age either. They really need more research on this condition. Some have gotten it more than once in their life and I hope that's not me.

      Read everyone's stories here and don't give up smile

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