Planning for the future after a difficult episode
Posted , 3 users are following.
Hello everyone. First time poster here.
I have had a rather eventful 12 months and would like some advice regarding the issues I have
My name is Andy. I'm a 51 year old single male (no kids)
After probably 30 years of over indulgence I ended in hospital at the start of October last year after collapsing. I had been ill all his year and knew exactly what was causing it but carried on drinking anyway.
I was taken to hospital and was diagnosed with decompensated liver disesase with large volume paracentesis.
Whilst in hospital I had 3 drains (30 litres total), had an episode of hepatic encephalopothy and lost 4 and a half stone in weight. my prescription was 100mg spironolactone (upped to 200mg after my bloods stabilsed), lactalose and thiamine and restricted to 1.3l of liquid a day.
I was discharged at the end of October and apart from a single reoccurrence of ascites in January (my spironolactone dose was increased to 300mg per day and this gradually reduced it) have made what I feel is good progress . My weight had increased and my appetite has come back. Even though I feel this like I have aged 10 years after this episode.
After 2 inpatient appointments with the specialist, I have been re-classified as having compensated liver disease and a plan was made to refer me for transplant. I have been teetotal since being admitted.
It was during my assessment that another problem arose. The Ecg had detected a problem with my heart as well. I have a dilated left atrium with severely reduced LV systolic function and it at this point that I sit here writing this post.
The problem has been all along that no one wants to discuss my future. Not the doctor, the specialist. No one. How can anyone make any plans with no info. I feel like I have been in limbo for the past year and the future is far from clear.
Sorry for the wall of text and thanks for listening. If anyone has been in a similar position It would be nice to here from you .
Thanks
2 likes, 3 replies
barbara66703 Misterb11
Edited
Hey listen we all have health issues to face . Some are more complicated than others. All you can do is the best you can and follow thru on what will keep you in shape for a liver trans plant. Get that heart healthy and keep it movin foreword. It's one day at a time. '' Always remember". .."Life is a Gift". .. Give and share your life with those who love you and care... take all the positives and leave the rest behind. Try support groups . In every way they are serious and offer experienced support.
It's all up to you its your choice to make your life what you would like to leave behind for others. To share the ups and downs . So pick up your ego and self esteem and follow thru to build a better future ..only you have the power to push thru to a life that shares many gifts for others and that can make a difference in someone else's life.
Misterb11 barbara66703
Edited
Thank you for the kind words.
I will try and take your advice on board and stop worrying so much
barbara66703 Misterb11
Edited
thats the best answer,and that you needed to make a small attitude adjustment as life can get complicated if you see it that way. positive thinking is healthier. so glad to see your positive reply..
sending healing blessings your way.