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Hey all, I really do hope that one of you is able to help!
I was diagnosed around 6 months ago with pityriasis rosea, which then progresed and my derm said that I presented more like I had PLEVA. The lesions continued to change and they say I now have PLC. This was confirmed after a biopsy. I initially used topical steroids, which seemed to help. My loesons went brown, fell off and left me with lovely white spots! The liesons then came back but seemed to be a lot less aggressive than the first time round.. I have now had at least 3 'waves' of the unsightly rash!!
After the topical steroids they put me on 3 months of doxycycline. Again, initial improvement and then back again!
I have now started UVB phototherapy and am on my 15 (of 30) sessions. My rash was from head to the soles of my feet! Extremely wide spread. It has cleared my upper body almost completely. My legs are still covered but I have noticed an improvement. They are now raising me in the 'booth' so the rays get my legs more. It seems to have largely inhibited new liesons. Has any one had good success with phototherapy before??
I get married this August and feel so low about myself. I wondered if there was any advice anyone could give me. Perhaps lifestyle choices also that can help?
I previously had a rare form of cancer when I was 21. I'm 26 now and I'm remission. I had lots of chemo, radiotherapy and a stem cell transplant ... could this have caused this? No doctors seem to know!
All guidance is helpful, I unfortunately have lost hope that remission will be achieved! I'm usually very positive and I feel like the PLC is taking over!!
Thanks in advance! Sorry for the long post!!!
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